Advice on CT Scan

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JD23
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/19/2009 3:23 PM (GMT -7)   
hi guys.. sorry to bother you all with my question/concern.. but i wanted to ask your advice or opinion on a stupid question that i have.
 
currently, I am seeing my GI doc every month.. routine labs etc.. and i see him monthly but my progress is going nowhere and right now i'm avoiding treatments until i am able to make a good decision on what i want to do next.
 
anyhow, one of my conditions that i have been dealing with is CHRONIC ILEUS, which my doc says is very rare and has no clue what to do for me for it.  I have had several CT scans etc..  and during my last visit with him, because my pain has been getting worse... I , me, suggested that i would want to do a repeat CT scan of my abs to see if things are getting worse.  Well anyway, he wrote the order and I just have to schedule the appointment and go.  But now that i'm thinking about it...  the test in itself is hard for me to make, hard for me to go through (they popped my veins several times and hurt so bad with contrast they had to stop the test etc...)  I just don't know if its worth it to do it again.  It was my idea...  so now come my next apt. with him next month.. do you think it would be OK if i just don't do it?  I do NOT want to make a huge deal of it and calling him etc..  I just don't do it, or will this look bad on my medical records?  because it was my idea, and there's nothing to do about illeus, whats the point?  and if things get so bad, i can always go to the ER, plus i have this standing one i can do outpatient as well...  but if they DO NOT GET BAD, my symptoms... would it be bad just to not do the test?
my whole point is avoiding calling him about this.  please let me know and please don't say CONTACT YOUR DOCTOR.. i know this, lol!!
thank you in advance!

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 6/19/2009 4:31 PM (GMT -7)   
When was your last CT scan? The reason I ask is you might want to consider a couple things in making your decision:
1) The pain is worsening. It could be possible that something else is causing the pain and would show up on CT.
2) CT scans subject the patient to 100 times the amount of radiation received in a chest xray. If your CT scan was very recent, this might be a factor in determining whether to do it.
3) Your doctor would not have ordered it, nor would insurance pay for it, if it was not medically necessary. [To the doctor critics - And yes I know that doctors order unneccessary tets. I am assuming her doctor is not one of those.)
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


JD23
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/19/2009 5:10 PM (GMT -7)   
My last CT was about 3 months ago. He was afraid in doing another due to radiation as well and i kinda opened my big mouth and pushed for it, not really thinking thigns clearly and he agreed. i just don't want to look like a bad patient now.. should i just not do it and explain to him this at our next appointment, or will he see our next visit as a waste? i was thinking of telling him i'd rather try a med called APRISO, something he had mentioned FIRST before doing another CT.. but i just don't want to look bad on paper for doctor records and disability etc.... i just don't see a point in another test knowing what i have, and no treatment

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 6/19/2009 5:12 PM (GMT -7)   
When I get my CT scans done I don't have any constrast. Is this an option for you? I'm allergic to the dye or constrast...so I just take the chalky stuff without it. It's not AS good of a look ...but better than nothing.
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. PTSD 1999. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Two-Re-sections on small intestine, total of 18 inches taken out 2006. Stomach Herniation from re-section 2007, Been getting kidney stones too! The good news...finding this website.
                Meds: Imuran 200mg daily, asacol, Bentyl, Coelestid, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, 4/20meq's potassium, synthroid...& try to get alot of laughter in.
                         


JD23
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/19/2009 5:19 PM (GMT -7)   
mine is WITH contrast and has to be that way. usually its soooooooooo painful and they always end up popping my veins. my main question is.. is it just OK to just not do it?? i just don't want to look bad.. it was my idea, after all..

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 6/19/2009 6:11 PM (GMT -7)   
You might want to google a traditional chinese medication called Daikenchuto for chronic illeus. might help you out.
strictures, crohn's, adhesions, endo. fighting Pyoderma Gangrenosum.
Trying LDN 3.5mg nightly ~ because I'm allergic to pentasa and 5ASA's I'm taking Boswellia Serrata. SCD yogurt. Using silver sulfadiazine on Pyoderma . B-12 shots. Juicing veggies!


JD23
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/19/2009 7:14 PM (GMT -7)   
Thank you. My own GI doc has no clue what to do. It's just very frustrating to have conditions and problems that cannot be treated. what do you think about doing the ct scan? kinda pointless? anyway---

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/19/2009 7:44 PM (GMT -7)   
If you are having second thoughts and don't want to do the CT scan, don't. And yuo have an easy and valid "out". Just tell him you thought over what HE had to say about so soon after the last CT scan and the Apriso and realized that maybe he was right, its just that its so frustrating to be in so much pain and not knowing what is going on ......
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


JD23
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/19/2009 7:53 PM (GMT -7)   
Your soooooo right. Do you know anything about Apriso? Should I just show up at my next apt. and tell him this or call the office and let them know? I am trying to avoid phone calls to doctors and bugging etc.. I do know what is going on, and i feel if things get THAT BAD, i can either go to the ER or use my order and go that way. I just was mostly concerned about if i didn't do it and does it look bad and will he be mad at me.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/20/2009 7:01 AM (GMT -7)   
I think the way C2 explained to tell your doc is right on. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/20/2009 4:56 PM (GMT -7)   
I would discuss it w/him at my next appointment. I don't know anything about Apriso.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Hollyhock
Regular Member


Date Joined May 2009
Total Posts : 25
   Posted 6/20/2009 7:22 PM (GMT -7)   
Hi,
 
Holly here.  I say go with your gut instincts. They most always prove right. If you are having second thoughts, go with that thought. You can also let your doctor know that you just want to wait for a bit. I think they would understand. Good luck!

JD23
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/21/2009 8:47 AM (GMT -7)   
OK , good. thank you for your advice. i just don't want to look like a bad patient for not doing something i guess i should and it goes on my medical records. for some reason, i'm always scared of getting cancelled, but i have medicare-- anyway.... thank you guys, you made me feel better!
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