Imuran <aziathoprine> any response welcome! Thanks!

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tinka
New Member


Date Joined Nov 2008
Total Posts : 6
   Posted 6/4/2009 8:08 PM (GMT -7)   
Hi I have Crohns disease was diagnosed about a yr ago.
Difficulty accepting it still.
Tried pentasa, did not help. Took Budesonide <entocort> and Imuran <aziathoprine 50mg> together for two months, I am now on just the Imuran <aziathoprine 50mg> itself now.
I am scared about what I have read on this medication.
It seems to help me to a degree right now, but I am not happy at all to be on it with what I have read. I do not like what I have read about the long term side effects with this medication.I feel I am stuck.....if there is something better that might help me without all of the possible long list of side affects that may show up as long as months or yrs after one has stopped taking the medication. Such as lymphoid cancer, other cancer forms, liver disease, hepatitis C.....
If anyone has anything to say any knowledge etc. from personal experience etc with this medication all replies are welcome!  
Thanks....

Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 6/4/2009 8:23 PM (GMT -7)   
Actually I am glad you asked this, I want to hear others responses too since I have had the same worries. I was on Imuran for about a year and felt great, I admit that (no side effects while on it). Even going off of it after that year I had no side effects. However I hated the monthly bloodwork and the knowledge in my head of the long long list of side effects this particular med has. I went off for my pregnancy and now that baby is born they want to put me back on but I am sort of fighting it. I too want to hear others responses of alternatives if any.
 


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 6/4/2009 8:26 PM (GMT -7)   
Im also on Imuran. It seems to me that most if not all Crohns medication have about the same side effects, its just a matter of finding one that actually works for you. Ive pretty much had them all, and at this point Imuran is my last resort as of now until they come up with something new.  The way my doctor put it is something along the lines of, you need to take care of your issues now, and not worry so much about what MIGHT happen and realize what WILL happen if you dont take the meds. Its a chance really, but I'm personally willing to take it.  Ive already had 2 resections and Im only 22, so I guess my case is quite bad.  Id honestly rather live my life to the fullest right now at my age then to be sick all the time, and if by chance I DO get one of those side effects, at least the best years of my life will have been well lived, thats just how I see it.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 6/4/2009 8:58 PM (GMT -7)   
tinka said...
Hi I have Crohns disease was diagnosed about a yr ago.
Difficulty accepting it still.

Tried pentasa, did not help. Took Budesonide <entocort> and Imuran <aziathoprine 50mg> together for two months, I am now on just the Imuran <aziathoprine 50mg> itself now.

I am scared about what I have read on this medication.

It seems to help me to a degree right now, but I am not happy at all to be on it with what I have read. I do not like what I have read about the long term side effects with this medication.I feel I am stuck.....if there is something better that might help me without all of the possible long list of side affects that may show up as long as months or yrs after one has stopped taking the medication. Such as lymphoid cancer, other cancer forms, liver disease, hepatitis C.....

If anyone has anything to say any knowledge etc. from personal experience etc with this medication all replies are welcome!

Thanks....


These side effects are very rare. My advise would be to stay on it if you're tolerating it and it's keeping you well. Also, 50mg is an EXTREMELY low dose, some doctors would even say sub-therapeutic.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 8mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 6/5/2009 4:02 AM (GMT -7)   
I took aziathoprine for about 2 years. It worked really well for me for most of that. Unfortuntely I became allergic to it and my liver reacted. I basically got a sort of hepititus type of illness.  Itching, sickness, jaundice and flu symtoms. Also not hungry (which was great as I am overweight)  I had to come off the meds immediately.
 
I realise this might not reassure you but I can say that within 3 weeks my liver was back to normal and it had no lasting effects.
 
I am now on infliximab, again it is working well for me. Going on either of these drugs was not a big deal to me. I just wanted to feel better and they gave me a better quality of life.
 
With any drug they will monitor you with blood tests. 
Diagnosed 2005.
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/5/2009 6:39 AM (GMT -7)   
Imuran/6mp are some of the best drugs to help keep your Crohns under control. The doses that we take these meds at are much lower than what most folks use, so the cancer risks are reduced. Why fix something if it ain't broke. JMHO
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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