Do they all stop working.....??

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Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 6/18/2009 3:10 PM (GMT -7)   
Have been following the threads on Humira, before that Methotrexate. It seems it takes people (myself included) so much worrying, posting, research  to decide wether or not to go on these drugs; side effects, long term effects, onset of other illnesses, etc. Unless your doctor puts you on them and you no nothing about them or Crohn's for that matter. Then you read a lot of posts and members info where these drugs eventually stop working and you have to try something else. Do you just hope they keep coming out with something new?  
57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 6/18/2009 5:02 PM (GMT -7)   
Yes pretty much :)

Now Remi is not working 100% for me so we have to find something else I want LDN and my doc wants some experimental drug witch I am not accepting.

So maybe I will try Humira.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Iram
Regular Member


Date Joined Jul 2003
Total Posts : 145
   Posted 6/18/2009 6:53 PM (GMT -7)   
Somebody said...
Yes pretty much :)

moedon1
Regular Member


Date Joined Jun 2005
Total Posts : 139
   Posted 6/18/2009 6:55 PM (GMT -7)   
Humira seemed to provide me with the best results. None of the pills worked. Methotrexate worked for abount 8 weeks then stopped. Switched to Remicade infusions. Not bad but developed pneumonia. Then Humira. Iwas on Humira 18 months. just switched to Cimzia. Not altogther thrilled with it's performance thus far and I'm getting hives each time. I just had my third pair of shots. I'm hoping that the fourth will do it. Everybody processes medication differently. I have other medical issues that can be factored into how a drug perfroms and how my body dose when on it. Some truly last longer and can prompt remission. I'm hoping this will be the one. All of the Biologic meds. carry strong warnings. For the first two years that I lived with active Crohn's I was always optomistic but terrified by the warning lists. What I have come to understand is that the potential benefits greatly out weigh the potential side effects. Though my Crohn's has yet to go into remission I have had better days. If I didn't allow myself to try these meds. I would not had these times although few thay were times I will not forget. Just when i get to that place where I want to scream - n0 more drugs! I stop and ask myself waht the alternative would be? It is a very difficult road but one worth participating in because ther really isn't an alternative my friend.
Try not to worry. Go over all of you questions with the Doctor and don't stop utilizing your sources of support.
Donna
 Formal diagnosis 3/2006, IBS 1992, Degenerative Arthritis Facet block and RFA, Seizure Disorder, Severe Carpal Tunnel both hands, SVT arrythmia, 2004 cardiac Ablation
Cushings Syndrome(thanks Prednisone), Asthma, Multiple Laps for ovarian adhesion to bowel, C/5 & 6 disc herniation - plate with screws, resistant to anethesia/most pain meds.  Chronic fungal infections.
Multitude of Meds. Have tried most Crohn's meds.  Gall bladder removal and Intestinal Lap. June 08.- Intestinal blockage July 08 moved on from on Humira..now on Cimzia.
 


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/19/2009 4:05 AM (GMT -7)   
I would say yes that they all stop working at some point as our bodies build up antibodies to the drug.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bobbye
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/19/2009 9:05 AM (GMT -7)   
I am new here, have had Crohns/ Colitis since 2002 and have done pretty much all of the medications out there and sofar none have sent me to complete remission as of yet. I was on Remicade every 6 weeks at a double dosage for my weight for a year before it stopped working and they tried steroids for 9 months, and now Humiera..that was working for about 8 weeks, but the symptoms are coming back. All of my docs think I am addicted to pain killers even though now I am on none..I have taken the Fentynol patch at 50 mg, and got addicted..doc handed me a sheet with directions to a methonone clinic and said "good luck" when I asked to come off of it. So I fired him and he put in my medical records that he refused to see me do to my addiction! Leaving me screwed for help with the pain from any other doctor..but I went cold turkey and wanted to die for 2 weeks after stopping it. I take morphine when hospitalized, which is often, and now I am lost as to what to do.. I hope all of you have had better experiences with your teams then I have had with mine. Any suggestions? My email is bjsides74@hotmail.com

Iram
Regular Member


Date Joined Jul 2003
Total Posts : 145
   Posted 6/19/2009 11:18 AM (GMT -7)   
well, without knowing the clinical details I am not sure if I or anyone could offer easy solutions (we are not doctors at any rate, at least I am not); you might want to consider a new GI. One another thing to consider is prednisone, start with high dose and gradually taper down. Now it has side effects, you always balance the side effects with the quality of life issues. I have been on pred for almost 3 years now, presently I am on 7.5 mg...I am not sure what the long run offers for me, but I just try and not think very hard about the future...worries me, but I try not to think...

Another option is LDN...there are several threads in this forum you can check them.


I should add welcome to this forum...

Post Edited (Iram) : 6/19/2009 12:30:24 PM (GMT-6)


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 6/19/2009 2:23 PM (GMT -7)   
Bobbye

Get a pain doctor involved. They are experts, and should be able to get your pain under control. Also; They will not abandon you. They will make you follow strict protocol to get these type meds; but they will not just cut you off them and expect you to go cold turkey. Even if you go to see another doctor, or you fire one of these doctors, they are "supposed" to keep treating you for up to 3 months.

P.S. Very bad things can happen when you go cold turkey on these meds; It's good in a way that you did, you are a very strong person, and now know it, but it's not good to do it again; And I am not saying it is your fault, but please do your best to not let it happen, you are playing a dangerous game with your sanity.

Take Care
CD dx @ 13 (1987)
Prednisone 20mg every other day
Phenergen PRN
Zantac 150 - Twice Day
Pain Meds
Vitamins

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