I can tell you why you haven't received much help on the UC forum, most of the UCers on that board still have UC! I am one of the few j-pouchers that hangs out there and I do it mostly to field questions and rumors about the surgery and recovery. As I mentioned to you on your post in the UC forum, the best place to meet jpouchers is at www.j-pouch.org Over 6000 jpouch members on that site that can answer your questions.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free