Lifestyle 'choices'

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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/23/2009 6:14 PM (GMT -7)   
I have been spending my summer looking for a job, recovering from various medical adventures, studying for the upcoming semester, etc.

I look back and wish I could have been/could be doing more. I want to work at the zoo but am unsure about physical ability, I want to write as much as I can but am foggy from medication and inability to really exercise, I'd like to sigh up for some sort of community service program or volunteer at the hospital but again, the physical ability is a factor, learn Spanish, take a dance class, and so on and so on. But these are things I'd like to do whether or not it is summer.

I was just wondering what you guys do in an everyday sort of way e.g. routine, hobbies, and so forth, without overexerting yourselves.

I just wonder if people with this condition can ever lead any semblance of a normal life. I think 'it would be nice to plan for this or that,' but I don't even know if that's realistic at this point. I have enough trouble finding a job as it is let alone plan for something in the future that requires more time, energy, and funds.

So, and honestly please, what is it that YOU are capable of every day? And do you think we could all do more or are we forced to resign ourselves to a more sedentary lifestyle in order to maintain any bit of what is 'normal?' And I wonder not only about being sedentary but cutting out so many different kinds of food. I have tried reintroducing fruit into my diet and did well initially but am having a lot of pain after eating more blueberries sans skin and strawberries. Am not feeling so well at the moment...

Right now I mostly keep my apartment clean, try to go on small walks around the complex, turn in applications (in person or online), and my boyfriend and I have been watching a lot of 'Weeds' or netflix documentaries. I read as much as I can as well, but it doesn't come as easily as before (I would read for hours and hours straight) because of brain fog.

Anyway, this really isn't complaining. I'm just curious. I'm happy I can do what I do every day in comparison to how bad things were last summer, but I don't know anyone else in person with this disease so I don't know what kind of lives you lead and would really like to know..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


tinygo
New Member


Date Joined Jun 2009
Total Posts : 8
   Posted 6/23/2009 6:50 PM (GMT -7)   
I found your story to be very familiar to the way I feel. It is hard finding the energy and strength to carry on daily and keep a job. I would like to know how the Humira is working for you. Has it controlled your Crohn's for the time being and are you still taking the other drugs Pentasa & prednisone? I have had this disease for 26 yeaqrs and just started Humira in May 09. Also I am just now looking into a diet Gluten free. I don't know much about the different food groups because I have never enjoyed eating and have not been able to eat certain foods for years.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/23/2009 7:10 PM (GMT -7)   
The humira does work, but I have been skipping my doses lately to extend how long I actually have the drug in my possession. I know it sounds odd, but my insurance is not on solid standing at the moment so I am afraid of being out...it really made such a huge different though. I am still on pentasa and prednisone, but not the loestrin or omeprazole because of, again, insurance.

Looking into diet definitely is a good investment. It has really helped in my own quality of life.
Of course I slipped up and ate too much fruit so the familiar build up of labor pains is coming again. Thought I learned my lesson. Last time it was green beans and sweet potatoes.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 6/23/2009 7:21 PM (GMT -7)   
My husband and I bought a camper so we could spend time relaxing together and enjoying the outdoors. It even has a really nice bathroom with an excellent fan. (Only the people here would understand what a life saver this is for me.) Well after a weekend of camping the following Monday and Tuesday I am exhausted and not feeling well. I didn't realize that "relaxing" would take so much energy. LOL

