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Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 6/17/2009 1:31 AM (GMT -6)   
Hi All,
I have just been for my visit at the hospital to have my stoma checked and see the gastro, and get blood test results. I have also been suffering with swollen and sore joints that I spoke to the doc about today. I honestly feel like crying at the moment, I just cant believe how much this disease is attacking me. Since having my ileostomy done I did improve and felt fantastic and I must say I still do feel a lot better than I used to but this joint pain and my eyes have also been inflamed, I have been on steroid eye drops that have helped. Now with my joints my doc couldnt believe how swollen my hands  and ankles are, i am having pain all over my body and apparently its caused from crohns/colitis still being present in my rectum, that was left when they did the ileostomy in case of a reversal but they have said it definately cant happen for me because the disease would then go crazy through my small bowel, so the sooner they remove the rectum the better although i really dont want another surgery. I am getting scared that this disease will never let me go. I am also extremely anemic and was put on iron pills and they drew some more blood today to check for possible rheumatoid arthritis amongst other things. Also my liver readings are going through the roof again but i had a liver biopsy about 12 months ago and they said it was inflamation as well from the DD. Will this disease ever let go? I dont have much bowel left, u would think it would go but it seems its not done with me yet. I wouldnt wish this on my worst enemy. Oh if i am still badly anemic with the next lot of blood work done then i will have to have iron infusions they said. Sorry this is long winded, just feel like im about to  hit rock bottom again and dont know where else to turn. Thanks for being there

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/17/2009 8:40 AM (GMT -6)   
I feel you andorable. Its seems as if it isn't one thing with the darn disease its another. My guts are in remission right now, but like you, my joints are constantly in an uproar. I too suffer with anemia, but I can tell you that the iron infusions aren't bad, just a little time consuming. I started feeling some relief from it a few weeks later.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 6/17/2009 10:56 PM (GMT -6)   
I'm really sorry to hear about the step backwards. Good luck and let us know how things progress. You WILL get better.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 8mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.

Go Saskatchewan Roughriders!

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