Good news,not so good news.

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Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/5/2009 4:14 AM (GMT -7)   
Lets start off with the good news. I went to the hand specialist to have him look at my hand  because what was thought to have a piece of metal from the IV in my vein. He hand a machine that was a live x-ray, I put my hand on this round cylinder and on the screen was my hand (skeletal). He looked around, lifting and tilting my hand and he could not find the foreign substances in my vein. What he found was a foreign body in the soft part almost he palm part of my thumb. The doctor said that the only problem with my vein was "Thrombosis" and that it should go away with time. The doctor and I agreeded that the Radiologist was wrong on the diagnosis.
 
Now the not so good news. Many of you know that I had a resection in Feb. of this year. Well, I started having some funky pains the Thursday before Memorial day. The pain started on my lower right side and it felt like the pain when I get an obstruction/blockage but it didn't get any worse. I called the doctor and they said to get an x-ray to see if there is any blockage. That night the pain went away. The next day they called with the results and said nothing was wrong. That afternoon I got the same pain on my left side and it moved to the front. This pain hurt when I toughed it and it was hard to stand up straight. This went on for 3 days, letting up a little on the pain as I was able to press on my stomach a little bit with very little pain. The pain finally went away, but on occasion I still get it on my right side. I say my GI yesterday and he is as baffled as I am but said that we should get a CT scan and see whats going on and hopefully no return of Crohns yet. He said that it could be adhesions causing the problems and if the Ct scan comes back clean that he would put me on some Antispasmadic medication to use when it happens again. If it is Crohns, he wants me to skip all drugs in between and go straight to Humira. I am ahving my CT scan on May 22 and I hope and pray that everything is good.
While I was at the doctor, he gave me the results of my recent bone density. My results are worse thn the last scan and the thinning of my bones is getting worse. He is prescribing a prescription vitamin "D" that I need to take. I don't understand, I take 1500mg of calcium everyday and I drink milk eat yogurt and I eat alot of icecream. I think I'm getting plenty of calcium. Oh well, lets see if this helps.
More bad news, my work is now requiring all employees to take a one week lay-off for the next 3 months as this darn economy is not picking up. So for the first time in my life I get to go on unemployment. I just hope the economy picks up soon because I cannot live on unemployment and I would probably lose my house. I pray for all of you that are unemployed.
Maybe it's all the stress thats causing my pain?
So, you all know what I know and I wish myself all the best.
I just wanted to say thanks to everyone that helped me with the hand problem. I really appreciate you all.
Thanks for letting me share.
 
Wolfie
 

"When life's problems seem
overwhelming, look around and see
what other people are coping with.
You may consider yourself fortunate."
- Ann Landers



Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 6/5/2009 5:47 AM (GMT -7)   
Wolfie,
I know how frustrating it is to know something is wrong with your body and the doctors can't figure it out. I hope that you find away to make it financially throught he next three months without stressing yourself even more.

If it makes you feel any better, after my resection surgery I had some unknow pain and discovered I was having spasms from my adhesions. It last about a month then went away. Wishing you only the best.

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney diease in 1996
I was in remission for 16 years, Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/5/2009 6:30 AM (GMT -7)   
Hey wolfie,

I am confused. Are you forced to be off work for 3 months, or for 1 week during the next 3 months? Because if you are off for just one week, I don't think you can get unemployment for just one week. At least in California, you don't get paid for the first week you are off.

As for your health, could very well be the stress with your job causing your problems. You would be surprised what anxiety can do to your body.

Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 6/5/2009 7:28 AM (GMT -7)   

Sorry to hear about your struggles.

 

I take prescription vit D.  I had a low D value on the last blood work up.  Vit D helps you absorb calcium and it also helps with inflammation.

Insurance didn't cover it for me but it cost $10 for 4 pills.  Once a month dosing.

 


Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 6/5/2009 9:54 AM (GMT -7)   

Hi Wolfie, Sorry to hear you are having problems. Hopefully the pains are just normal post surgery pains and have read some people say it may take up to a year for things to settle down. Others I have been reading it comes back quite quickly which would be hard to accept. Did you mean you were having a CT scan June 22 not May 22nd? Will be witing to hear results.

For me the biggest change I have noticed is in the size of my stools. Guess things had been progressing so slowly that I never paid much attention until my stools were quite narrow. Now I can't even remember a time when they have been so big, long and bulky.

Good luck!


55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


uklass
Regular Member


Date Joined May 2009
Total Posts : 65
   Posted 6/5/2009 10:00 AM (GMT -7)   
Hi Wolfie
 
sorry about your mixed bag of news - wouldn't it be nice to have one really positive day?
 
Ref the strange pain you've been having - I mentioned in a previous post that I'd been having similar but mine doesn't feel gut-related. I did a bit of digging and am wondering if mine is to do with nerve entrapment - either in the abdominal wall itself (caused by surgery)or because of the sacro-ileac joint. It could also be adhesions but we can't test for those. Worth a look? I'm rubbish at technical stuff so I can't do the link to the sites that I found but a Google search under 'Abdominal cutaneous nerve entrapment syndrome (ACNES)' should find it. Sorry if it seems like I'm clutching at straws but I don't like unexplained pain and ignoring it has got me into big trouble in the past.
 
Penny x

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/5/2009 3:53 PM (GMT -7)   
Nanners: I have to take off one week a month and collect unemployment. Here in Wisconsin they let you collect by the week.
Bammer: I'm sorry, it is June 22, I don't know where this year is going, so much going on.
Bluize: I see that you don't take any meds and you've only had one resection, thats great I hope that you stay in remission.
I hope that it is only stress or adhesions and not Crohns coming back. I believe that it is stress related or adhesions, will find out soon.
Thanks for the ear and all the good wishes, I'll keep you all updated.

Wolfie
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 146
   Posted 6/6/2009 3:18 PM (GMT -7)   
I had my resection March of this year. I am also experiencing pain in my lower abdominal area. Mostly in the right but some pain in the very middle as well, below my belly button. It has been very discouraging since the surgery was only 3 months ago. This weekend has been my worse, I am feeling obstruction like pain again. I had diarrhea up until this Tuesday now I can't go but i am passing gas. My right side is swollen. I hope mine is only scar tissues too but something is causing more problems again. I am on Humira and prednisone. I just wanted you to know you are not alone and it is good to talk about it here. Did you have any problems with your surgery? Maybe it is spasms, I have had spasms before and they are very painful. Dicyclomine or Levsin should help if it is indeed painful spasms. Good luck.
36 yo--Crohns since 2000,  Ileocecectomy in 2009 with post surgical wound infection. MRSA infection 2008 x 2 and 2009 x2. Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007 and IC in 2008.  Now receiving Humira, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, Zinc, and Multivits   
 
RxCrohnie 


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/6/2009 3:33 PM (GMT -7)   
My surgery went well, no complications and recovery was fast with hardly any pain. I also have had loose BM's and "D", The last two days have been formed BM's but ribbon like, could it be possible obstruction or immflamation? I too am passing alot of gas. I have also noticed that my joints are hurting again and achey also.RXCrohnie, I see that your on Humira, How is that working and have you had any side effects? I also noticed your signature, I see that you have been through the ringer with everything that is/has happened to you. I really feel bad for you and I hope that you are doing well. I wish you all the best.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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