Right arm joint pain

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jenniferzami
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/6/2009 9:06 PM (GMT -7)   
I have Crohn's Disease and IBS. Has anyone else experienced horrible excruciating pain in the joints in their right or left arm? The pain has been so bad that I have ended up in the ER three times since March. The pain in my abdomen had nothing on this pain. It feels as if someone is sticking a sharp metal rod into the middle of my joints and vibrating it violently. The worst pain is in my wrist, followed by my shoulder, followed by my fingers. My doctor says it is not Crohn's related since my Crohn's is not "active" (not sure what that means since my last colonoscopy showed more ulcers in the area between my small and large intestine around where four inches of my intestine has removed). My doctor seems to think it is all in my head.
I have tried accupuncture, massage, fish oil, calcium, muli-vitamins, aloe vera juice, probiotics, and a multitude of external gels and creams. The only thing that helps it is going to the ER and getting drugs there or using Percocet. I don't want to keep using opiates.
Any idea what might be causing this or what I can try to get rid of the pain? Thanks so much.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 6/6/2009 9:28 PM (GMT -7)   
Get a referral to a rheumatologist. It may be Crohn's arthritis, but the specialist can make that call better than I can.

baaadgut:(
Regular Member


Date Joined Nov 2008
Total Posts : 22
   Posted 6/7/2009 5:07 AM (GMT -7)   
I can't believe you wrote this. I logged on this morning with the intent of asking for advice or help with just about the same problem. The only difference is that my pain seems to be in all my joints and my muscles ache so bad that I can hardly get out of bed. I am on a six week Remicade and the first wour weeks after my infusion I am great, the last two is pain and more pain. This is only the second time this has happened in a row. I am scared that the Remicade is just not working for me any more and not sure of a good alternative. I agree with you the stomach pain is nothing compared to this. For just about the whole two weeks I am on morphine just so I can function. UGH!!What next hey. Going to see my Doc on Thursday I will keep you posted. How often does this happen to you and how long does it last.

Feeling your pain,
Badgut
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/7/2009 5:55 AM (GMT -7)   
I agree with Keeper. Get a referral to a Rheumatologist. I personally think every Crohnie should have one on board. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 6/7/2009 6:44 AM (GMT -7)   
I get joint pain as well even when the crohn's feels quiet... a lot of us here do and it is related to the crohn's...I saw a rheumy who confirmed it but has done nothing for it but give me pain meds ! It's awful I know...sorry I don't have any good advice but I hope u feel better soon!
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009
Current meds: 1200mg xifaxin, 6mg entocort, Humira (started 3/23/09), synthroid, aciphex and 1000mg of cipro
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....
 


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 6/7/2009 9:10 AM (GMT -7)   
Get a Rheumy for sure! I saw my Rheumy and he said I have Reactive Arthritus...I guess this is Reactive when my Crohns has flared or trying to flare...which means all the time? ha..... I do notice that after I have had to take flagyl or leviquin it's ALOT worse. I'm not sure if it's a link but it hurts really bad, especially in my legs and ankles. I have stairs in my house and I avoid them. Sometimes, I don't even want to move! I take 2000iu of fishoil a day (I freeze my fish oil so I don't brup it all day long) Seems to take the edge off. Yes, there are times that it's so bad I have to take something stronger. It's all about keeping it managed. Sorry your feeling yucky.
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Re-section on small intestine 18 inches in 2006. Diagnosed with PTSD in 1999. Been getting kidney stones:( bummer! The good news...finding this website.
                Meds: Imuran 200mg daily, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, potassium, synthroid...& try to get alot of laughter in.
                         


jenniferzami
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/7/2009 2:51 PM (GMT -7)   
Thanks for the feedback. I have been to see two rhummys. I got all the tests and bloodwork. I also went to two pain management doctors. They all say I do not have arthritis nor do I have MS or fibromyalgia. Nothing in general seems to kick it off except for stress. My dog died last month and the pain spiraled out of control again. When I talked to my GI doc, he, in a very snotty way, said that I should see a psychiatrist. I know that there is definitely a psychological component, but he didn't need to be so condescending about it. Is anyone seeing a neurologist for this type of pain? Any other ideas? I am really getting desperate. I hate the ER and am not enjoying using the pain medication all the time. Thanks so much for your support.

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 6/7/2009 3:29 PM (GMT -7)   
What tests did they do?
 
 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 6/8/2009 2:22 PM (GMT -7)   
Sometimes I wonder how doctors figure that they should inflict themselves on an unsuspecting public. Stress is a known trigger for Crohn's inflammation and so stress resulting in pain would be a sign that the problem is Crohn's related. NOT psychological!!! Maybe you should get a second opinion - or a new GI doc. (just slightly mad that your doc is so stupid! And has the nerve to be condescending about his "superior" knowledge....)

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 6/8/2009 2:28 PM (GMT -7)   
Sorry, but I can't tell what meds they have you on besides percoset? What does your GI base his statement that your Crohn's is not active? Blood tests, or symptoms? Presumabaly not the colonoscopy if it showed more ulceration.
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