Bad "D" after resection anyone?

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mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 6/18/2009 2:19 PM (GMT -7)   
It's been four weeks, and the lovely "D" is awful. Funny thing is - I never had "D" with flares. Now, it's like I literally "poop" everything out - very fast after eating, and I'm not flaring!

Is this normal after resections? I had 4 inches of my colon and 8 inches of small bowel removed.
Diagnosed with Crohn's for 13 Years
First Resection 05/19/09 - Currently Medication Free!

Lupus for Two Years

Tried prednisone, flagyl, pentasa, imuran, and Humira

Accountant and Mom of a 3-year old


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 6/18/2009 3:21 PM (GMT -7)   
Hi,

Did you by chance have a right hemicolectomy? If you did it would mean the terminal illium was removed, which is like a valve, and now the stool flows through. It should settle down some, but you may find yourself needing imodium now. Did you develope lupus from the Humira?

All the best,
Julia

mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 6/18/2009 4:12 PM (GMT -7)   
Yes, the lupus came from the Humira - or so they think. It's tough because we don't really know for sure if the humira caused it or if I had it all this time but the disease was inactive due to the prednisone/imuran I've taken over the years. I wasn't on those when I started the Humira.

Very confusing. Always something.
Diagnosed with Crohn's for 13 Years
First Resection 05/19/09 - Currently Medication Free!

Lupus for Two Years

Tried prednisone, flagyl, pentasa, imuran, and Humira

Accountant and Mom of a 3-year old


britt1449
Regular Member


Date Joined Apr 2009
Total Posts : 85
   Posted 6/18/2009 8:56 PM (GMT -7)   
I know after I had my resection in '07, I was going A LOT. I was going more than I had in a very long time. It took me a few months to get it under control, but it finally settled down. I think it had something to do with the removal of the ileocecal valve.
Brittany
 
Currently taking: Humira 40mg/every other week, Zoloft 50 mg/day, vitamins and supplements
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
 
Surgeries: Appendectomy 2001, Ileocecotomy 2007


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/19/2009 3:58 AM (GMT -7)   
After my resection all was good for about a month and then I started having "D" everyday. Just last week that all turned around, now i have been constipated. Is my body adjusting to the resectiion? Or is it because I have adjusted my diet. I quit coffee and I now have fruit smoothies that I make in the morning and i also add flaxseed powder. It seems to me that once I started adding Flaxseed powder thats when the constipation stared.
Hopefully your body will adjust soon, or maybe you need to make some changes in your diet. I'm not the doctor, it's just my advise.

Good Luck! I hope you feel better soon.
Wolfie
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/19/2009 6:03 AM (GMT -7)   
You are only 4 weeks out from surgery. The explosive D is common until your bowels adjust to the surgical changes. Usually within time, things quiet down. Although sometimes folks do have more d after surgery. Most often than not though once your body adjusts things get better.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/19/2009 9:22 AM (GMT -7)   
Hi i had a right hemi in 93 and was told by my surgeon then that i would always have the D which i did but went on to lomitil 2 tabs in the morning and that would keep all food and drink in for most of the day without going to the loo but around 4 in the afternoon i would need to goand probably 3 times more in the evening sorry its a bit graphic but its the only way to explain it good luck hope you get it sorted soon Bev x smilewinkgrin
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma
 No maintance drugs as such on B12 shots,iron syrup,loperimide, 20mg EScitalopram 4 anxiety.


uklass
Regular Member


Date Joined May 2009
Total Posts : 65
   Posted 6/19/2009 1:42 PM (GMT -7)   
I have had 2 resections - the first one was similar to yours and I remember it taking some time for my system to settle down after such a major disruption. One thing that has remained constant is the explosive diarrhea - the doctors explained to me that this is because the bit that had been removed usually recycled bile salts which break down fats; because this bit is missing the recycling is less efficient and so every now and then I continue to have this problem - though I am now doing lower fat diet and not having any problems so far. My most recent resection was in March and I haven't got much small bowel left so am trying fairly low fibre diet as well - balancing act as I now am suffereing more from C than D!!
 
hope i've helped - it takes months to recover so don't expect too much too soon; if you're anything like me I'm anxious about anything going in my body unless I can be in control of the outcome but it's got to be done
 
Penny x

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 6/19/2009 8:39 PM (GMT -7)   
You might want to ask your surgeon or GI about prescribing questran. It comes in powder form. I take half a packet every morning. It made a huge difference in the "D." I started taking it about 3 weeks after my resection. I experimented with the amount, but finally settled on 1/2 a packet. Be patient. Things settle down, but it takes a while. My doctor told me it takes about 6 to 9 months for guts to settle down and figure things out and I thought he was crazy - but it turned out, he was right!
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 6/20/2009 8:26 PM (GMT -7)   
I have not tried or heard of questrian, but I appreciate the suggestion and will ask about it when I go to my follow-up appointment.

Thanks to all for your responses.
Diagnosed with Crohn's for 13 Years
First Resection 05/19/09 - Currently Medication Free!

Lupus for Two Years

Tried prednisone, flagyl, pentasa, imuran, and Humira

Accountant and Mom of a 3-year old


LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 6/22/2009 5:58 AM (GMT -7)   
Hiya,

I would also advise you to try Questran - if the ileocecal valve was removed in your resection then there is a good chance Questran will work for you. I had the same symptoms until my GI recommended Questran and it changed my life - it tastes YUK and you will need to take it indefinitely but it gave me my life back. There's only one way to find out if it will help you - Try it out. I take one sachet mixed with water every morning and then i can eat what i like for the rest of the day without any pain or D.
Best of luck with it...

Lila
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