Teen Diagnosed Own Crohn's Disease

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New Member

Date Joined Apr 2007
Total Posts : 15
   Posted 6/13/2009 7:51 AM (GMT -6)   

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/13/2009 8:57 AM (GMT -6)   
Yeah someone else posted about this recently. I saw it myself on cnn. Pretty bad when a kid can diagnose her disease and the docs didn't:)
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Mar 2006
Total Posts : 2672
   Posted 6/13/2009 7:48 PM (GMT -6)   
Pretty amazing huh? Makes you wonder how many other people get it missed like she did!
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.

Veteran Member

Date Joined May 2009
Total Posts : 703
   Posted 6/13/2009 8:12 PM (GMT -6)   
How did she get a piece of her own intestinal tissue? Swab up the bum?

New Member

Date Joined Apr 2007
Total Posts : 15
   Posted 6/13/2009 10:01 PM (GMT -6)   
I imagine she asks the pathology lab for slides.  I was able to get my slides when I got a second opinion on a non-Crohn's related issue.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 6/13/2009 10:12 PM (GMT -6)   
It says she had her samples from the hospital from when the biopsy was taken as a child. That must have been an interesting project. As much as people are misdiagnosed though I am not surprised. I was told I had IBS and we narrowed it down to Celiac or Crohn's...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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