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ParisChic
Regular Member


Date Joined Nov 2006
Total Posts : 31
   Posted 7/1/2009 6:51 PM (GMT -7)   
Hi fellow Crohnies!
I have been diagnosed with CD for almost 4 years now and have had many tough times, as I am sure all of you have as well. I am currently experiencing a new aspect of the disease that I had not really focused on previously because I was always working on getting physically stable. Well, I am happy to say that physically, I have been doing the best I have since being diagnosed, but I am experiencing the mental frustrations and anger toward having the disease more so than I have in the past. I go and see a therapist to help relieve some of the anxiety, but I am curious how others deal with their anger or if they feel angry? I do consider myself lucky, I could be in much worse condition, and I am extremely grateful that I am not, but I am just learning that I have this anger towards the disease and that I am angry at my body as well...any tips on how to overcome this feeling? Thank you for the help!

 
I am 22 years old and just graduated college. I have been diagnosed with crohn's since December 2006, and have had quite the time with it. I have tried numerous medications and am currently taking imuran, and remicade, along with a slew of vitamins and am just starting some supplements and a probiotic!
 
"The most exciting, challenging and significant relationship of all is the one you have with yourself. And if you find someone to love the you you love, well, that is just fabulous!" -Sex and the City


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 7/2/2009 3:47 AM (GMT -7)   
I don't like either, but it could always be worse like Cancer or Leukemia etc. I learned that I have this disease and it isn't going to go away and that I need to learn how to live with it. For the most part it is okay, I do get frustrated at times when I'm not feeling well but I just grin and bear it.
Good luck!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 7/2/2009 4:42 AM (GMT -7)   
when i started getting mad, which I do too -- I exercise, even if it's just a long walk. I'd prefer to garden but sometimes my body can't handle -- so my advice is sweat it out. It works for me. :)
strictures, crohn's, adhesions, endo. Pyoderma Gangrenosum.
LDN 4mg ~ Boswellia Serrata ~ Olive Leaf extract ~ SCD yogurt. Using silver sulfadiazine on Pyoderma . B-12 shots. Juicing veggies!


CP64
Regular Member


Date Joined May 2007
Total Posts : 69
   Posted 7/2/2009 6:27 AM (GMT -7)   
Hi!!  I make jokes about it!!  I have a permanent colostomy because of this disease so I really need to joke about it.  I do have a supportive husband and 3 wonderful children which help me cope--they also make fun (with me) of my bag and me pooping all the time.  When we are in public and my colostomy decides to start talking(releasing gas loudly) I blame it on one of the kids!!  I am only 44 - still have a long way to go so I figured I would not let the disease control me.  I take it one day at a time and keep on fighting!!  Good luck on finding your release and keep a positive attitude and crack a few jokes!! 

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 7/2/2009 6:37 AM (GMT -7)   
I am the same as Wolfie. When I am feeling angry I just think about the people I know that have life threatening diseases and live every day to the fullest even though I know they feel like crap. Every once in a while I have myself a pitty party and then I move on. I have too much to live for to let it get me down.


Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 7/2/2009 7:49 AM (GMT -7)   
I don't know if anger is my exact emotion, but I would say resentful. Exercise, even if it is very limited, has helped because I focus on something else. doing math puzzles works when i can't do the physical things.

The best thing for me has been going to my local support group. I can help others and vent with people I know and who know what it is all about. Coming here helps too....it seems that there is always somewhere ther when you are having a down day to help lift you up.

Like you, I feel lucky but sometimes that is not enough. Remember you are allowed to feel that resentment as long as it does not swallow up your other emotions (including the joy in simple things in life)
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/2/2009 8:00 AM (GMT -7)   
I think after having this disease for so long, the anger is pretty much gone now. I think you are wise though in addressing this thru therapy. I like Wolfie always try to remember that things could be much worse. I don't like what this disease has done to my body, but really, what can I do about it. Just try to take things one day at a time.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

omigrandma
Regular Member


Date Joined Dec 2008
Total Posts : 57
   Posted 7/3/2009 8:54 AM (GMT -7)   
I have had Crohns and Colitis for 30 years and as a result of that I am now facing all the side effects as well. I have tried so many meds among them Remicade, Humira and both of them stopped their efficacy after relatively short periods of time. I take Opium, Lialda, Pamine, Cymbalta, Flora Q and I suffer also from vicious migraines. But the problem now is Crohns Arthritis and Fibromyalgia that are knocking the wind out of me. The pain in my joints is exquisite. So when combining all that pain and 20 or so trips the the potty a day and then my nights where I sleep with 5 folded towels underneath me and 6 out 7 nights a week I generally need to wash the towels because the Crohns and Colitis haven't mastered the art of sleeping, I'm a mess. I am angry and in the mornings, I am disgusted with myself. Thank the Lord for the most amazing husband who loves me unconditionally or I don't know what I would do. I am also battling hypothyroism so that's another issue. All in all, I am angry. Every morning I work out and that helps. My kids, 3 out of 4 live near us and I have an almost 4 year old grandson that is close and that helps a lot. Even as I write this, I get sad. I really am I MESS!!! Darilyn
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