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/23/2009 8:04 PM (GMT -7)   
My life is pretty simple, I go to work for 8 hours, come home eat dinner, walk my 2 labs at a beautiful park, come home cut grass, water plants, check out healing well, watch tv, and go to bed. Next five days are very similar. Weekends have a little more fun, I go golfing, even more chores around house, maybe dinner out and possible movie, see family and friends.
WOW! I'm pretty predictable and boring. :-(
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 6/23/2009 8:23 PM (GMT -7)   
I spend most of my time in my home or very near to it. Last year, I bought a "poop-bucket", a heavy-duty plastic, short, round bucket with a lid. I keep it lined with a plastic bag and have a roll of TP in there. A large towel to cover my lap and a bottle of water is in the back seat for wetting a corner of the towel and clean-up. That is my "traveling bathroom" and mini-wash kit for when I am in the car. I have found that daylight still limits where/when I can use my kit. Night-time has much less chance of accidental nudity being visible and offending other people.
Having that 'security' has helped considerably, and my husband enjoys that I am much more receptive to going out and doing things with him. I still have 'bad days', days where I feel I am lucky if I only achieve ONE task. Even completing that one task, feels like a gargantuan achievement.
Little victories. I take them where I find them. ...and many times, it is only myself who knows what a substantial victory that was, or what it cost me to achieve it.
heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 6/23/2009 8:53 PM (GMT -7)   
My life is pretty routine. I wake up, eat breakfast, then go to work. I work 32 hours a week. I joined a gym month to month, when I feel like going, I go..If I feel a flare coming on I tell them I wont be there for a month and they dont charge me for that month..pretty nice. I usually end up going 3-4 times a week for an hour each time.  Id love to go to college, Im only 22 I have my whole life ahead of me, but Im not able to concentrate on things like that because of this disease, and the medications.  Besides the fact that I could flare at any time and have to drop out for a semester or longer.  Right now though life is as stable as its been in a while, Ive had a total of 5 surgeries since April. Set me back A LOT money wise, especially since Im trying to move out and be on my own.  I guess im greatful because I have a wonderful boyfriend, who supports me through everything, he actually wants me to stop working and support me 100% money wise. I refused his offer though, I love working...and I will continue to work until my body gives into it.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/24/2009 12:12 AM (GMT -7)   
LMills, what you wrote is so true and so right. I want some time to think, though, and will try to write a fuller reply soon.

Hang in there,

Ivy.
Co-Moderator Crohn's Forum.

New meds thread


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/24/2009 12:54 AM (GMT -7)   
LMills

Good question. The ups and downs make me feel very insecure about getting a new job. Mine last one ends this Friday and it has been 18 years of fun. My doctor told me just to go find a job and not tell them anything for a while. I am taking the summer off and hopefully having ileostomy so maybe I will be better in the fall. I did get some job offers for fall and so I guess I will try to go with the flow. I have the summer off. I try not to lose hope and have some things to look forward to each week. Going to the pool or library for new books on cd, sometimes books.

With my time I read but, not long for my eyes hurt alot. I learned to knit and make presents and can even sell some at a shop. I love swimming, the water makes my joints feel better and pain seems minimal then. Bike riding gets me out in the sun and happy moving if possible. Running not easy but walking places is relaxing in much moderation compared to my "old life". When I used to train for Ironman competitions 20 hours a week. Oh my life has changed. I do volunteer work when I can and for how long I can with people who need help. No one gets bent out of shape if they understand how I am. I see my grandkids more b/c I'm not working very much and then it will be summer.

I like movies but miss quite a bit if we go out so I like to see them at home. I have tried to clean and de-clutter my house slowly as I feel able. When you live in the same home 17 years the junk piles up.

I am the A type I guess that likes to make a list and see that I am useful. I don't do much but at least I am going in the right direction and don't feel so uncapable as I did for a while. Sometimes I phone others and just let them know they are cared about and I am thinking of them and they feel good and so do I for doing something for others.

You're so right it's hard to plan very far ahead on anything. I know that my mind needs constant encouragement not to get frustrated or depressed so I try to be grateful that I'm not as sick as some and keep busy where able.

I try really hard to enjoy the ups and get through the downs.

So since every day is supposed to be a blessing I try to make it that way.

Sounds like your boyfriend is great and I know how you might feel about working and staying motivated and useful.

Good luck with your quest.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/24/2009 1:29 AM (GMT -7)   
OK, I'm back.

