Did you know that soda crackers and ginger ale is the cure to CD?

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beca123
Regular Member


Date Joined Jan 2003
Total Posts : 224
   Posted 7/6/2009 8:13 PM (GMT -7)   
Yes, apparently we have nothing to worry about because according to one of my nurses the last time I was hospitalized for my Crohns bleeding out, that is the cure.
 
I went to the ER because I had passed out from blood loss. This was my first experience in an adult hospital and my mom couldnt stay at night with me because I was sharing a room. Well I was on a clear liquid diet, just had a blood transfusion and was on IV pred(100 mg every 6 hours); Flagyl: Cipro and Dilaudid(for pain) I was getting the pain meds as soon as I could because I was hurting so bad. I could have the Dilaudid every 6 hours and I had gotten it right before I went to bed and woke up at about 1130 in severe pain again, still bleeding alot. So I called the nurse in and she was EXTREMELY RUDE, are you sure you need the Dilauded because its night time and you can just go back to sleep without it, I could give you some Tylenol....I was in tears and hurting VERY BAD!!! So I was like no, I am not going to be able to go back to sleep with just some Tylenol, the pain is too bad. So.......she said well my husband has Crohns and when he isnt feeling well or is hurting he just eats some soda crackers and drinks some ginger ale and the pain goes away, would you like me to get you some?
 
I could not believe it. I was so upset. People just amaze me. Am I the only one who has experiences with people who "know someone who has an extremely light case of Crohns" and the assume that everyone elses is the same and we are just "overreacting"........????
Beca
 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/6/2009 8:27 PM (GMT -7)   
Grrrrrr. I'm sorry, Beca. That's just terrible.
Co-Moderator Crohn's Forum.

New meds thread


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 7/6/2009 9:25 PM (GMT -7)   
Priceless. Soda crackers. If we had only known!!!!

When I was hospitalized for my crohn's flare/miscarriage, I asked for pain meds. I told the nurse that the pain was excruciating and preventing me from sleeping, etc - similar to you. "That's just crohn's, honey," she said to me. My husband says lightning bolts shot from eyes at that point.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds (ah, those were the days, eh?)
Tried Humira. Failed. Tried Gluten Free. Leaning towards Failure there too.
Currently on:
Cimzia (started 2-12-09) Again, not helping much, if at all.
Probiotics, Digestive Enzymes, Forvia vitamins, and calcium chewies
Feeling a bit jaded lately, but trying to keep my chin up.


dt19&99
Regular Member


Date Joined Apr 2009
Total Posts : 174
   Posted 7/6/2009 9:29 PM (GMT -7)   
Wow... I normally like Crown Royal with my ginger ale but may have to give these magic soda crackers a shot... Everybody I know had no clue what Crohns is so if it comes up I'm caught up in trying to explain it... And the many symptoms. I guess some people don't realize that everyones different and the pain and symptoms vary quite a bit. Hope you feel better

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/6/2009 9:34 PM (GMT -7)   
I struggle with the question of is it worth the assult charges?
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/6/2009 10:26 PM (GMT -7)   
Man, some people should not be in the field of nursing! Unfortunately, there's way too many like her.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 7/6/2009 10:31 PM (GMT -7)   
Most of my nurses were great but there were a few who definitely weren't. One was quite reluctant to give me dilaudid when I was in pain. Another said if I had so much as a drop of alcohol I would be back in the hospital right away.

littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 7/7/2009 2:33 AM (GMT -7)   
Mmm what a shame Im not keen on ginger ale. Oh well no cure for me.
Diagnosed 2005.
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol


goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 7/7/2009 3:35 AM (GMT -7)   
Forgive me but i don't understand ...didn't your doc order the pain meds? Since when is it the job of a nurse to over ride a docs orders or decide it's not indicated?!?!? I would have reported her...
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009....I also have Graves disease/Hypothyroidism and psoriasis
Current meds: 1200mg xifaxin, 3mg entocort, Humira (started 3/23/09), 150mcg synthroid, 20mg aciphex
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levaquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....
 


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 7/7/2009 3:55 AM (GMT -7)   
Magical crackers!! I'm cured then as I eat them.
I would have reported that nurse as she has no buisness telling you what you need or don't need when the doctors orders said that you may have pain meds.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 7/7/2009 5:02 AM (GMT -7)   
So we should all go out and buy stock in those little keebler men with the rise in Crohn's diagnosis we can make a fortune!

I had an Xray tech tell me once that there was no way I had a broken rib because I hadn't fallen. I actually got into a long debate as to how and why I most certainly could have a broken rib, osteoporosis. But, of course, what I should have said came to me after I left the room. Which was, "where did you get your medical degree?"

