How good is remission?

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Guilty Party
New Member


Date Joined May 2009
Total Posts : 18
   Posted 6/28/2009 4:56 AM (GMT -7)   
Hey all i've had problems since last november and on the way to being treated back to what i hope will be a state of normality after its been decided ive joined the crohnies. Diagnosed in March. still not back to full health although in small ways im improving. I was just wondering how good i will feel once i do hit a state of remission? Will it literally be business as usual with a view to watching my diet or will there still be stomach aches in the morning all the time and those crap days every few days when its all on a downer etc.
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/28/2009 5:46 AM (GMT -7)   
I have lived with this disease for over 30 years, before my resections I could tell you that life was pretty normal when I was in remission. But since the resections, I am reminded everyday that I have Crohns, even on the good days. I have to watch my diet pretty closely, I have joint pain all the time, and I still have those days when things just don't agree with me. I would even say when I was in my 20 year remission, I probably had more bad days than I remember, but they just weren't as bad, more like minor disturbances.

You probably will have more good days than bad when you reach remission, but I am sure you will still have a bad day here or there when your stress levels get too high, or you give in and eat something you shouldn't. But as I said, you will probably have more good days than bad.

Good luck!
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 6/28/2009 6:18 AM (GMT -7)   
I was very fortunate and during my periods of remission I used to actually forget I had Crohn's at times! Now with my remissions from a bit of old damage I still get diarrhea but its completely manageable and I'm generally brilliant health wise and dare I say it probably even fitter and more energetic than some of my 'normal' friends! There is still the odd day where I've eaten something bad or am really stressed I get cramps or diarrhea but generally its pretty good and I just pray it lasts and that more of us get as lucky as I have been
 
 


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 6/28/2009 6:23 AM (GMT -7)   
Yup! What Nanners and lilcrohnieUK said. I just had my first resection 9 days ago. I've had Crohn's for 18 years--so they tell me. The first 15 years I spent in denial and lived what I considered to be a very normal life. I work full-time and am a single mom to two very active girls (9 and 7). I think my problems sort of snuck up on me. I didn't even realize how sick I had been until a few months ago. I'm definitely more active and have more energy than others my age with no active disease. You just have to keep up the optimism and keep chugging along. I think I feel great most days...

Guilty Party
New Member


Date Joined May 2009
Total Posts : 18
   Posted 6/29/2009 7:51 AM (GMT -7)   
Cheers for the help. For the first time in months (although im not holding my breath) im feeling a bit more energised and do not just want to sit on the couch feeling sorry for myself whilst in pain and waiting for the next toilet session. Work even doesnt seem as daunting at the moment either!!! hope im not counting my chickens thoguh as i will be tapering off the pred for a second time in a week or so and last time around it all came flooding back and it was just like the day i was admitted to hospital. Hopefully remission will prevail this time around...

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 6/29/2009 8:22 AM (GMT -7)   
I was in remission for 8 years, I really didn't think about CD much at all. It was wonderful.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 5mg prednisone. Udo's Choice Probiotics (30 billion). Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 6/29/2009 8:39 AM (GMT -7)   
Yup, life as usual. CD only comes to mind when choosing food, popping pills, or filling out medical history forms.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 6/29/2009 9:12 AM (GMT -7)   
My Crohn's is in remission but I've been having a horrible flare with the arthritis.  It took 5 months to get it under control and even now that we are trying to wean me off of the prednisone, I'm hurting a lot worse.  I can eat a lot more than I used to, but I still have to watch it and still have times where I have bad stomach spasms, especially with all the new meds we'd been trying for the arthrits.  So, I don't forget that I have Crohn's.  I'm still tired and achy, but I've gone through periods where I felt almost normal. It will be different for everyone. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Miss3
Regular Member


Date Joined Sep 2008
Total Posts : 97
   Posted 6/29/2009 6:37 PM (GMT -7)   
I got off the pred in January and have been doing very well with just LDN ever since. I have 2 normal fully formed BM's most days, occasionally 3. I don't remember the last time I saw blood, which was a daily occurance for me. I never had pain so that wasn't an issue for me. Now I'm trying to get rid of the forty pounds of pred weight I packed on all last winter. Overall, I feel perfectly healthy and normal and love it!
 
Miss
 
36 yr. old homeschooling mom of 3
Diagnosed Crohn's 06/08, then UC 08/08
Asacol made me worse, reactions to Remicade
Currently taking LDN, feeling pretty good
Probiotic, Omega 3, Digestive enzymes


Butterfly Kisses
Regular Member


Date Joined Aug 2008
Total Posts : 32
   Posted 7/3/2009 10:08 PM (GMT -7)   
I think remission might be different for everyone. I have actually been in remission before (hopefully going to be in full remission again soon) and for me yes it it "business as usual", I can eat whatever, whenever, I go to the bathroom like I used to which is about once every few days (I know that's not most people's normal but it is and always used to be mine before UC) and I pretty much feel as normal as I can...whatever "normal" feels like ;) I still get a twinge here or there of discomfort but nothing like it was while flaring. I also have a case of a grumbly tummy occasionally...don't know if you know what I mean but my stomach is loud. It's like air shifting back and forth, up and down from my stomach to my intestines and it's growly like if I were hungry but I'm not actually hungry. For my friend who has CD, she considers herself to be in remission now, although she may not technically be in remission she says she's feeling better than before so she'll take what she can get. I have met quite a few people with CD or UC which blew me away that there were so many people I knew struggling with an IBD...I had no clue it was so common, but none of the people I know or have met have been in actual remission as I have been so lucky to experience. But I guess if you feel any better than you normally do that is a victory! Good luck in your journey back to normality!
26 years old...Diagnosed with Ulcerative Colitis in 2002

Currently taking: Colazal 750mg 3 pills 3x a day, Imuran 50mg 3 pills 1x a day, Remicade & B12 Injections.

Have taken: Asacol, Lialda, Entocort, Prednisone, Limotil, Nulev, Librax, Canasa & Rowasa.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 7/4/2009 12:03 AM (GMT -7)   
It varies, for me I do pretty well in remission. I have to take my Questran early each day, or I'll have diarrhea and pain. But if I take my meds right I'm good. I can eat pretty much everything (of course something are always a no no LOL). I can eat out, and live a fairly normal life.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 7/4/2009 6:28 AM (GMT -7)   
Whats remission? I think I had one day where I felt great and had a normal BM. It was actually scary as I was constipated and struggled through sweat and tears to have a BM.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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