osteopenia/Fomax

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Jordan59
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 6/10/2009 10:25 AM (GMT -7)   
After breaking 3 ribs in 2 years (different episodes), I got a bone density test.  I have osteopenia (hooray! tongue ).  Anyone have experience with Fomax?  I'm already taking Caltrate. 
 
 
 
 

Cub Fan over 30 years.  CD for over 30 years.  Connection? 


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 6/10/2009 12:26 PM (GMT -7)   
I tried Fosomax once - it upset my gut. If you're in the osteopenia category, what about Reclast? it's a once a year IV bisphosphonate drug. (Fosomax is an oral bisphosphonate med)

I officially made it to osteoporosis and, since I'm steroid dependent, I'm on Forteo. It's a different class of osteo drug - daily subcutaneous injection.
--female dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--currently taking methylprednisolone 40mg-taper.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09


KNJ
New Member


Date Joined Jun 2009
Total Posts : 7
   Posted 6/10/2009 12:28 PM (GMT -7)   
I have not had any broken bones, but was just diagnosed with Osteopenia this past March (at age 30).  My doctor has me on Calcium w/Vit. D 600mg twice a day.  She also put me on Actonel 75mg taken on the 1st and 2nd of every month.  Are you taking Fosamax?  If so, then it is in the same category (bisphosphonates) as Actonel.  This is only my second month to take it, but from what I have heard, it can help stop, maybe even help reverse, bone loss.  I had a little joint pain in my knees, but I have tried it a second month (per my doctor) to see if it was related and/or it goes away. 
Crohn's Disease - dx March 2004 @ 25 yrs. old
Osteopenia - dx March 2009 @ 30yrs. old
 
Mercaptopurine (6-MP) 85mg
Nexium 40mg
Actonel 75mg taken on 1st and 2nd of every month
Calcium w/Vit. D 600mg 2xdaily
Multivitamin
 
 


catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 6/10/2009 12:31 PM (GMT -7)   
I also have osteopenia and was prescribed Calcitriol. I take it with food and it doesn't seem to bother my stomach too much.
Dx with Crohn's Colitis; Meds: Pred and Imuran; female in late 20s.


Jordan59
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 6/10/2009 12:47 PM (GMT -7)   
Thanks for the responses. My GP has called in a scrip for the fosomax (sp?). I'm seeing him Friday about a HUGE bruise (hope it's not the imuran related). I'll have to quiz him about the drug. Please cross your fingers for me. The Imuran works great, so I really hope my blood work comes out ok.
Cub Fan over 30 years.  CD for over 30 years.  Connection? 


catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 6/10/2009 1:10 PM (GMT -7)   
Good luck. The Imuran has been my life saver! I do bruise more frequently, but my blood work is fine, so I'll take the bruises over the stomach aches!
Dx with Crohn's Colitis; Meds: Pred and Imuran; female in late 20s.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 6/10/2009 3:32 PM (GMT -7)   
do your research before you take anything on any doctors recommendation. here is flip side to fosamax.

all from mercola.com (take the time to read them all and then check up on any of it and ask your doc. a good patient is a well informed patient)



The drug alendronate has been reported to prevent osteoporosis in younger postmenopausal women with nearly the same effectiveness as hormone therapy. The studies were funded by Merck & Co., a Rahway, New Jersey-based pharmaceutical manufacturer.

The New England Journal of Medicine (1998;338:485-492)

Annals of Internal Medicine (1998;128:253-261, 313-314)

Dr. Mercola's Comment:

Dr. John Lee is the physician who wrote "What Your Doctor May Not Tell You about PRE Menopause" He is very strongly opposed to the use of Fosamax, and I could not agree with him more on this issue. It is interesting that Merck, the manufacturer of Fosamax, funded both of these studies and both appeared in two well respected medical journals the same week.

Fosamax is in the same chemical class (phosphonate) that is used in the cleaners used to remove soap scum from your bath tub. This is a metabolic poison that actually kills the osteoclasts. These are the cells that remove your bone so your osteoblasts can actually rebuild your bone.

It is quite clear that if you kill these cells your bone will get denser. What these studies do not show is that four years later the bone actually becomes weaker even though it is more dense.

This is because bone is a dynamic structure and requires the removal and REPLACEMENT of new bone to stay strong. Fosamax does NOT build ANY new bone. The true solution, as I have reviewed in previous newsletters, is to go on natural progesterone. One can review Dr. Lee's book for more information.

