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Regular Member

Date Joined Jun 2008
Total Posts : 221
   Posted 6/3/2009 1:51 PM (GMT -6)   
As many of you know I have had a very hard time of it of late.  I have had 5 surgeries since the end of March and two hospital stays 4 for abcesses and one colostomy.  This all started when I was in London going to school.  I got sick around the time of finals and had to apply for mitigated circumstances, well I got the respons back today and it was rejected.  I am so frusterated is haveing 5 surgeries two hospital stays, sleeping 15 hours a day and not being able to do anything but lay in bed not a good reason to postpone finals.   I just want to vent I am so upset the past year is a waste if I cant finish my finals and get grades for them.  School isnt cheap and until the end of the semester I was at classes its not fair.  I am fiinding life with crohns to be more of a hastle than its worth.  I feel my time would be better spent doing nothing with my life than continually trying to achieve something and fail because of other people and circumstances that are beyond your control.  I am lost at what to do. 
Diagnosed with Crohns Oct. '07.  Have had 9 abcess/ fistula surgeries. 
Current Meds:
Imuran 200 mg                            Omeprazole 20mg                     Vitamin D 2000 i.u.          Remicade 10mg x8wks
Synthroid 112mg                          Lexapro 20mg                           Tylenol  50mg
Birth Control                                 Calcium  500mg                         Morphine 40mg
Sucralfate 1gm x4                         Multi Vit                                     Cyclizine   50mg

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/3/2009 2:06 PM (GMT -6)   
Is there any way you can appeal their response? I would get your medical records or a letter from your doctors and forward it to them. I sure hope there is someway to fight this.

Big Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined May 2009
Total Posts : 65
   Posted 6/3/2009 2:35 PM (GMT -6)   
Hi Dreamer
what a crap position for you to be in!! Just a thought - under the UK Disability Discrimination Act you would be entitled to 'reasonable adjustment' because of having Crohn's. I think you should check with NACC or get legal advice but it seems worth the effort to not waste all the hard work you've put in - potential legal challenges are something that all public bodies are keen to avoid. I'm nowhere near as bad a situation as you and certainly do not consider myself as 'disabled' but I do have a condition that affects my ability to do things at different times and need some recognition of this - the law is there to protect us
good luck and best wishes for a speedy recovery

Regular Member

Date Joined Feb 2009
Total Posts : 350
   Posted 6/3/2009 2:38 PM (GMT -6)   
When you feel like you have the strength -- FIGHT THOSE IDIOTS TILL YOU WIN.
You will. I feel it.
strictures, crohn's, adhesions, endo. fighting Pyoderma G.
Trying LDN 4.5mg nightly ~ because I'm allergic to pentasa and 5ASA's I'm taking Boswellia Serrata. SCD yogurt. Olive leaf liquid extract for candida, using silver sulfadiazine (new to me) on PG. B-12 shots. Juicing veggies!

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 6/3/2009 2:46 PM (GMT -6)   
I would appeal again, get medical records, have your doctors write notes on your behalf, etc. Do not let these people win. There is absolutely no reason for you to have been rejected.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Apr 2009
Total Posts : 85
   Posted 6/3/2009 3:18 PM (GMT -6)   
I am so sorry you have to go through this- as if you haven't gone through enough!  Please don't give up, though.  Show them you are right.  You can prove them all wrong.  Sometimes I wonder why these things happen, but you can do it. Take the advice of the others on here, and good luck!!
Currently taking: Humira 40mg/every other week, Zoloft 50 mg/day, vitamins and supplements
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
Surgeries: Appendectomy 2001, Ileocecotomy 2007

Regular Member

Date Joined Feb 2009
Total Posts : 269
   Posted 6/3/2009 4:20 PM (GMT -6)   
Oh that is so rotten. You must appeal. If you dont feel up to it then get someone to do it on your behalf. Get your doctor to write to them. Have they given you a reason for their rejection. Perhaps the university has an advisor who can assist you.

good luck
Diagnosed 2005.
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol

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