long over due update

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CUBFAN26
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 6/25/2009 6:35 AM (GMT -7)   
So i had surgery on march 6, 2009 and woke up in the morning and felt great and the doctor said i would be home in 3-4 days, later that night i started to not feel so good turns out my surgeon clipped my colon during surgery so i was immedetly rushed back into surgery where they took about a foot of intestine and part of my colon out.  Because of this i now have to wear an ostomey bag and i hate every part of it. Then i was in the hospital for anohter two weeks after the second surgery.  I was supposed to go back to work in early april but i was out until early June, all without getting a paycheck from work. (i had not workd there long enough for disability).  Then in early june i started to get fistulas along my scar it started out with one and know is up to five with another one i believe forming.  I am in so much pain every day!  i have been taking diluadid pills but even they dont seem to touch the pain.  because of all of this and the fact i have a beautiful wife and a child who just turned 1, whom i can barely help do anything i feel like i am in a black hole of depression.  I was always one of those happy go lucky people who went out of his way to make sure other people felt good too.  Now i cry a lot becasue i feel so weak and helpless.  they put me on prozac but i have been taking it for about 2 1/2 months and i still feel like crap.  I dont smile and have a hard time laughing at anything.  i am going to try and go see a psychologist to get my mind working again.  I have to see my surgeon every so often to see when i will be able to under go another surgery to reverse my ostomy.  every time i see him i want to kick him so hard because it was his mistake that made me like this.
Anyway just needed to vent.....  Good luck and God bless to all!!!
Crohn's since June 2005
Relapse/flare up since Oct. 2007
Been on Pentasa, Asocol. Prednisone, Entocort, Imuran, Protonix, various anxiety meds, painkillers
 
Humira for 1 month from July 2008-Aug 2008 then contracted histoplasmosis and was in hospital for 11 days in Aug. 2008

Surgery scheduled for March 6th 2009


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/25/2009 6:44 AM (GMT -7)   
I am so sorry to hear all that you have had to go thru. I am glad to hear though that you are talking about seeing someone, its only natural after everything you have been thru to be depressed. Maybe the Prozac dose needs to be increased or you need to try a different med. I found therapy to be very beneficial to me.

Hoping and praying that you heal well and are able to get your ostomy reversed soon. And vent away Cuba, thats why we are here.

Big Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/25/2009 10:27 AM (GMT -7)   
Hi cubfan, sorry to hear you have had such a hard time i too was given an ostomy and hate it even now 6 months on i had all the feelings and emotions you are going through don't feel like my old self who used to be so confident iam on medication for anxiety i think maybe you need to change to something diffrent than prozac if you feel its not working  iam hoping to get a reversal pretty soon and i hope you get a date soon for yours hang in there sweetie just keep in your mind you haven't got it forever. Take care Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stNo maintance drugs as such on B12 shots,iron syrup,loperimide, 
was on 20mg EScitaliopram.changed to Sertraline 50mg


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/26/2009 4:34 AM (GMT -7)   
Sorry to hear that you have had such a horrible experience. Are they giving you anything to get rid of the fistulas?
Try and dig deep and find that smiling go happy person and fight through this.
I wish you all the best!!!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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