Back from surgery

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Regular Member

Date Joined Feb 2009
Total Posts : 128
   Posted 6/11/2009 3:54 PM (GMT -6)   
Hey all,
I'm at home recovering now from my EUA and seton inplant.  Feels a lot better, but the drainage sure is a lot bloodier.  I'm tired too.  He told me I had a hemoglobin level of 9.4, so that explains the fatigue.  He thinks I'm severely iron deficient, though the blood work he had had drawn up wasn't really testing for it. 
It was pretty weird pulling two feet of medical tape out of my butt today, stung too.  I think I'm also scared to poop.  He told me I had no diet restrictions, so that's that.  I'm thinking it's time for some pain pills. 

Regular Member

Date Joined Sep 2008
Total Posts : 457
   Posted 6/11/2009 6:34 PM (GMT -6)   
Glad to hear you're home and on the road to recovery. That would be weird to pull that much tape out of your butt. I hope all goes well.
Dx'd with Crohns 1984 and polycystic kidney diease in 1996
I was in remission for 16 years, Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.

Veteran Member

Date Joined Sep 2005
Total Posts : 769
   Posted 6/12/2009 1:40 AM (GMT -6)   

Hi exjohnson, hope you’re feeling better. I was also petrified of pooping. I took fallcolour’s advice and got a shower head which can be moved around – they’re low cost and so effective. That way you don’t have to use paper or wipes while it’s so tender and raw down there. Are you doing lots of salt baths? I was told at least twice a day.


Did it leave much of a ‘hole’? When I had my 2 setons inserted about 1 ½ months ago I was so scared at the appearance of my butt. I cried and cried. It heals up faster than you’d expect, though. I also didn’t ask for decent meds – I’m glad you’ve got some that will work for you.


Mine also drained like crazy and leaked onto absolutely everything I sat or sleeped on. That bloody leakage should slow down soon and then it will just be normal yelloy discharge. Well that’s my experience anyway. Here I am with failed setons and a catheter, and its still draining one month after having the catheter put in!

Sore Tum
Regular Member

Date Joined Jun 2009
Total Posts : 144
   Posted 6/12/2009 2:03 PM (GMT -6)   
Glad you're bearing up ok, hope you're being adequately pampered!
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009.
Currently taking, 800mg asacol TDS, 1g Pentasa supp at night, 30mg pred (tapering over one month)
Probiotics, zinc supplements, Cod liver oil.

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