Question about Crohn's Disease.....

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proudcavwifey09
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/20/2009 9:49 AM (GMT -7)   
Hi everyone, I do not have Crohn's but my husband was just diagnosed with it. He is currently deployed in Iraq and I was wondering will they send him home and Med Board him?? This is our 4th deployment and he is devistated. I have asked doctor's here at Ft Hood and no one is giving me any answers. I have emailed his chain of command and the doctor that he is seeing over there and of course no answers. They are not really giving him any answers either. We do not know where we stand with this. Could someone please give us some advice? He doesn't want to leave his soldiers behind but, he wants to come home and get the treatment here. I have been doing alot of reading about Crohn's and have an understanding what it is. Just we don't have any idea what will happen with his career. Thank You for any advice.
 
Proud Army Wife....
Nicole confused

yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 6/20/2009 10:00 AM (GMT -7)   
It sounds like you've done everything you can do to get the answers you need, your just not getting them. Hopefully there will be someone on here familiar with your unique situation. Best wishes, Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 10 months ago. Was on Remicade but just recently switched to Humira because remicade stopped working, B-12 injections and iron.
God Bless. Tony


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/20/2009 10:21 AM (GMT -7)   
I was under the impression that people with this illness were not allowed to serve in harsh conditions like that because the stress it puts on the body disables you from being able to carry out your duties...my boyfriend's mother is in the air force and had to discharge a man because his UC was just too much on him.

Not entirely sure though..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/20/2009 11:26 AM (GMT -7)   
Oh honey he is coming home (usually cd is a non deployable illness, but there are rare exceptions). There is no way you can do the cav optemp with this disease. Furthermore, it could make him sicker and make the soldiers under his command more vernerable (it is not exactly like you can stop the war to take a dump/puke, and stress will make him sicker). Depending on how far along he is in his career and the needs of the Army is a consideration for medboard. First thing to do in order to hopefully stay in is get this under control. Is he taking any treatment right now? Get that started right away, because when he does face a med board it is best to have it under control if there is any possiblity of staying in.
I would NOT be emailing his command (it might be a good idea to talk with a gastroentrologist offline).
 
I do want to offer some hope here I do know of intell and supply officers who have been able to stay in, and four tours will work in his favor.


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 6/20/2009 12:51:37 PM (GMT-6)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 6/20/2009 1:26 PM (GMT -7)   
MMMNAVY said it pretty well. The only other consideration is the possibility of the cause being due to his deployment. If he has had exposure to environmental toxins over there, it might have depressed his immune system and that could have caused his Crohn's. There is also a genetic part to the onset of Crohn's, but it would be wise to try to get a blood toxin profile or fat toxin residue profile. They really don't know much about the effects of depleted uranium yet and there could be other toxins in the mix.

proudcavwifey09
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/20/2009 4:25 PM (GMT -7)   
I talked to my husband today and he said he is waiting for the evac paperwork. They have not told him where he is going. From what I understand is that he has to have some more test ran. The doctor over there in Iraq said that he is trying to find out if he can get the meds over there or not. My husband has been in just over 8 years. We have a 4 year son and a 22 month old daughter. I can not work due to high blood presure that was left untreated for a few years and has caused issues with my kidney's. I can say that my husband's job is pretty simple over there. He doesn't go outside the wire. What scares me is when we were stationed at our other duty station in NC he would have these episodes of cramping and blood in his bowles. His PCM at the clinic in NC was like "oh its just an infection" and sent him on his marry way. I think this has been coming on for several years now and it has gotten worse. Also he did say today when i talked to him online that the cramping has gotten a little better but the blood is the same. It's been going on this time for over two weeks.
Thank You to everyone,
Nicole

Hollyhock
Regular Member


Date Joined May 2009
Total Posts : 25
   Posted 6/20/2009 7:39 PM (GMT -7)   
Nicole,

I just want to wish you both the very best and prayers are headed your way. I hope things work out well for your husband with the service years he has put in.

