Crohn's Disease.......

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Kellznpc8784
Regular Member


Date Joined Jun 2009
Total Posts : 46
   Posted 6/24/2009 6:24 AM (GMT -7)   
Hello, Well I seen my Doctor for the 2nd time yesterday and told her about the problems I have been having with swelling and pain in my ankles knees and wrists.... She said there is nothing really they can do for that!!! Then my blood work showed that im not in controll of my disease so she still has me on the Pentasa 500mg. 8 pills a day 4g. The she also gave me Prednisone 20mg 3 times a day for 7 days then take one pill away.... To see if this helps... Has anyone ever used this? and does it help ? My doctor doesnt spend a lot of time with me b/c she is so busy and I live in a small town Moorefield, WV and the closest doctor for this is her in Winchester Va. Is there certain foods 2 stay away from also? I know that anything with milk makes me sick.. I mean it could be that im eating wrong. Another thing I wanted 2 ask about is can you drink with Crohns Disease? I have read that once in a while is ok but the I also read not to drink at all. Thanks!!! Kelly~

Post Edited (Kellznpc8784) : 6/24/2009 7:48:40 AM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/24/2009 8:30 AM (GMT -7)   
Prednisone is one of the most prescribed meds and used most often to quickly get a flare under control. I bet after a few days the swelling and pain in your joints will really improve.

Also, I use to have a drink here and there, but really don't drink as much anymore as it doesn't agree with me. I think its fairly common with most Crohnies for it to bother them, some are able to have a few drinks here and there without problems.

As for diet, it is pretty individual for most of us. What might bother one, might not bother another. I would recommend keeping a food diary and keeping track of which foods bother you and those that don't. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 6/24/2009 10:23 AM (GMT -7)   
Hi Kell...sounds like this is all new to you. I recommend you do some reading around the posts on here & look at stuff on CCFA site. As far as your meds...they are the basic norm. As far as diet...as with everything in this disease, everyone is different. THink about making a ffod journal. I kept track of foods that always made me feel bad, foods that made me feel bad if I was already not feeling so great and foods that were really safe. I can drink milk and dairy foods, but many others here can't. I do have a drink on occassion, but I never have many---2 is my usual limit. I stick with drinks that are vodka plus a mixer that does not bother me (soda pop bothers me, heavy fruit juices too).

Remember that everyone is very different with this so anything you read may or may not apply to you. We are all just one big experiment!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 6/24/2009 11:02 AM (GMT -7)   
You've been given some good advice. I wanted to tell you about a few foods that seem like common irritants to many crohnies to maybe give you a jump start on your elimination diet. These are common no no's.....Red meats, fried foods, foods that contain alot of preservatives. Try to eat as natural and healthy as your gut will allow. I have bad arthritis too and when its flaired it seems almost anything I eat makes it worse. You might even try a liquid diet for several days to see if it helps. Many times it can make a big difference quickly. Drink liquid meal replacements like Ensure or Boost or their generic brands (much cheaper). Walgreens has their own brand right next to ensure and they are several dollars cheaper and just as good.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 10 months ago. Was on Remicade but just recently switched to Humira because remicade stopped working, B-12 injections and iron.
God Bless. Tony

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