O.k. tell me about Probodicts...

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flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 6/9/2009 8:06 PM (GMT -7)   
The more I read I realize that many of you Crohnies are on Probodicts. My Dr. has never mentioned this to me and What is or are they exactly? Are they a type of Vitamin? Sure would appreciate some insite. Thanks.
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Re-section on small intestine 18 inches in 2006. Diagnosed with PTSD in 1999. Been getting kidney stones:( bummer! The good news...finding this website.
                Meds: Imuran 200mg daily, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, potassium, synthroid...& try to get alot of laughter in.
                         


jhicks
Regular Member


Date Joined May 2009
Total Posts : 177
   Posted 6/9/2009 8:25 PM (GMT -7)   
Probiotics basically work to restore the natural bacterial balance in your gut. I have taken Florastor in the past, but am now taking Align. While my Crohn's is active according to my last colonoscopy (and probably responsible for my joint pain), I am not experiencing many problems with my gut. I am using a combo of vitamins and herbs and acupuncture. I don't know what is keeping my gut feeling good, but I personally believe the probiotics are helping. My GI didn't mention them to me either. My husband is a pharmacist and he recommended them to me, as did my acupuncturist. They're especially good and important to take if you are on or have to go on antibiotics and antibiotics seem to disturb the natural flora. The main drawback to me is the cost. A month's worth of Align will run you about $30, but I think it is worth it. Best of luck to you!

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 6/9/2009 9:00 PM (GMT -7)   
Culturelle is another probiotic that has a well-researched bacteria (Lactobacillus casei GG) that has been proven to help intestinal problems. Probiotics work in a couple of different ways. First, they secrete molecules that quiet down the gut immune response - this is for their own self preservation and has developed in many different gut bacteria. Second, they compete with more hostile bacteria for food and binding sites on the gut wall, thus reducing the influence of pathogens. I notice that you are taking antibiotics. Probiotics will help prevent C. difficile from becoming a problem if you take them at a time several hours away from your antibiotics. Kidney stones have been reported to be caused by a vitamin K deficiency. People with Crohn's suffering active D can easily be deficient because of absorption problems and lack of intestinal bacteria which supply much of our vitamin K needs. Antibiotics may be making the problem worse. You may want to check out food sources of vitamin K.

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 6/9/2009 9:21 PM (GMT -7)   
Are these probiotic's over the counter? I have had C-diff on occasion. Bummer! It was the worst and weirdest feeling all at the same time. Seems like I always aquire it after a visit TO the hospital. Is there a reason GI Doctors don't mention Probiotics? Is it considered more natural? I'm kinda up for trying anything that works. Natural or not. I figure that I'm taking so much "non-natural" stuff now...can't hurt.
Funny, I've had re-flux since 10 years old. Been off and on some type of gut pill malox, tums, prilosec, now nexium. I've always wondered if this masked the real problem of what was going on. My natural flora has been off for years. I've never been much of a junk food eater either.Used to always eat yogurt. Not a fan of sugar. Always had regular oatmeal for breakfast for years. After being diagnosed with CD 2005...my body can't digest fiber period! Thought about trying to add special K into my diet ....can't do ceral.
Anyway, thanks for the info....it's always great to get new information.
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Re-section on small intestine 18 inches in 2006. Diagnosed with PTSD in 1999. Been getting kidney stones:( bummer! The good news...finding this website.
                Meds: Imuran 200mg daily, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, potassium, synthroid...& try to get alot of laughter in.
                         


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 6/9/2009 10:23 PM (GMT -7)   
Yes, both Culturelle and Align are available in drug stores and drug departments of many major stores. Culturelle is available in over 30 countries, so you may be able to find it where you are. For more info, see: BuyProducts.net

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 6/9/2009 10:37 PM (GMT -7)   
I started taking one called Primadophilus Reuteri made by Natures Way (found in health food stores), the only downside is it must be kept cold, at the store they keep in their fridge as well. The things I love about it is it has guaranteed intestinal release, only one/day is needed (where I live in alberta, canada, it only costs me 29.00 for a bottle of 90 tabs which lasts me 90 days) so it's very affordable with only one/day being needed. It has also aided my severe lactose intolerance, high cholesterol and vaginal health (but it's still perfect fine for men to use of course) it states these claims on the packaging and from my experiance it holds true to it's word. It's only got some potato starch for preservations which makes it a good one cuz you don't need a bunch of fillers, sugars and junk in your probiotic.

I've been taking one everyday for the last 4ish yrs and I have to say it may be coincidence but that's the longest I have not had proctitis issues as well in my 18 yrs of having crohn's colitis (CD affecting the colon), I have often had issues with proctitis at least a few times a yr but not once in the last 4ish yrs since I started taking this probiotic, like I said, it could be coincidence but whatever it is I don't care I'm just glad not to have proctitis issues for so long and hope it continues.

