Update..GI..surgeon..meds..LDN..

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Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 6/10/2009 10:03 PM (GMT -7)   
I had my follow up appointment with GI yesterday and surgeon today after having had colon resection four weeks ago.
GI - we will continue with metho injections for three more months, then will do a small bowel ultrasound to see where things stand. Apparently that will show how much thickening is in the bowel wall. If the metho is not doing its job then he figured I would be a good candidate for Humira. Whoa, back up. I just had surgery, I was hoping to go the other way with meds not stronger. Colonoscopy in January showed TI normal, previous colonoscopies mild Crohn's in TI and surgeon saw some slight stricturing during surgery. So I will do some research on Humira but think that's a distant possibilty. I have no symptoms and he said they are more inclined to treat the disease instead of the symptoms now days but I certainly have a say in the matter. This is the same GI that said a year ago that he would support me if I decided not to take any meds as I did not have Crohn's symptoms. I still do like and respect him and I had hoped we were going to leave things alone for awhile as long as I felt OK but should be happy that he is keeping tabs on me. This procedure is not evasive. And I did as him about LDN and he just attended a seminar in Los Angeles in February where a doctor gave a speech on her LDN trial. Until further tests and results, he would classify LDN on the same level as Metho but that is his oipinion and at least he's keeping up with things.
Surgeon - Incisions are healing fine but I guess I was a little too optimistic in thinking I could golf yet, he says 8 weeks since it puts quite a strain on the abdomen. Could be a lot worse things but I am allowing myself to be depressed for one night.
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/11/2009 4:53 AM (GMT -7)   
Wow! You must have the same GI as I do. At least he has heard of LDN as mine has not. I went golfing 3 months after my surgery and I did not have any problems.
At least your feeling well.

Wolfie
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 6/11/2009 2:18 PM (GMT -7)   
I am afraid your doctor is not too updated on LDN if he compares it to Metho. In one respect he might be correct, that is if he means LDN is MODULATING the immune system as Metho (I guess Metho does so). Some doctors actually have called LDN an immune modulator. But there does the similarity stop, if you know what I mean. Metho and LDN is far away from each other due to side effects and dose size. The hardest side effects in LDN is sleep problems the most often the first week on it. Could last some more weeks, but that is sure not the commonest. This sleep problem becomes a problem if it's due to falling asleep. To resolve the problem you can use melatonin before bed time, or mild sleep aids the first week(s).
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