Bonnie, I honestly think that the people who use down-time with an illness to master a new language or whatever are either not sick enough, or have had a more acute illness than ours; an illness that follows a definite trajectory of crisis / healing / recovery / renewal. We don't have that certainty, and the constant grind, constantly changing abilities and brain fog can make it very, very difficult to achieve our goals.

I think it's important to accept that chronic illness will change our lives, and may lead us to live smaller lives than we might have wanted.

I'm seventeen years into my illness, Bonnie, and all I can say is "you are what you do". I made a few rules for myself several years ago - one of them is "make life-affirming choices" - and I find they really help me to stay on a straighter path. Yes, I have long periods where I wobble and drift and feel as if I'm accomplishing nothing, but I always try to remember that each little thing I do will add up over the years to help me become the person I'll be when I'm older. So... I try to listen to highbrow radio instead of the lowbrow station; try to avoid bad tv; try to read decent books instead of sensationalist rubbish. And really, Bonnie, it does add up over time: I have found that people are occasionally surprised / impressed at the esoteric things I know, or at what I have read, and most of that is because of things I've listened to or read at the most difficult times of my life. And it stops me from becoming the type of mindless patient I see all too often in my frequent trips to hospital.

I always keep a running list of things I want to accomplish each week. I'm fighting mild depression at the moment, so this month, I get bonus points for every day I remember to smile, even though I don't feel like it. Sometimes I use a similar system to remind myself to improve my posture. Again, it does add up over time, Bonnie. I can smile much more easily this week than I could last week.

OK, you may not be able to work at a zoo yet, but perhaps you'd be well enough to help care for an ailing neighbour's pet, or feed the birds from your balcony, or do something - anything - that will get you nearer to animals. You may not be able to learn Spanish, but you could hire the occasional Spanish film and pick up a few words that way. You'll be surprised at what opportunities can open once we make baby steps to develop an interest, and once others detect that we have that interest.

Oddly enough, spending too much time :-) on the forums has made me into more of a leader and mentor in my real life: again, it's all about practising skills, even if in a small way and even if online, and then allowing them to build slowly over time. You may find that you experience a similar transformation too, between using this forum and writing on your blog.

I have some thoughts about volunteering etc too, but I think I'd prefer to discuss them off the forum, if that's all right with you. You are very welcome to email me if you'd like to chat more.

Bonnie, I think that we have to work a lot harder than normal people to achieve *anything*. The positive side of that is that anything we *do* achieve tends to be much more valuable than a normal person's achievements. Be kind to yourself, hon. You are going to uni; you've held down a job; you have a relationship; you are doing really, really well and should be proud of what you have been able to achieve under such difficult circumstances. It may well be that you are doing all you can right now, but that doesn't mean that there won't be time and energy for the other things later. Just go with the flow; try not to focus so much on achievement, but see what happens if you "just be"; and be gentle on yourself because I really do think you are achieving a lot more than you realise.

Keep smiling.

Ivy.
Co-Moderator Crohn's Forum.

New meds thread


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 6/24/2009 3:43 AM (GMT -7)   
Yes I agree with Ivy - be proud of what you do achieve. My life is pretty ordinary. I work full time. I read, watch tv, visit friends. My acheivement recently is that I have joined a gym and I try to go 3 times a week. It makes me feel better about myself, and I feel fitter too. I might not always be able to use the gym but I can still use the pool and the sauna
Diagnosed 2005.
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/24/2009 6:12 AM (GMT -7)   
I work a fulltime job myself. I am able to run a "few" errands after work, but honestly am pretty tired most of the time. I make myself do alot more than I "want" to do, as I refuse to give in completely. Yes, we will have to make modifications in our life, but we can have relatively normal lives too. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 6/24/2009 6:25 AM (GMT -7)   
I am one of the lucky Crohnnies in that I think of my case as pretty mild. That being said, I have the exhaustion and muscle fatigue that come from anemia almost every day. Like Ivy, I revel in what I can do and try to not focus on the can'ts. I also weigh doing something very exhausting versus do I have the next day(s) to recover.
I work 40+ hours a week. I still mow the lawn on the weekend, but know that I will be exhausted for the rest of the day. So I am making a change to a riding lawn mower so I can do a little puttering in my garden on the day I mow the lawn. I just learn to exchange fun/strenuous activity for knowing I will need recovery time.
I also think age has something to do with it. When I was in my early30s, I acted in an improv show where I danced almost the whole night. The next day on the couch and I was good to go again. Now if I dance all night at a lodge event, I am down for 1.5 days. Yup age adds to the recovery time---seems a little more each year. Now that I am near mid40, I am "farming" out what jobs I can (if I can pay for it to be done and can afford it, I let them do it)
Remember the focus on enjoying what you are doing (being in the present) really helps push the "can't" out of your head
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 6/24/2009 11:42 AM (GMT -7)   
Ivy - that post was very encouraging- Thanks
Jessica 27/F
Remicade, Entocort 3/day, Rowasa ,
Apriso/4 pills
Citalopram 20 MG
Align


