Major Crohn's Research Centers? Personal Treatment?

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GDen
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Date Joined May 2009
Total Posts : 703
   Posted 6/29/2009 11:20 AM (GMT -7)   
What are the major institutions engaged in Crohn's research? I think I've seen and heard that the Mayo Clinic is a heavyweight. I also just found that the University of Colorado Hospital offers treatment for Crohn's. Any others you know of?

It'd also be helpful if these places had newsletters or such to keep up with new developments.

Also, anybody been treated at any of these places? Any benefits such as lower costs, cutting edge treatments, trials, etc.?

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 6/30/2009 1:12 PM (GMT -7)   

The link below shows the rankings of the top hospitals specializing in digestive diseases, many of which are actively researching Crohn's.

http://www.usnews.com/directories/hospitals/index_html/specialty+ihqgast

The three links below provide info on Crohn's clinical trials:

http://clinicaltrials.gov/ct/search?term=crohns

http://www.centerwatch.com/clinical-trials/listings/studylist.aspx?Catid=51

http://www.ccfa.org/trials/


gumby44
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Date Joined Nov 2007
Total Posts : 4100
   Posted 6/30/2009 2:28 PM (GMT -7)   
University of Chicago has a highly respected Crohn's group, but I have not personally been there. (Dr. Hanauer's group)
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/30/2009 2:32 PM (GMT -7)   
I can't give advice on which hosp but, I go to a major clinical trial center for rhuematology and I get the absolute best care there. I have my own doctor-not seen by one of a pool. And, this is the best, she returns phone calls herself-not the oncall person-not even her nurse. MY doctor calls me back the same day I call her-everytime.
So, I would say that

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 7/9/2009 2:12 PM (GMT -7)   
GDen: I been going to the U of Chicago for since 1978 and I can personally vouch for their expertise. Dr. Russell Cohen is my Dr. and when having surgery it's Dr. Hurst. Those have given me my life back (or saved it) at least 4 times. I would travel to a major medical center if at all possible for treatment; if that's not possible at least have a board certified GI and check where they went to school and did their residencies. It makes a difference!!!

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 7/9/2009 2:13 PM (GMT -7)   
GDen: I been going to the U of Chicago for since 1978 and I can personally vouch for their expertise. Dr. Russell Cohen is my Dr. and when having surgery it's Dr. Hurst. Those have given me my life back (or saved it) at least 4 times. I would travel to a major medical center if at all possible for treatment; if that's not possible at least have a board certified GI and check where they went to school and did their residencies. It makes a difference!!!

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 7/9/2009 2:29 PM (GMT -7)   
I had my bowel resection done at Cleveland Clinic. My GI refused to send me anywhere else. The surgery was a success, but I wasn't impressed with their patient care. The cost was cheaper than if I would have had it done locally. When I told them I wanted to make payments because I couldn't pay the full amount all at once, they cut my out of pocket cost in half without me even asking.
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 7/9/2009 5:32 PM (GMT -7)   
Mayo Clinic, Rochester, MN has the leading gastroenterology department in the country. Cleveland Clinic is rated second. Johns Hopkin is right near the top. As is Massachusetts General. Dr Hanauer is not only widely known in Crohn's research, he is well liked by his patients (Chicago as mentioned above). I've been going to Mayo for my Crohn's since 1976. I was Dx'd there, had my resection there. I'm a firm believer in Mayo, Rochester!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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