Do you avoid eating ?

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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 6/13/2009 6:37 PM (GMT -7)   
I just moved to my own house one week ago and after the move my symptoms where getting a lot better, except for the banana incident last night :P
So I started thinking and I have not been eating that much since the move and I feel so much better :) I know that it is bad avoiding food but I feel so much better.

My doc said that it was okey not to eat sometimes but he is the only doc who has said that to me so I am not sure that I should believe him .

What do you do?
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 6/13/2009 6:51 PM (GMT -7)   
When I was flaring badly, I disliked eating, because I knew that whatever went in...was coming out.
Also, on certain meds (chemo) food didn't taste 'normal', so I was eating less and choosing strong tasteing things to mask that "odd flavor" I was experiencing from the meds.
I wonder if you would benefit from a liquid diet for a little while? I've heard people mention low-residue or liquids to give our insides a rest...maybe check that out? I just feel that even though we have CD, we still need to "feed the machine". We just don't work well with no fuel.

As far as avoiding eating...not really. Though I will make adjustments and plan my eating if it involves any "outings". Last week we had dinner at a friend's and then went swimming. BIG mistake. Just after jumping in, my guts did "the gurgle" and I *barely* made it out of the pool, up the stairs and into the ladies' room, trying desperately to peel off my one-piece bathing suit to get my butt on the seat. I made it, but I was so desperate to get onto the seat, and I was moving so fast...I almost SLID OFF THE DARN THING because I was wet! *laughs*
I know now that I need to not eat before I go swimming.
heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/13/2009 7:34 PM (GMT -7)   
I do...I don't eat breakfast which is terrible because I take my prednisone in the morning. I know I need to be taking something with it, but I just don't want anything at all. I used to drink ensure when this happened, but it has way too much sugar anymore.

I don't know. Maybe kefir or something is a good alternative, but I know what you mean. There is just no appetite sometimes.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/13/2009 8:38 PM (GMT -7)   
I know for a fact when I don't eat it helps me for a while, but then I get hungry and eat only things that taste good and they usually aren't nutritional. If I'm doing sports or going shopping or driving in a car far I will not eat that morning and after I'm done with the activity.

I think you are right about the rest your intestines get from the "not too heavy work" of digestion. Haven't really done anything about it though. Might feel better if I did.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/14/2009 6:48 AM (GMT -7)   
Its okay to be on liquids once in awhile to try to quiet things down. But you should be using some kind of meal replacement during this time. Add some Pedialyte or Gatorade to keep you hydrated, Ensure, Boost things like that to replace the meals. If you can tolerate milk, not many of us can, Carnations Instant breakfast is good too.

Big hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 6/14/2009 7:51 AM (GMT -7)   
Nanners, you sound like a smart cookie. I made the mistake of eatting baked chicken last night. What a mess, i am so tired of clorox!! Back to the BRAT diet. minus the applesauce!!!
Mary Lynn


janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 6/14/2009 4:22 PM (GMT -7)   
I don't eat much, because there are not many things that don't get stuck in my strictures right now. Yogurt smoothies with protien replacement powder are great, as of course eating things I can eat..... if you don't take care of your nutritional needs via vitamins or shots and proteins &/or protien powder etc, you'll end up craving junk. If you take care of your nutritional needs you can sail through. Or at least I do.
strictures, crohn's, adhesions, endo. fighting Pyoderma Gangrenosum.
Trying LDN 3.5mg nightly ~ because I'm allergic to pentasa and 5ASA's I'm taking Boswellia Serrata. SCD yogurt. Using silver sulfadiazine on Pyoderma . B-12 shots. Juicing veggies!


dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 6/14/2009 5:53 PM (GMT -7)   
I do the BRAT diet too.
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 
 
I live by faith and not by sight....


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 6/14/2009 6:32 PM (GMT -7)   
what's the BRAT diet?

78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 6/14/2009 10:19 PM (GMT -7)   
BRAT = Bananas, Rice, Applesauce, Toast.

Similar to using "RICE" for injuries: Rest, Ice, Compression, Elevation.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/15/2009 4:03 AM (GMT -7)   
When I don't feel well, I'll eat a low residue diet, the problem is though once I start feeling okay again I go back to normal foods an the cycle repeats. I need to tell myself that I need to stay low residue for another day or two to let my bowels rest. When will I learn to quit listening to my stomach.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


eatingisoverrated
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/20/2009 7:23 AM (GMT -7)   
ensure is my best friend. I have found that it is not WHAT you eat; it is THAT you EAT. The inflammation/infection is inside and food irritates it. it doesnt always matter what...
eating is over rated
Eating is Over rated;Crohn's/Ulcerative Colitis forever! took  a ZILLION years to diagnose. Got tired of hearing "It's all in your head". What triggers it today may not trigger it tomorrow. Entocort 3 x day x 3 weeks for flares. approximately two flares a month on average at present.previously been on combid, pentasa, asacol, sulfasalizines, 6mp, various dosages of prednisonne, entocort, combinations of several of the above, pain medications as needed including mepergan, vicodin, tigan for nausea, paxil, copd medications. Also have Porphyria, COPD, degenerative bone disease.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2688
   Posted 6/20/2009 11:25 AM (GMT -7)   
I used to live like that. I'd skip meals all the time, especially if I knew I had to go out that day. Sometimes I wouldn't eat until dinner, when I knew I'd be home and safe with my bathroom. I would have terrible low blood sugar problems, I'd get the shakes. But I didn't have D, and that's all that mattered. Not a fun way to live.