I plan to continue taking them indefinitely, it seems that IBDers are prone to having bacterial over-growth so restoring the freindly bacteria (which is basically what probiotics are) is essential (even while in remission I would suggest continuing with them).

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 6/9/2009 10:45 PM (GMT -7)   
VSL #3 is supposed to be the stuff when it comes to probiotics. I think it has 8 different kinds of bacteria. Several UC patients in my local support group swear by it, or other probiotics. I've heard a couple doctors say that it's inconclusive whether probiotics help with Crohn's. I think VSL #3 is OTC, but pharmacies don't usually stock it so it has to be special ordered. I can't remember how much it is--think maybe $30 or $60 for a 30 or 60 day supply.

www.vsl3.com/VSL3/default.asp

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 6/10/2009 6:03 AM (GMT -7)   
flowery said...
Are these probiotic's over the counter? I have had C-diff on occasion. Bummer! It was the worst and weirdest feeling all at the same time. Seems like I always aquire it after a visit TO the hospital. Is there a reason GI Doctors don't mention Probiotics? Is it considered more natural? I'm kinda up for trying anything that works. Natural or not. I figure that I'm taking so much "non-natural" stuff now...can't hurt.
Funny, I've had re-flux since 10 years old. Been off and on some type of gut pill malox, tums, prilosec, now nexium. I've always wondered if this masked the real problem of what was going on. My natural flora has been off for years. I've never been much of a junk food eater either.Used to always eat yogurt.
Hi Flowery!  Probiotics have been around in the alternative community for decades.  They are only just now catching on with our mainstream western medical doctors... Some of those doctors will probably never accept probiotics... why? don't get me started...
 
You can find probiotics in capsule form at any good health food store.  Usually the best ones are kept in the refrigerated section and have several active strains.  Also, find one with at least 10-15 billion cfu.  Oh, and if you want to give up your nexium, try digestive enzymes (also at health food stores)!  Many people here take these.  My mom was able to stop taking prilosec after taking digestive enzymes.  Initially she had to take more than just one or two per meal, but now that is all it takes!
 
If you want to get even more probiotics the natural way, consume fermented foods!  A hundred years ago and beyond, people used to consume a diet full of fermented foods--anything pickled, yogurts, etc.  These foods, when made at home the old-fashioned way, are full of beneficial bacteria.  Unfortunately, due to pasteurization, these beneficial bacteria are not present in fermented foods we buy at the store.  Of course, the exception is store-bought yogurt, but they literally have to kill the bacteria present (pasteurize) and then add specific ones back in with most brands.  These yogurts don't have near the probiotic content that home-made yogurt does.    
 
Lastly, there is a specific probiotic strain called Saccharomyces boulardii  (marked under the brand name Florastor) which has been proven in scientific studies to fight C. diff.  If you ever go into the hospital again, consider taking it as a preventative!!! Here is what Wiki has to say about it... scroll down to "recurrent C. diff infection":
 
 
 
 

Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 6/10/2009 10:22 AM (GMT -7)   
I've had 2 docs recommend probiotics (my GI & PCP). I honestly think that is what kept me in a long remission right after the dx. My doc had me drinking acidophilus milk (sometimes called Sweet or Sweet A milk). My GI recommended align about 3 years ago when it was via mail-order only...couldn't really afford the 28 dollars AND s&H...however, since it is cheaper, I've started it up again.

Speaking as both Microbiologist & Nutraceutical (place that manufactures supplements)chemist...even if sold at room temp, no matter what brand, it is ALAWAYS, ALWAYS, a good idea to keep them in the fridge.

The strains in Align have shown to be helpful in Peer Reviewed journals (the science gold standard)...There have been many, many studies (again, peer reviewed) showing that probiotics may relieve certain GI complaints...they go back at least until the mid 90's
"The earth laughs in flowers"


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 6/10/2009 7:59 PM (GMT -7)   
Thanks! So much information. I will be asking my GI about it. At least now I can go in with some knowledge of what other CD patients are doing.
I've talked with other auto-immune patients and they've all mention probodicts...so I just wanted to put the word out and see what everyone had to say about it. :)
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. PTSD 1999. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Two-Re-sections on small intestine, total of 18 inches taken out 2006. Stomach Herniation from re-section 2007, Been getting kidney stones too! The good news...finding this website.
                Meds: Imuran 200mg daily, asacol, Bentyl, Coelestid, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, 4/20meq's potassium, synthroid...& try to get alot of laughter in.
                         

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