I'm sorry you had such a bad experience. I hope you are feeling better.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 7/7/2009 5:32 AM (GMT -7)   
So sorry Beca. Thanks for sharing that. it confirms my fears for Not going to an ER!!
Mary Lynn


dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 7/7/2009 7:16 AM (GMT -7)   
I just got out of the hospital and I am a nurse with CD. I didn't get much sleep b/c of the errors I had to stay on top of. won't go there but let's just say I didn't need that extra Prednisone they were trying to give me or the bloodsugar check that was for the person next door! But in response to your question on if someone knows someone else with Crohn's......
My husband didn't believe I had it b/c I wasn't losing weight! Everything he read and the people he knew who had it were very skinny. Plus I tend to not complain or put things off, which I just learned is the wrong thing to do. It seems the people I know don't know anything about it (even being a nurse I'm contiually learning). So with me it was that no one believed it was a big deal or so bad to have, even tho I felt like crap. I'm learning it is my own journey and to listen to my body and do what I need with no one else's thoughts or opinions.....
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 
 
I live by faith and not by sight....


J-
Regular Member


Date Joined Jun 2009
Total Posts : 86
   Posted 7/7/2009 7:20 AM (GMT -7)   
they tell us its a personalized disease and then turn around and say ignorant things like that. blows my mind. im sorry you had to go through this. have you ever tried ginger when your tummy's twisted? it dose help to calm it down a little, just dont think it would help when your rushed to the the er like you were. if you do try it use crystallized ginger.


-J
diagnosed with crohn's 6-15-09 at age 23.

meds:
asacol: 400mg. 3 3X a day
prednisone: 10mg. 3 in the morning

supplements:
multivitamin, cal/mag, probiotic, fish oil, vitamin C, digestive enzymes, rice protein. looking into l-glutamine next


Squattie
Veteran Member


Date Joined Jul 2005
Total Posts : 669
   Posted 7/7/2009 8:02 AM (GMT -7)   
cry So sorry for your experience.

Luckily, I always look so pathetic when I go to the hospital that there is never any questions re pain relief, etc. They just look at me and figure I need it whether I'm groaning or not. I'm skinny and have huge eyes that make me look like a deer caught in headlights.

Actually, one time they gave me 2 percs every 4 hours. I didn't even ask for them. On a bad day I can take about 1 vicodin tablet. That's all I can handle. I'm not used to percoset. Anyway, I fell into a deep sleep and the nurses had to slap me awake and drag me up and down the hall to walk and wake me up. They said I was sleeping to heavily. Duh! I told them to switch me to vicodin and only give me one pill.
.....Squattie


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/7/2009 10:15 AM (GMT -7)   
Thanks for sharing that experience... I am sorry you had to go through it, but it is good to be able to "laugh" about it. I hope you were able to submit a complaint! I sure would have been angry and in tears. It's amazing the ignorance of some.  Hope you are feeling better!

 


--female dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--Compounded budesonide 3mg/daily, Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 7/7/2009 10:55 AM (GMT -7)   
MMMNAVY said...
I struggle with the question of is it worth the assult charges?

Um-HMMM!  I'd have *soooo* wanted to throw something.  devil
 
 
Soda Crackers?  Soda Crackers!  AND Ginger-Ale!  Who knew?!  Wow!  This is great!  Now we can all spontaneously cure ourselves and put health insurance, doctors, medical professionals and hospitals out of business with Soda Crackers and Ginger-Ale.  Woot! 
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  (asacol, hi-doses pred, colazol, 6MP=jaundice, remicade)  No remission. 
5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's. 
Changed maintenance med to Methotrexate (MTX) and am remaining manageable with 2tabs Immodium and a probiotic capsule every 12hrs.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 7/7/2009 2:44 PM (GMT -7)   
So soda crackers and ginger ale will cure my fistulae?? I need to call your nusre right away and ask her how I can do it -- do I crush up the crackers and stuff them into the fistula and then poor giner ale in with a straw?? (ouch!) Maybe make a slurry of crackers and ale and apply it to abscesses??

Just plain nuts.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2688
   Posted 7/7/2009 3:35 PM (GMT -7)   
Oh wow, I'd ask her to call the doctor and let him know she was changing my treatment oto crackers and ginger ale. See how he took it. Unreal! I had a bleed out just like you, it's a very scary experience. The last thing we need is a nurse, who's supposed to be caring for us, to tell us something like that!!

If only it was that easy, we would have all been cured long ago!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.


beca123
Regular Member


Date Joined Jan 2003
Total Posts : 224
   Posted 7/7/2009 5:24 PM (GMT -7)   
You guys have definately helped me laugh at an irritating situation. My own sarcasm just made me more angry when I thought about it. So thank you all. And I did report her. And when I got the "how is our hospital doing survey" I was COMPLETELY honest with the whole thing, gave her name and everything. I wish I had had some of your funny comments when I was in the moment I was just hurting too bad and was too upset. But thank you guys!!!!!
Beca
 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/7/2009 8:30 PM (GMT -7)   
LOL it is ok honey, I cannot even spell assault correctly...and I have a masters in CJ
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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