Now that I'm in remission, and as long as I have my questran I don't really do that anymore. Sometimes I do when I'm having a bad day, or I'm in a flare. It does feel better gut wise, but I know otherwise it isn't good for me, since I usually feel crappy from not eating later.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.


imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 6/20/2009 12:31 PM (GMT -7)   
I usually don't eat until I get sicker. My dad gets furious with me because I do that, and I try to explain it to him, and although he sympathizes he can't *empathize*.
Diagnosed 2002(?) Indeterminate colitis (recently called Chrons)
Currently on: alternating doses of 6mp, 8 Asacol, weekly Humira, & 1000mg Canasa nightly
Also: generic Immodium and Levbid
 
Refusing to take pred and humira...(doing a diet/food diary change)
 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 6/20/2009 1:17 PM (GMT -7)   
You might want to have a look at the Modulen thread (British info) from HealingWell. See: Modulen It discusses a diet that is basically an elemental liquid diet that is used to quiet flares.

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 6/20/2009 7:22 PM (GMT -7)   
Lmills...or any others...I too am at a time when not much tastes right nor can hold it down (one end or the other)...

but my physician came up with using baby rice cereal with soy milk...my docs suggested it as a better alternative to Ensure and others like it. There is not as much sugar and has a bit more protein. It works for me...hopefully it will work for you
"The earth laughs in flowers"


MsRockonBelly21
Regular Member


Date Joined Dec 2008
Total Posts : 42
   Posted 6/20/2009 8:07 PM (GMT -7)   
A lot of times I don't eat. If I start to feel weak then I would resume eating. I start with 4 or 5 unsalted crackers with Gatorade. A lot days I would just have Gatorade. Then I graduate to jello, bread(plain), rice, and soup(actually broth). Then toast with jam or butter, chicken noodle soup, tiny piece of meat to go with rice. I start little for a few days, then go "big"(whole meals).
Don't judge a book by its movie.
 
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
 
I am on Metoprolol 50 mg for high blood pressure and heart beating too fast. On Citalopram 40 mg for my anxiety and depression. Started taking fish oil capsule 1200 mg for my high cholesterol. On Calcium 600 mg+ D 400 i.u.  pills. On Remicade 1,045 mg 
 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 22 yrs old.


tiaeight
Regular Member


Date Joined Sep 2006
Total Posts : 237
   Posted 6/22/2009 10:36 PM (GMT -7)   
I drink Boost, and liquid yogurt. Seems to help a little bit. Plus, soup. I don't think that hurts as bad...

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 6/22/2009 10:49 PM (GMT -7)   
I have IBS as well as CD so I do find that if I have a day of places I need to go I will avoid eating until I feel "safe" to eat, I'm quite used to it though and for me the way I look at it is I can alway induldge when I get home....it sucks sometimes but I've pretty much gotten used to it now.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 6/23/2009 12:01 PM (GMT -7)   
You need to get your nutrition somehow or you will develop a whole new set of issues.  Certain things I know will cause a flair, sometimes I eat them anyway because I choose to.  For the most part though, figure out what you can and can't eat and make sure you get enough nutrition in for body absorbtion which is a big issue for us Chronie's.  Hang in there!!!

Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.
Current Medications:  Humera 40mg injections every other week, Imuran 30mg, Levsin, Welchol, Prednisone (started weaning off, now going back up in dosing).Canesa suppositories
Misc:  I recently joined a local crohns disease support group that meets monthly.  It has been great talking to and meeting other people who share the same disease.  I hope to continue gaining insight through this forum as well.


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 6/23/2009 1:01 PM (GMT -7)   
I have been avoiding food for about a month now. I still take vitamins. I eat one small meal late at night, anywhere from 300 calories to 600. Sometimes I will have some toast for breakfast with a little butter/margarine on it, for some energy while exercising. I carry ensure around with me in a little cooler, just incase my blood sugar runs low, but rarely use it. I still drink alot of water, and am up for some lemonaide, tea, or fruity drinks anytime, drinking fluids doesn't bother me at all.

I have lost weight, but it's ok, it was mostly fat. I was at 188lbs a couple months ago, yesterday I was right at 169lbs. I am 5'8, 35yrs. old. I am looking at food now as if it were just energy, nothing more.

I gotta say that it was sorta hard at first. When your body tells you to eat, you do just that. Now I just ignore it, and it doesn't pitch a fit anylonger. I see the results the very next day, when I am going to the bathroom only a few times, then I am done for the day.

I have been feeling quite a bit better, it has been a really nice change for me, and it is just what I needed, I was starting to lose hope. I have been getting out, just about every day I go and do something. The weather is nice too. I find that alot of the time, my energy is up, I feel good, and I enjoy meeting people. I just have to avoid eating a meal while I am out. I can eat a couple bites of something, or have crackers, without too much trouble, but mainly just avoid getting myself into a situation where I am expected to eat.

I can keep doing this for a while, but am going to have to find some way to replace calories soon, and I am on top of that. I do like ensure, and could get myself to drink several of them each day. Maybe some plain white rice, or macaroni mid day, which is high in calories. It looks like I will be good until August, as I experiment. I don't want to weigh less than 150lbs, I would not be happy with myself at all.
CD dx @ 13 (1987)
Prednisone 20mg every other day
Phenergen PRN
Zantac 150 - Twice Day
Pain Meds
Vitamins

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