Accidentally pulled out abscess catheter

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yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 6/9/2009 10:06 AM (GMT -7)   
Yikes! I was trying to change the bandage around an abscess catheter Ive had in my abdomin for over 3 weeks. They had it taped so tight around the tube I couldn't get it unstuck then I tugged on it and the catheter came right out. They had actually recommended removing it on my last followup visit but I talked them into leaving it in a bit longer. When I called them and told them what happened they wanted me to come in to insert a new one. I told them I needed a break from it. If the abscess returns or worsens I will go back in to see them but for now I am enjoying the relief of it being out. It's always something with CD. I wish so much for a break from all these nagging little problems that seem to pop up one after the other. I miss being in remission.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony


ExJohnson
Regular Member


Date Joined Feb 2009
Total Posts : 128
   Posted 6/9/2009 2:10 PM (GMT -7)   
Remission, remission, that glorious oasis waiting for all of us! I'm determined to get there, trying to keep a postive attitude. I have a EUA tomorrow for fistula, so I've been juicing and kombucha-ing all day (kombucha is fermented tea filled with probiotics, aminos, vits, all sorts).

Nurse told me I'd most likely get a seton, so I hope I don't pull that out!
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
100mg mecaptopurine, 20mg Prednisone, 500mg Metronidazole 3x daily, Darvocet for dessert.


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 6/9/2009 2:36 PM (GMT -7)   
ExJohnson, No doubt staying positive can be a challenge but with some practice it's possible. I'm not sure how a seton works but good luck with it. My doctor called me back and said leaving mine alone for now was just fine. What a relief!! I need a vacation from the MD's. Thanks for your reply, Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 6/9/2009 4:03 PM (GMT -7)   

Well I've got a seton and a catheter in right now and going to see the surgeon tomorrow to have my catheter taken out. Problem is I don't know if it's ready to come out - its still draining quite a lot!

 

I don't know how long they can leave catheters in for ........ setons I know can be left in 'for life'. hmmm...


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 6/10/2009 5:43 AM (GMT -7)   
Phoebesky86,   How long have you had the catheter in?? Mine was in for about 3 weeks and became very irritating at the site. The small hole left behind is still draining so I keep a bandage over it. I'm thinking its probably a fistula not an abscess or it would be more healed by now. Isn't all this frustrating??
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 6/10/2009 11:07 PM (GMT -7)   
yes, extremely frustrating!! I saw an IBD specialist today who was absolutely brilliant - everything you'd want in a gastro - who has put me onto Imuran and is applying for better meds for me. He cannot believe my gastro had left my abscess for so long and told me to 'wait and see' how often the fistula became infected before he sent me to a surgeon.

He took a look at the drain and knew right away it wasn't ready to come out. so my appt with the surgeon has been put off another week till thurs the 18th. My catheter has been in about 3 weeks now too. the stitches have disappeared so it seems to be staying in just by the 'mushroom' at the top. My abscess cavity was originally a fistula too....

Feels like a never-ending problem at the moment. How is yours going?

yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 6/11/2009 2:21 AM (GMT -7)   
at the moment its still draining from the site where the catheter was. I decided to put a small pediatric ostomy bag over it for the time being and that seems to be working for now. i'm convinced after 1 month that its a fistula' not an abscess mainly because of the amount of the continued output. i realize surgery is probably my only option at this point to correct both fistulas now but i need to get my mind ready first about the prospect of another surgery.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 6/11/2009 4:15 PM (GMT -7)   

i know how you feel. I had my drain looked at yesterday and straight away the GI said it is not ready to come out, and called my surgeon and told him so. I was due to get it out at the hospital but I am so glad it wasn’t pulled out until it was ‘ready’. I am finally on my way to getting some decent treatment for my crohn’s after 3 years with an incompetent GI. I’ve been put onto imuran and am applying for another drug which the GI says goes with it.

 

I would hate the prospect of another surgery for my abscess too. The pain is immense and its so hard to sit, walk and move. I am just so grateful that now I am in good hands, I have faith that the specialist and surgeon will look after me. Wow what a great feeling that is!!

 

 


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 6/12/2009 5:29 AM (GMT -7)   
I dont know if fortunate is the right word but fortunately for me, mine is on my abdomen so sitting isnt a problem. I had one in my rectal area many years ago so I know how painful and uncomfortable that is. I was so sore I used ctuches to walk until I had it drained. All I can say is the human survival instinct is strong or otherwise I dont know how we could continue to endure all the stuff we endure. Best wishes, Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony

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