Progesterone is the only substance that I know of that will actually increase bone strength and density. It does this by serving as a growth promoter for the osteoblasts, or the cells that build bone. Of course, it would be wise to have the other basics in place such as adequate amounts of calcium, zinc, magnesium, vitamin D and copper, in addition to exercise and avoidance of items that will damage bone like soda pop and sugar.

This is one of the main reasons you will not find studies published on natural progesterone as it is a natural substance which can not be patented and no huge amounts of profit can be realized.

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Preventing Steroid-Induced Osteoporosis

Steroid hormones, like prednisone, have revolutionized the management of many illnesses, reducing morbidity in conditions such as rheumatoid arthritis and mortality in other diseases such as asthma. However, they have many side effects, one of the most troubling being osteoporosis. It is interesting that the way they destroy bone density is by impairing the cells that build bone (osteoblasts). These are the same cells that natural progesterone builds up.

The articles in this week's New England Journal attempt to support the use of medications like Didronel and Fosamax to prevent the bone loss while on steroids. What they don't explain is that these drugs are metabolic poisons that kill the cell that remove your bone. They are diphosphonates which is the same material that is in products to remove soap scum from your bathtub. Any crstalline structure, like bone or steel, will weaken with time. The cells that remove the bone are an important part of the strategy to rebuild the bone to have strong bone. If it is not removed, although it will be denser, this bone will actually become weaker and more susceptible to breaking.

If you know anyone on Fosamax you would serve them well by encouraging them to stop that poison and immediately switch over to natural progesterone. This can also be used for males. The dose does have to be decreaed though to about 5 mg per day. I have successfully used that intervention for males with M.S. who have had to be placed on large doses of prednisone.

N Engl J Med 1997;337:382-387,420-421

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Bisphosphonate-Related Osteonecrosis of the Jaw (BRONJ) is becoming so common, as are prescriptions for Fosamax, that dentists are now referring to it as “Fossy Jaw.” Essentially, the condition causes your jaw bone to rot and decay -- quite ironic considering the drugs are primarily taken by people looking to strengthen their bones.

Bisphosphonate drugs like Fosamax and Boniva, are problematic because they stay in the bone indefinitely and may upset the cell balance, disrupting the process by which jaws regenerate and remove unhealthy bone.

It’s not surprising that Merck may have known about the risks of Fosamax and intentionally tried to keep them under wraps; they did the same thing with their tragically dangerous painkiller Vioxx.

I warned about the dangers of Fosamax nearly a decade ago, and it still makes no sense to take an osteoporosis drug that can literally kill your jawbone.

What can you do to strengthen your bones safely and naturally?

* Maintain a healthy balance between omega-6 and omega-3 fats in your diet

* Eat according to your nutritional type. This will ensure that you’re getting enough nutrients for your bones, and will correct your omega-6 to omega-3 ratio.

* Consider supplementing with vitamin K, if you are not getting enough from food alone. Vitamin K serves as the biological "glue" that helps plug the calcium into the bone matrix.

* Get enough vitamin D, ideally from proper amounts of sun exposure. Vitamin D builds your bone density by helping your body absorb calcium.

* Exercise. Studies show that exercise is just as important to your bone health as eating a calcium-rich diet.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/10/2009 4:16 PM (GMT -7)   
I have osteopenia and my doctor has me on 1500mg calcium, prescription folic acid 1mg/day and also vitamin "D".
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 6/10/2009 8:52 PM (GMT -7)   
What I didn't say earlier is that the bisphosphonates (not just Fosomax, all of them) scare me. That is, in part, why I pushed for Forteo. The osteonecrosis of the jaw (bone death) has no treatment and is happens more often in immune compromised patients. Note: that does NOT mean it happens a lot. It just means it happens at an increased rate. So it's important to consider the rate is very, very low to begin with. You could triple that and it would still be really low. It just frightens me...
--female dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--currently taking methylprednisolone 40mg-taper.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 6/10/2009 9:20 PM (GMT -7)   
Thanks for the information CrazyHarry - it's good to see that some doctors do their homework.

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 6/11/2009 5:28 PM (GMT -7)   
what upsets me is that i was on fosamax for 10 years!!!! it was only after i got off of it that i found all this out. ugh....
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Iram
Regular Member


Date Joined Jul 2003
Total Posts : 145
   Posted 6/11/2009 6:33 PM (GMT -7)   
So is it best to take Actonel then? I am also pred dependent. I am trying to drop below 10 mg, but not with much luck. Even at 7.5 mg I show symptoms.
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