73 Monte - a reply to your locked post

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FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 6/4/2009 5:01 PM (GMT -7)   
Mods - I assume the post was locked because it was long.  If you wanted the discussion ended just delete this post.
 
Monte - I felt compelled to write to you and explain a little more why that dreaded word "counseling" keeps coming up.  I feel as if you may not really understand all the purposes of counseling and when they can be useful.  I was a tad insulted by your post that "you were not in a bad way mentally" and thus didn't need counseling.  Counseling is NOT just for people who are in a bad way mentally.  Counseling can be for people to learn new ways to deal with new things in their life.
 
We don't drive a car without lessons.  We don't practice law before going to school and passing an exam.  You wouldn't sky dive without someone showing you how to open a chute right? Well most of us have never had a chronic illness before this and most of the parents on here never had a child with chronic illness before this either.  So, we have to learn about what effect that will have on our bodies and our minds.  We have to learn ways to deal with these new stressors.
 
I am a sucessful professional crohnie but after my diagnosis I chose to speak with a counselor to learn ways to deal with some of the things crohns would throw my way.  It had nothing to do with mental illness or being depressed or being weak. I just had to learn about something I never dealt with before.  Please don't think that everyone mentions counseling b/c they think there is something wrong with you or your daughter.  I think EVERY person diagnosed with a chronic illness should have to see a counselor and so should their spouse or parents just as much as that person should see a pharmacist.  It is HUGELY helpful and worth at least a free consultation.  I saw a counselor whose entire practce was treating people with chronic illness.  I wish everyone would do the same.  I went for a few months, once a week and once I felt I learned everything I needed I "graduated" and stopped going.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/4/2009 5:23 PM (GMT -7)   
Fantastic post, Fitzy. Thanks. I agree, Monte.
Co-Moderator Crohn's Forum.

New meds thread


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/4/2009 5:26 PM (GMT -7)   
I agree. Fitzy, that is a wonderful way to look at it.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1499
   Posted 6/4/2009 6:23 PM (GMT -7)   
I'm beginning to get the distinct impression that I'm not welcome here. I think it's time for me to refrain from posting at least for a period of time anyway. It has never been my intent to "insult" anyone. If it's getting to the point that my posts are offensive, then maybe I should reassess. From what I recall about counselling, I don't think I have ever criticized counselling or anyone that chooses to seek counselling. I'm quite sure that it's a viable resource for dealing with various things that happen in life, and there's likely many people that have benefitted from some type of counselling.  All I've ever stated (as far as I recall), is that it's just not something that I would consider beneficial for me. That seems to have caused some kind of resentment from some. I'm not sure, maybe that sounds too strong. 
 
That said, I still consider this site a tremedous resource, and have communicated with some fantastic people here. I will certainly continue to frequent this site for information and applaud the efforts of everyone responsible for this site being available. 
 
Tom.  
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/4/2009 7:17 PM (GMT -7)   
Whoa, hey...I think you have the wrong impression! I was just agreeing with the third paragraph down. I can understand where you're coming from. The only negative feelings I have when reading your posts are those that revolve around my own father and the fact that his level of caring is completely opposite to yours i.e. couldn't care less. I think he could learn from you.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/4/2009 7:38 PM (GMT -7)   
Tom,
It is not that you are not welcome, it is just you have used some very clinical level language and that is concerning. When one uses clinical language and is resistant to seeking professional assistance it makes me concerned not only for their wellbeing, but also for their families. We are limited by just being able to see what you wrote and so we have only that to go off of. We like to error on the side of caution.  It also kinda sounded like you did not know what chronic illness therapy was about.   Especially since the answer to your concerns in how to deal with worsing disease and it's social/psych effects is by going to therapy.
Navy
 


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 6/4/2009 8:51:47 PM (GMT-6)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/4/2009 8:08 PM (GMT -7)   

Hey Monte, don't leave us.  You are of course welcome here.  I just must have misinterpreted what you wrote.  Happens all the time on the internet.  We can't hear the voices.  I thought you were saying that people only go to therapy if there is something mentally wrong with them.  I was just explaining that this is not the case because there was nothing mentally wrong with me but I found it beneficially to go to counseling.  Some of my relatives are much older and see anything that could potentially be related to mental illness as shameful.  Even counseling, which many people without mental illness engage in.  I read a study once that less than 10% of people that seek counseling have an actual on-going DSM IV diagnosis.  Many go for situational counseling (grief, trauma, marital counseling, etc.)

Sorry if I came off harsh, I just wanted to make sure you were fully aware of its benefits and that there was NO NEGATIVITY in your posts prompting the suggestion.  Rather, it was suggested because it is good for anyone dealing with chronic illness in the family.  Hope you stick around!


27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/4/2009 8:11 PM (GMT -7)   
PS: I also wrote it because something you wrote reminded me of my old self. "I don't think counseling would help me or isn't for me." I worked in fields where I was doing the counseling. I didn't have any fancy graduate or post graduate degrees but I had on the job training and worked alongside therapists with adolescents. I resisted going to a counselor at first b/c I kept thinking, "I do this stuff for work, I know exactly what she will say, I already know the coping mechanisms and the relaxation techniques, and I don't need anyone else to talk to..." Yet, when I finally went, I realized being the patient was a lot different. Knowing what I needed to do already may have helped but I needed proffesional help to show me how to impliment it and integrate it into my life.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 6/4/2009 8:24 PM (GMT -7)   
A lot of people attach a bad stigma to the concept of "counseling". To some, it's an insult to suggest they need counseling. Unfortunately, the limitations of text based communication make it difficult sometimes to determine how someone else interprets things; suggesting counseling could quite possibly insult someone when that is *not* the intention of the person suggesting it. This sounds like a very unfortunate miss-comunication to me.
Just trying to be a "Regular Member".


Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 5 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.



I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 6/5/2009 8:43 AM (GMT -7)   
Beating a dead horse people...There are a lot of people with all the answers and none just listening. Sometimes that is all you need is to drop the suggestions and just listen.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/5/2009 10:56 AM (GMT -7)   
Ok then, consider the post locked.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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