New Here. Looking for your input on my symptoms?

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New Member

Date Joined Jun 2009
Total Posts : 2
   Posted 6/4/2009 3:07 PM (GMT -6)   
Hey everyone.
First, I'm starving... Clear liquids only today and prep tonight for a scope tomorrow morning. Ugh. This will be my 2nd in six months.

Second, I'm looking for some input. I, as well as my doctor, think that my symptons are related to Crohn's. All of them are typical- pain, cramping, diarrhea, etc, etc etc. During my last scope, the biopsy showed chronic ileitis. The doctor that did that scope said that it looked like Crohns. My vitamin D levels are in the gutter. CT scan showed that my lymph nodes are enlarged, secondary to the ileitis.

The ONLY thing adding any confusion is that my antibody test come back negative for the Crohn's antibodies. Is anyone else getting a negative antibody test, with every other sign pointing at Crohn's??

I was on Lialda, but it caused me to having bleeding issues. Anyone else? Specifically, it caused bleeding of my gums, accelerated menstrual bleeding, and increased bruising. I'm suppose to start pred and 6-mp this week, dependent on tomorrow's colonoscopy.

Any feedback or similar stories?

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/4/2009 3:11 PM (GMT -6)   
I would ask the doc to be sure to take biopsies during your scope. I think this will be able to show if its Crohns on a microscopic level. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 6/4/2009 6:32 PM (GMT -6)   
Antibody tests are still uncertain at this stage I believe...there are some people who actually have a high level of the antibodies for various autoimmune disease and yet, have no sign of the disease ever. And this goes vice versa as well.
I'm sorry to hear you're unwell...hopefully you will receive the right treatment and feel better soon.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 6/4/2009 7:59 PM (GMT -6)   
I did not show Crohn's antibodies and a had UC biopsy result but am diagnosed as Crohn's. The original dx was UC - with continuous ulceration at the first mucosal layer. As time went on my ulcers showed skip patterns (healthy tissue with scattered ulcers that were deeper). More time and now anal tags and a fistula. Hence the Crohn's dx.

Good luck with your scope tomorrow!
--female dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--currently taking methylprednisolone 40mg-taper.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09

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