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/24/2009 12:53 PM (GMT -7)   
I want to thank all of you for writing such wonderful replies. They have put things in perspective and could not have come at a better time. I just spent last night dealing with a full on obstruction vomiting into a trash can (sorry for details), and I think if I had not read what you had to say I would be fretting about not getting all of my work done for today as opposed to bed rest and a shower. I'm still not used to being in a body like this..

Ivy-I would love to hear more...please, write if you have the time. Your post was very moving, and I have been thinking about it all day.

I'm really glad to hear about your lives, by the way. They sound pleasant and like you accomplish more than a lot of normal healthy people. It gives me hope.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 6/24/2009 1:16 PM (GMT -7)   
I work 2 jobs. Full-time (40-hrs per week) and part-time (10-hrs per week). I too mow the lawn (I find it theraputic) but am exhausted by the time I'm finished. I have a hard time getting the energy going to do anything too extensive as far as house cleaning goes. I do what I can in spurts. Laundry one day. Dishes every day. Bathroom once a week, etc. My husband and I watch alot of movies at home which is nice. We do occasionally go to see a movie in the theatres but I always have to take extra Levsin so I can make it through the movie. My husband is my biggest support - he goes everywhere with me and helps me tremendously. I don't know what I'd do without him. We've been married 3-yrs now (we're both nearing the 50's mark) but have been together for a total of 8 yrs. We have an excellent intimate relationship so the Crohns hasn't gotten in the way of that - thank goodness. For the most part, I'd have to say I do pretty much what I want to, I just get tired sooner and have to do a little medication tweaking depending on where we are and what we're doing, otherwise, life is pretty good.

I wish you the best of luck as you continue on your Crohns journey. :)
Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, Levsin, Welchol 625mg, Prednisone 10mg(started weaning off, now going back up in dosing).Canesa suppositories, Calcium, Acidophilus & Potassium
Misc:  I recently joined a local crohns disease support group that meets monthly.  It has been great talking to and meeting other people who share the same disease.  I hope to continue gaining insight through this forum as well.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/24/2009 1:21 PM (GMT -7)   
2 jobs...good grief. I admire your ability to do that! Do you mind if I ask what kind of jobs they are? I am trying to find even part time work, but it's difficult knowing where to go. I used to babysit for my family and then did retail work but am looking again now that I'm able to walk around and have a little bit more energy.
It's just that a lot of people want you to put down that you can consistently lift 50 lbs throughout the day and I'm not going to lie so I can be fired for not being physically fit enough.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/24/2009 1:46 PM (GMT -7)   
I work a desk job, but I am up and walking around the office all day. I have been with this company almost 20 years now. I think because they have been so supportive of my health and all I have to deal with, I will retire from this company.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/24/2009 11:35 PM (GMT -7)   
Bonnie, could you please drop me an email? I can't work out how to contact you; your email doesn't seem to be listed in your profile.

