Are all Crohns patients big eaters?

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Wolfie40
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Date Joined Dec 2008
Total Posts : 947
   Posted 7/3/2009 5:12 AM (GMT -7)   
I seem to be hungry all the time and don't eat big meals as I hate the stuffed feeling but I do eat through out the day, munching morning, noon and night.
Is this just me or do any of you have the same eating issue. Are we just feeding the the monster inside of us?
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


beca123
Regular Member


Date Joined Jan 2003
Total Posts : 224
   Posted 7/3/2009 6:06 AM (GMT -7)   
Wolfie- Are you on Pred?
 
 
When I am on Prednisone of ANY DOSE! I munch....all the time. On everything. The first time I was on it I found myself munching on ICE CHIPS to control my bouts of hunger. It is a side effect of the Evil Pred. I am on it now and it hasnt effected me as bad, still does though. I drink ALOT of water to try and control the hunger I get. Sometimes I feel like I get more cravings when I am on Pred. I consiider Prednisone the "Devil Drug" its a joke between my mom and I. But regardless of side effects its keeping me alive so......I gotta EAT!!!!! haha good luck tapering.
 
 
 
If your not on Pred. I would say that eating is GOOD. When I am flaring, I dont eat as much because I know everything will hurt. I usually end up dehydrated and needing fluids so Id say eating alot of small meals is a GREAT thing.
Beca
 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 7/3/2009 6:36 AM (GMT -7)   
No I don't eat alot and I am in remission at the moment. Everyone always says how I eat like a bird. My husband and I can go out to eat and most times share the same plate. I think my eating habits have rubbed off on my poor husband.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 7/3/2009 6:52 AM (GMT -7)   
I could eat all the time. I wake up at night, because I am hungry. I do not eat alot at once, because then I throw it up (overly full), but usually eat 6-8 5 inch plates worth of food a day.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 7/3/2009 7:05 AM (GMT -7)   
There are days I could(and have) ate 4k calories plus, but then I have a few days every now and then where I just don't eat anything. So i dunno my eating is all out of whack, as long as I look and feel healthy I'm cool with it.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 7/3/2009 7:25 AM (GMT -7)   
I love food, but only eat small portions. I usally share a meal when going out to a restaurant or just order an appetizer. If I eat regular portions I am miserable, especially if I eat carbs. But on the other hand if I don't eat enough I feel weak and get light headed. My new weakness if anything that is spicy. I'm good just so I don't get a large portion.

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 7/3/2009 9:16 AM (GMT -7)   
I eat between 1500 - 1800 calories a day, which is usually an effort. It's mostly high calorie foods (yogurt, nut butter, cheese), so I don't actually eat a lot proportion wise. I don't usually have much of an appetite, unless I'm taking a medicine like prednisone or zyrtec.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 7/3/2009 9:41 AM (GMT -7)   
a lot of people with strictures can't eat at all except liquids or certain foods. I'm sure I'm not just speaking for myself when i say there are quite a few that don't have as many food choices, or ability to eat what and when they want. That's probably more the rule than the exception.
strictures, crohn's, adhesions, endo. Pyoderma Gangrenosum.
LDN 4mg ~ Boswellia Serrata ~ Olive Leaf extract ~ SCD yogurt. Using silver sulfadiazine on Pyoderma . B-12 shots. Juicing veggies!


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 7/3/2009 10:54 AM (GMT -7)   
I'm not on Pred, and should have said binge eating without Pred.
I eat alot of small portions as i don't like the feeling of being full. It seems like i can eat something every hour. The bad news is that I can't gain any weight.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 7/3/2009 11:10 AM (GMT -7)   
I used to eat  A LOT. Seriously. I was up to 220lbs at the age of 22..and Im a female.  During my last flare I went down to 173lbs (my lowest weight....ever).  Was put on Prednisone 100mg for over a year..gained back 60lbs.  Im a binge eater, with or without the prednisone.  Just recently joined Weight Watchers, and a gym.  Im down 10lbs in just over 3 weeks.  I really dont know why I used to binge eat...I knew it would make me sick, and give me horrible D....I guess I just didnt care.  I couldn't imagine how heavy I would have been if I didnt have Crohns "helping me drop the weight".

Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/3/2009 11:27 AM (GMT -7)   
I don't eat very much. Sometimes I go through phases where I snack a lot, but most of the time I am sort of scared to eat... I just try to make sure I keep enough weight on me for the bad times. I tend to lose 10 lbs in the hospital, so I make sure I can handle that. I'm a pretty small person and 10 lbs is a big % of my weight. So I force myself to keep it up.
--female dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--Compounded budesonide 3mg/daily, Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 7/3/2009 1:23 PM (GMT -7)   
I graze all day. I can't eat large amounts in one sitting or I throw it up. I don't go to places that are "all you can eat for..." because I normally only eat a very small amount at any sitting.
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


beca123
Regular Member


Date Joined Jan 2003
Total Posts : 224
   Posted 7/3/2009 1:35 PM (GMT -7)   
wolfie--I wish I could eat all day and not gain any weight. I cant seem to get rid of it. Even in a flare. Im not fat. Only 114 lbs. and 5ft 2 in tall just cant shed the pred weight. and i dont eat that much.
Beca
 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 7/3/2009 2:34 PM (GMT -7)   
I've actually always worried about the example I set for my daughters. I don't eat regular meals, I tend to pick through out the day, and then I will eat dinner with the family, but I don't eat much. Since I don't eat fruit or veggies, it doesn't look like a healthy diet and that just sets a bad example for teenage girls. But I always cook a veggie with dinner and have lots of fruit in the house. Some days it will be 3:00 and I will realize I haven't eaten all day, but I just wasn't hungry. Then all of a sudden I can be ravenous. I try to only eat things that I know won't "harm" me, but it isn't always easy. The hardest times are vacations, when the schedules are all mixed up and you have to eat at certain times or you might not eat again for hours. I hate to eat if I am not hungry, but I'm always afraid to not eat if food might not be available when I want it, cause being hungry just makes my tummy really upset too. After 21 years, I'm still learning how to deal with this DD.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 7/3/2009 4:12 PM (GMT -7)   
I've always had a HUGE appetite, and I think I do eat alot. I snack a lot too. I've never had a problem with weight gain until I hit 35. Could always eat whatever I wanted: biscuits and gravy, cookies, chips etc... Now, I'm 38 and my metabolism has slowed WEIGH down. I'm the heaviest I have ever been even after just having a resection. I'm 5'7" and weigh 166 right now. I would like to be around 150. I am on prednisone right now--trying to taper and it's not goign so well, but I still eat quite a bit when I'm not on prednisone.

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 7/3/2009 5:04 PM (GMT -7)   
I never eat, except when I am on pred hehe..

I don't like the feeling of being full so I try to eat small portions but I don't eat much.

I feel it is not worth it to eat, all the pain that follows :(
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 7/3/2009 6:57 PM (GMT -7)   
Wolfie--For several weeks I HAD to eat every 2 or 3 hours. I was down to 90 lbs. At 105 now and finally don't need to eat in the middle of the night, I still need to eat around 6am and then again before 9am, 1130am, and then at 1pm. If I don't have a real dinner by 8pm, I'm not a very nice person. Need an afternoon snack, vitamin water before and after walking. For a while, my body was either soaking up everything I was eating or sending it right back out.

It's been mentioned on this conference before but I highly recommend the book Cooking Well for the Unwell by Eileen Behan. She has all sorts of strategies for any issue you can think of (low salt, high protein, no appetite, 100 calories an hour, low sugar, no lactose, low fluids, etc. ). She explains why it's difficult to eat and maintain weight. I got the book at our library and then ordered from amazon. It's fantastic and really helped me add nutrition and calories in unexpected places. For instance, adding a mashed banana, egg, and molasses to pancakes gives more potassium, protein, and iron.

Finally, while everyone seemed to be pushing me to eat, it was my GI who said repeatedly--don't worry about gaining weight. Eat as healthy as you can, stay hydrated, and the weight will come. High protein and lots of fluids seem to be key.

Good luck.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


tiaeight
Regular Member


Date Joined Sep 2006
Total Posts : 237
   Posted 7/5/2009 1:22 AM (GMT -7)   
I am always hungry! Yet, I can only eat 5-10 bites at a sitting, 4 times a day. My mind wants more but my body says no!

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/5/2009 5:54 AM (GMT -7)   
My secret to being a fat crohnie...ice cream (the good stuff you know at least 22 grams of fat in each 1/2 cup serving) in my 3 times a day milk shake and sometimes I would throw some creamy pb in it. Thank goodness I am not lactose intolerant, but now I am struggling with how to eat more normal food (like a salad) without bleeding.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 7/5/2009 9:06 PM (GMT -7)   

Eating was a sore subject literally painful when I was really bad a few years ago..It was liquids to low residue with no appetite, always nauseated, and my weight was in the toilet literally..I think everything went out of wack at that time..I have to watch it now..Predisone has brought back my eating & a ton of weight..I binge too much on stuff I now better not to, and I still will have pain and a few days of nausea.

 

Cindy

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