Breastfeeding Questions....Entocort and Imuran?

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Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 6/1/2009 3:55 PM (GMT -7)   
Its been a long time since I have actually showed up here, but now I find myself needing answers or experiences from other moms.  I'm aware its been talked about before but I never really needed the answers then to pay enough attention and now I find myself wondering.  My bad.
 
I went through my pregnancy flare free, actually even medicine free, thankfully to keep baby safe.  My crohns case is usually pretty mild.  (I was so glad pregnancy actually can help a chronic mom, wow, I felt great the whole time).
After pregnancy I flared up and I don't feel like explaining the whole story, not really important, but now I am on Entocort and later they will put me on Imuran and I was wondering if other mothers have taken these while breastfeeding, with success or not? any effects?
They said I could of course, but I wonder since I have read all the warnings and wonder if the benefits really will outweigh the risks or if I should just make my little guy a formula baby.  He's two months and 2 weeks right now.
One of those cases too of different docs saying different things...some say its okay, some say no way...
I'm pretty sure I have read here of women saying they had successful Imuran babies, want to know again for sure.
thanks

27 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Taking Imuran.


Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 6/1/2009 3:56 PM (GMT -7)   
and my signature is wrong...ignore that info...I cleared it yet it showed up.
27 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Taking Imuran.


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 6/1/2009 4:32 PM (GMT -7)   
Have a lactation consultant check Dr. Hale's book. He has a website too, but that only gives updates to the information in the book. A lot of the decision turns on the age/health of the baby. You don't have a newborn, so that makes things better. I BF my 9 month old. I've been on Pentasa most of the time, Prevacid for a bit and now Allegra. It's scary at first to take meds while BFing, but it's been worth it for me. Congrats on your little one.

Here's the site. You can search as a guest:
http://neonatal.ama.ttuhsc.edu/cgi-bin/discus/discus.cgi?pg=topics&access=guest
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 6/1/2009 4:34 PM (GMT -7)   
Here's a link for Entocort, sounds good:
natal.ttuhsc.edu/discus/messages/58/2703.html

Here's one for imuran:
http://neonatal.ttuhsc.edu/discus/messages/53/1176.html
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 6/1/2009 4:36 PM (GMT -7)   
yeah, I was searching back in the forum and saw your links to that site and started checking. I WAS on pentasa years ago but had to move off it. I just hate being told so many different things. Some docs say yes, some no, some maybe, makes it confusing. My story almost sounds like your signature...went off meds to breastfeed and learned the stupid of it, guess we live and learn.
 


skofbengsk
Regular Member


Date Joined Oct 2006
Total Posts : 234
   Posted 6/1/2009 6:50 PM (GMT -7)   
I did the same thing, went into almost total remission while i was pregnant and started to flare 6 weeks after he was born. I breastfed and tried to stay away from other meds as long as possible, I knew my doctor was going to want to put me back on entocort and I am pretty sure it says do not breastfeed while on it and there was something about unknown tumorology in children so that was enough for me to not want to chance it. I have never taken imuran before so I can't speak for that one at all. I did take asacol because everyone agreed that it was safe. Anyway in my case i finally became so miserable and under weight that I decided it would be best for everyone if I just put him on formula and took the entocort. It took me several weeks to get him to take the formula at the correct mixture, he was 5 months old when I started trying to give it to him and I had to put it in diluted juice and slowly add the amount of formula and then reduce the amount of juice. I did pump and dump while on the entocort because it was only 6 weeks but after 6 weeks on the bottle he refused to go back to the breast, I continued to pump till he was about 9 months old but it is really too difficult (for me) to keep up and my supply went down to far so I gave up. I wish I would have asked the Dr. or pharmasist if it was ok if I would breastfeed him like once a day when he was n't really really hungry just so he wouldn't have lost the desire to nurse completely. But anyway he spent over 6 months on formula and is now almost 20mo old and is sooo smart. he is potty trained, stringing 3 and 4 word sentances asking full questions, now the big thing is Why? I didn't think that started till 2 or 3. My 15 year old was completely a formula baby and I bet if he were to take an IQ test he would fall in the genius range, and trust me if you met the parents you would know it's not genetic lol. So I know they say breast is best and I am completely all for it however I don't think you are harming your child if you give them formula.
Formula is very expensive but I know I would never be able to forgive myself if anything were to come up with my son and I may have been the cause, but you have to do what is best for you and your baby and family, if your Dr. says it's ok maybe it is, I would also ask the pharmasist just to be sure.
Best of luck
Dx CD Oct '06  remarried July '05 mom of 3 boys ages 12, 15, and my baby born Oct. 07. 
Asacol, entocort


Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 6/1/2009 7:16 PM (GMT -7)   
sounds like alot of us suffered ourselves to try and help our babies!
Yeah, I read some things say Entocort gets in the stream and they don't know what it will do, and some say it won't get in the milk and blah...I think I almost think the same now, put him on full formula so I don't have the guilt of 'what if I give him something bad'.....he does sleep better at night on breast, so I might have to try just once a day maybe to minimize it all.
I was an exclusive formula baby myself and I have no problems (minus the crohns of course, but my dad had that so it just naturally passed to me). I'm not against the formula only idea, I just feel bad myself. I had to have an emergency c section instead of normal birth, and with flares, not feeling good, not being able to take care of baby somedays it just kills me to give up the one thing I have done okay so far....but yeah, keeping baby healthy is more important to me then accidentally hurting him too with things I want.
 

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