I'm particularly interested to know if you've ever lived outside the US. I have something in mind that might really work for you and am hoping that you have overseas connections that we can use to get you in. Please write even if you don't have OS experience, as we might be able to work something out anyway.

Oh, btw, I wish you were Australian. Our Crohn's Association is doing a lot of lobbying on employment issues this month and has launched a competition for local Crohn's and UC patients to get experience in a "dream job", and one of the jobs they're offering is working at a zoo!!! How apropos is that?!!
Co-Moderator Crohn's Forum.

New meds thread


poohbear37
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 6/25/2009 2:32 AM (GMT -7)   
the best thing i ever didi for myself is get into a gym routine. I try to go 4-5 days a week...if i can only do 15 minutes, fine...but i always feel better after...and it keeps my body strong and healthy!

Plus you need some weight bearing exercise to balance out all those steroids we take and keep our bones strong!
Crohn's Disease - re-diagnosed June 2009
Ulcerative Colitis - diagnosed in 2000

26 years old/female
Asacol, Cymbalta, Nexium, Cipro, 40mg prednisone...

Bad reactions to: remicade, lialda & 6mp


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/25/2009 9:42 AM (GMT -7)   
Ivy- email is la_bonbon_vie@hotmail.com. Sorry!! I thought I had it listed, but didn't even bother to check...
I lived overseas a very long time ago, but I know people in a lot of different countries (Israel, England, etc.).
I wouldn't mind trying Australia myself. I'm hoping to at least study abroad there sometime for ESS major. I'm amazed to hear there is a program over there to help us like that. I hope people catch on here!

poohbear-that is a really good idea. I have been trying to do something, anything, to get exercise in. Walking has helped so..I hope someday I could run even once a week.

Speaking of which, is running or jogging regularly a realistic aspiration for any of us? Or too dangerous for the body?
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 6/25/2009 10:03 AM (GMT -7)   
I work as an administrative assistant in a health clinic as my full time job and then last December I started working part time at a craft store here in town.  I'm not a crafty person myself but I enjoy interacting with those that are.
LMills said...
2 jobs...good grief. I admire your ability to do that! Do you mind if I ask what kind of jobs they are? I am trying to find even part time work, but it's difficult knowing where to go. I used to babysit for my family and then did retail work but am looking again now that I'm able to walk around and have a little bit more energy.
It's just that a lot of people want you to put down that you can consistently lift 50 lbs throughout the day and I'm not going to lie so I can be fired for not being physically fit enough.


Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, Levsin, Welchol 625mg, Prednisone 10mg(started weaning off, now going back up in dosing).Canesa suppositories, Calcium, Acidophilus & Potassium
Misc:  I recently joined a local crohns disease support group that meets monthly.  It has been great talking to and meeting other people who share the same disease.  I hope to continue gaining insight through this forum as well.


J-
Regular Member


Date Joined Jun 2009
Total Posts : 86
   Posted 6/25/2009 12:40 PM (GMT -7)   
i am opening a store verry soon. nothing can hold you back from the things you want to/need to do!!!!!
diagnosed with crohn's 6-15-09 at age 23.

asacol: 400mg. 3 3X a day
prednisone: 10mg. 3 in the morning


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 6/25/2009 12:55 PM (GMT -7)   
J-what kind of store? That sounds exciting!! If I ever had the money I would want to open some sort of restaurant or bakery...I love to cook but never have anyone to finish off the massive amount of sweets that are the result.
Was it difficult to get all of that off the ground in light of symptoms flaring up and energy levels??
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


J-
Regular Member


Date Joined Jun 2009
Total Posts : 86
   Posted 6/25/2009 3:17 PM (GMT -7)   
a health food store. my only worries is that my insurance is through my work as of right now. now that im a crohnie can/will they deny me? or charge me F'ed up prices
diagnosed with crohn's 6-15-09 at age 23.

asacol: 400mg. 3 3X a day
prednisone: 10mg. 3 in the morning

Post Edited (J-) : 6/25/2009 4:20:09 PM (GMT-6)

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