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Regular Member

Date Joined Sep 2008
Total Posts : 44
   Posted 7/1/2009 2:05 AM (GMT -6)   
Hi guys,

I was just diagnosed with almost certainty that my UC (have had for 5 years) has now turned to Chrohns and honestly as of this year, past 6 months, I have been admitted and hospitalized 2x's and I have never fully recovered from my flare after this last time. I am honestly hating this process as I'm sure many of you are as well. But I am starting to wonder, given it is really impeding my ability to work or hold down a any of you qualify for disability? I live in Florida, have any of you, especially Floridians gone through this process? I really don't have family and such to fall back on in times of monetary crisis and it bugs me to no end to have to think that I might have to actually do this but it is an option that my sister had encouraged me to look into as things are getting worse and affecting my functionality.

Anything you guys know would be helpful. I really don't want to apply but I kinda think I should...I dunno, it feels like giving up or something and saying that it's forever and I truly believe that I will get everyday I hope for better, not just in months or something long like that. I have to get past the stigma of feeling like it is giving up or something because I know it's's just recognizing where I am at.
27 year old female diagnosed with UC at age 22.
On Asacol 3x's daily.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 7/1/2009 6:07 AM (GMT -6)   
Sorry I can't help you, but I heard it is really hard to get as you need to be near death to qualify.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

New Member

Date Joined Feb 2009
Total Posts : 12
   Posted 7/1/2009 7:08 AM (GMT -6)   
It really depends on your complete situation. I have had Crohns for many years and was able to work full time. about a year ago I got much sicker and had my 3rd resection, which resulted in short gut syndrome. So now I'm on daily TPN to make up for all the nutrients I lose through my ileostomy. I am generally fatiqued because of the Crohns and nutirition issues.
I applied for SS Disability in January and was approved in April. I'm told I'm one of the lucky ones; nearly 60% are turned down the first time and must fight it.
There's a lot of paperwork involved. Having the support of your doctors is very helpful, for it is also their recommendations that carry weight on the decision. My GI was very helpful in the process because he felt I was unable to work anymore. When you originally submit your application, send as much of your hospital records as you can - anything that will support what you have been going through.
If you don't get approved the first time -- don't give up!. File your appeal right away. And if you really feel your case is solid, hire an attorney and get in front of a judge. 
Good luck!

a/k/a Laurie. Living with Crohns since 1968. Too many surgeries to count. Total colectomy with ileostomy. Took Imuran for many years, but recent flares have required biologics. Short bowel syndrome diag. 11/08 after 3rd (and last) resection.
Current meds:
Hydrocodone (PRN)
B12 injections monthly
TPN 12 hrs. daily
Iron infusions
Tincture of Opium
Donnatol (PRN)
Calcium, Vitamin D supplements

Lady G
Regular Member

Date Joined Sep 2006
Total Posts : 321
   Posted 7/1/2009 4:53 PM (GMT -6)   
My dad is like BostonCrohnie up above, one of the lucky ones. We are Canadian though so I know there must be differences, but he DID get a disability qualify. He can't work anymore really, hasn't for about 10 years, is on TPN, has the ostomy's and all that 'good' stuff. Walking for too long a distance of course gets hard when you have NO guts and aren't supposed to eat and all that. I think there was a bit of fighting involved indeed to get the status, but it worked and he got it. Lots of paperwork, yes, be prepared for that, and I do think he definate needed his doctors on his side too, have them help, or even ask them how to get involve in starting. Good luck though.

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 7/1/2009 5:37 PM (GMT -6)   
If you do a search, there have been some really good threads in the past about this. Good luck:)
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.

Veteran Member

Date Joined Aug 2003
Total Posts : 1017
   Posted 7/2/2009 2:15 PM (GMT -6)   
you need to know that if you are not approved the first time, it is about a 2 year battle to get before a judge to be heard. The best advice is to never start over, continue with the origial filing, because it affects your back pay.
Red (Lee Ann)
    'Be who you are and say what you feel...
     Because those that matter...don't mind...
     and those that mind...don't matter.'

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