I am feeling so bad at the moment Vent!!!

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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 6/5/2009 3:54 PM (GMT -7)   
I got my 4th remicade infusion on May 8th.
I quit the pred on 27th of jan and Entecort two weeks ago.

Now I am feeling so sick :( I wake up and go to the toilet maybe 5-10 times before noon. I cant get out of the house before that time.
During the day I am ok if I don't eat anything. So I avoid that(I know it is not good for you but I feel better) And at night when I am dying of hunger the toilet trips start again.

I also started to feel like I have to throw up I have no heartburn though.
I also have to sleep 24/7

I am meeting my doc on Monday cant wait..

And to top things off I am moving this weekend to another town
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/5/2009 4:11 PM (GMT -7)   
I am so sorry..I can't believe how terrible things can get sometimes. I hope your doctor appointment goes well, seriously. There has to be something you guys can work out.

Do you take immodium or pain medication? I know they both help me a lot when I get that way.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/5/2009 4:15 PM (GMT -7)   
(((isergodur)))
Co-Moderator Crohn's Forum.

New meds thread


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 6/5/2009 4:34 PM (GMT -7)   
I hope you are able to work something out with your doctor so that you are feeling better soon. Perhaps when the move is over, your stress level will go down and things will calm down a bit.

Sending you best wishes to get you through the weekend and to your appointment with your doctor. (((hugs)))
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 6/5/2009 4:58 PM (GMT -7)   
Thanks you are truly the best there is ;)

Immodium works for me during the day but at night I feel so much worse, so I am really not sure if works right for me.
I take painkillers but the regular ones don't seem to work that well and I am not a big fan of the strong stuff...

I sure hope my doc can do something for me, My new doctor is the best Crohn's specialist in Iceland.

And I talked to my blood doc on Monday and he want to give me Iron infusion so hopefully that will help.
He also took a blood test for Celiac Disease which I suspect I have and it could easily have slipped through with my old doc.

I think the old doc was having a hard time understanding how my diseased worked also because I have panic disorder and he did not notes everything I was saying to him I think he thought I was loosing it or something.

But the Panic disorder made me wait longer to go to the doc because I was afraid of being sent home with a panic attack.

At the moment I am want a nice hospital bed with lots of rest and nice IV fluids I think I am a little dry at the moment cause of all the D
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 6/5/2009 5:15 PM (GMT -7)   
I know that if you are moving this weekend, you are very busy, but please if you think you are dehydrated, don't wait to go to the hospital. If you get too dry, it will be so much harder on your body to recover. At least try to keep sipping liquids. And keep us updated. We worry, we are all a bunch of mother hens!!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 6/5/2009 5:59 PM (GMT -7)   
Zanne said...
I know that if you are moving this weekend, you are very busy, but please if you think you are dehydrated, don't wait to go to the hospital. If you get too dry, it will be so much harder on your body to recover. At least try to keep sipping liquids. And keep us updated. We worry, we are all a bunch of mother hens!!


Thanks you are so kind, I love this forum and you guys I don't know what I would do with out you...
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 6/6/2009 2:23 PM (GMT -7)   
isergodur...how are you doing? You stated that you are getting fluids...are you still in the hospital or home? How are you doing with your move? I hope you are doing okay and not overstressing it...
"The earth laughs in flowers"


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 6/6/2009 4:28 PM (GMT -7)   
I am at home. Today has been a good day, except my joints are killing me and i am really tired. The move vent great i had my whole family to help crew of 9 :-) I think the new town will do a lot for me closer to my 91 granny wich i love. Thanks for all your support. I will keep you updated about my doc appointment on monday
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


jhicks
Regular Member


Date Joined May 2009
Total Posts : 177
   Posted 6/6/2009 4:55 PM (GMT -7)   
I am praying for your speedy recovery and for your doctor to have the wisdom to get you some real relief. Please drink lots of fluids and rest as much as you can.

Best wishes
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