I was on Humira, but I started having lupus-like problems and had to stop. We all thought it was drug-induced, but now, the doctors seem to think that I've had lupus all along and that it was masked by the medication I've taken for Crohn's (they treat lupus with immunosuppresants too).
Since the resection, I am no longer on any medication for the Crohn's. However, that may soon change because this awful rash I have may be a lupus flare. Then, it's back to prednisone or imuran.
If not, we are using a wait and see approach- that is wait for a flare, then treat it. I have always had the inflammation in the same exact spot, and most of it was due to a bad stricture that I had from scar tissue buildup. I know surgery isn't a cure, but if it could give me a year or two of good health, I'd be very happy.
Besides the rash, and feeling tired, I have been able to eat whatever I want since the resection. It has only been 3 weeks, and I notice a difference already. The first 4 days after the surgery were the worst. I ended up bleeding a lot, so I had to get 2 pints of blood. After that, I felt fine.
Diagnosed with Crohn's for 13 Years
First Resection 05/19/09 - Currently Medication Free!
Lupus for Two Years
Tried prednisone, flagyl, pentasa, imuran, and Humira
Accountant and Mom of a 3-year old