i too am a bit confused with my GI appointment??

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crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/26/2009 10:58 AM (GMT -7)   
Hey All , had appointment today with GI my one wasn't in today so saw one of his team about getting on some meds he said he would try me on remi again or Humira. But as i haven't had any meds for years i asked if i could try some of the other drugs first such as flagyl for the fistula and something to keep the crohns at bay i haven't got anything against remi or humira but want to keep them for if and when i get a bad flare. so he has put me on Asacol which ill try.the reason im confused is he wasn't going to give me anything to keep the crohns at bay he said i had an op so there was no crohns and if i had a flare they would zap it with steriods how does he know i  dont  have specks somewhere i have not had any scopes or anything to say that its all clear, in the end i demanded that i wanted something and didn't want to wait for a flare up so asacol it is god some docs drive me mad!!! Bev x  
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stNo maintance drugs as such on B12 shots,iron syrup,loperimide, 
was on 20mg EScitaliopram.changed to Sertraline 50mg


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 6/26/2009 12:03 PM (GMT -7)   
That is the opposite of my GI. 6 weeks after surgery he insisted I go on a maintanance drug.
Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/26/2009 12:44 PM (GMT -7)   
After my last resection the GI I had at the time (now fired) said you can stop the Asacol, you don't need it anymore. Well I stopped it and started getting sick pretty quickly, went back on it and am back to normal again. I am a firm believer in some kind of maintainence med at all times. Good for you for putting your foot down.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/26/2009 7:52 PM (GMT -7)   
Let me get this straight! Either this guy is a blithering IDIOT or I've misunderstood what you've told us.
 
You've had an operation so you don't have Crohn's any more?
 
You have a fistula and so he has generously written you a script for Asacol?
 
How gracious of him. I'm impressed. NOT! Most any general practitioner could do better than this if I'm understanding you correctly.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/27/2009 3:17 AM (GMT -7)   
Hi yep apparently thats what he said you don't need any drugs for crohns because you've had it cut out !!!(I WISH)after telling him i wanted something  i did get flagyl for the fistula and asacol but he seemed really reluctant to give it and said "there is no cure for crohns you know " i said i was fully aware of that but i wanted something to control it he didn't really seem to have a clue. Duh! Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stNo maintance drugs as such on B12 shots,iron syrup,loperimide, 
was on 20mg EScitaliopram.changed to Sertraline 50mg


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 6/27/2009 4:38 AM (GMT -7)   
I was told I would stay on asacol or pentasa for the remainder of my life. The dose would be adjusted as needed. I am with you...how confusing!

36/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Imuran 50 mg daily,Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/27/2009 10:02 AM (GMT -7)   
Whew! I'm glad you were able to convince that idiot to script the Flagyl for you! I hope the Flagyl takes care of the fistula for you. And for the Crohn's elsewhere too.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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