Holly

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/21/2009 7:17 AM (GMT -7)   
If he can get meds over there then great, that will be a major plus (prednisone pills or sodium medroyl injections they more then likely have (but be aware it can make one have a very short fuse), which is your first tool in a flare, but then you want a maintence med). I assume they will send him to Ramstein first, then Walter Reed or Bethesda if Ramstein cannot handle it, but they have some good people there. Then he will get a regular GI (gastroentrologist) once the flare has calmed down. 
 
Not that I am "saying this" but immodium will probably temp help him if he is having alot of d.  You might want to think about sending him a small box of some chewable ones.  They might not catch up with him, but just in case...
 
To kinda assure you I constantly bleed for years before it got really bad (and I cracked some verts at the same time it got bad), because I was hiding it with pads (I am female).  Is it concerning yes, but it also depends on how much blood he is losing or how many times he is having to poop in a day.


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 6/21/2009 8:37:59 AM (GMT-6)


proudcavwifey09
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/21/2009 7:52 AM (GMT -7)   
I can tell you that he does go poo pretty often. He said that everytime he goes there is always blood. I know when we talk on webcam it's like every 15 to20 minutes he has to go. If he goes to Walter Reed how long would he stay?? Could the kids and I go see him? Thank You for your advice.
Proud Army Wife.
Nicole


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/21/2009 8:11 AM (GMT -7)   
Have him count how many times he goes in a day and is it streaks of blood, since I do not know what kind of head he has, it would depend on how much blood he is losing like is it making the water pink or is there so much blood you cannot see thru the water, or is it just wiping blood. 15-20 min in that kind of heat is not abnormal for a crohnie (it is alot like haveing the stomach flu), I am also concerned about how is he sleeping (between pooping and stress). The codiene cough syrup helped me with slow down the poop and helping me rest. Is he throwing up alot? (I got a chonic cough from the puking) Is it bloody? Depending on how long he is Raimstein, will also depend on how long he is at Walter Reed. Yes, you could go see him, but realize it is expensive (since your a spouse it might help), and if possible you might want to drop the kids off grandma's for the first visit back. Because you will need to focus on getting a treatment plan for your husband and that is hard to do with young children around, especially if you have to have a hotel room, especially if he is still in the hospital.   Basically long doctors appointments, more scopes and tests, and lots of waiting rooms for about 2-3 weeks.
 
If they can get it under control quickly is another issue to factor into the time frame. It might be 3 day at Raimstein, 3 days at Reed, and then back to Ft. Hood there are just alot of unknowns that could factor in.


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 6/21/2009 9:19:39 AM (GMT-6)


proudcavwifey09
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/21/2009 8:30 AM (GMT -7)   
He has said that there is alot of blood when he goes to the bathroom. So I take it thats all he sees. I am not sure if he a thrown up or not. I know there has been a couple of times he has said he felt like getting sick. So I'm not sure. I would drive the 10 hours to Missouri to drop the kids off then to Walter Reed. I have been able to save a lil bit so I might be able to stay for a little while. I know he said that he wish's I was there with him through all of this because I can make him laugh. I'm a big goofball. Now if for some reason I am not able to visit him could the Dr call me and give me the updates on what's going on? I just don't want to be left out in the dark and stressing about it.

Thank You MMMNAVY!
Proud Army Wife.
Nicole


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 6/21/2009 8:50 AM (GMT -7)   
You are most welcome. It is important to have someone there with you, after having been thru it myself alone, because sometimes you do not feel well enough to advocate for yourself. Do either one of you have a phone that you can video tape the doc appointments? If you cannot have someone else there I found it is best to video tape the appointments (I still do and I have been dx for 4 years now). If I were you I would start checking about resources for spouses at Walter Reed (I am not married, so I do not know what is available there). Perhaps there is visiting quarters for you, or else I also know a woman put a cot in her husband's room and slept there (she was also a COL herself). Your husband could call you and if he writes a release of info for you to talk with the doc then you could.


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 6/21/2009 9:53:35 AM (GMT-6)


proudcavwifey09
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/21/2009 10:22 AM (GMT -7)   
Yes both of our phones of the video feature on it. Once I know what is going on I have to have his cell phone turned back on. I'm going to start looking into the resources there at Walter Reed. I really appreciate your help.
Proud Army Wife.
Nicole


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/22/2009 4:14 AM (GMT -7)   
I wish you both all the best.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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