its been a while again,

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mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/7/2009 7:39 AM (GMT -7)   
Hello, I know I cannot keep regular contact with this forum, but I have to tell you about my new symptoms. For the last month or so, I have had lots of blood in my stool, now its red, but its embedded right inside my stool, from the beginning to the end of it, I have had hemmorhoids for years, and they have been inflamed this is totally different.
 
My bowel movements, are lose and clumpy, at the same time, and I usually go about 5- 15 times a day, Yes I am drinking plenty of fluids, and yesterday, I had clumps of bright white stuff in my stool.
 
I really am sick of being sick, and they still dont know whats wrong with me, the most recent newest symptom would be a skin rash, kind of like hives, and I have not eaten anything different.
 
I'm still waiting to hear from the gi, to see when my appointment will be, I really hope I dont have to wait another 6 months for this one, ugh
Apparently I should have a scope down the throat done and have a biopsy done, to see what the problem is, No doctor has ever ordered one of these, except for the last doc I saw in emerg, who really seemed to care.
 
The contractions have not stopped, the distention is still there, especially when I eat the smallest amount, the weakness is still there, and I am still losing weight :( , and my stool is very foul smelling ugh!
 
I really am beginning to think, that I should wait until Im on my death bed, before they will actually do something extensive and find out what is wrong with me, this is really really depressing, it sucks.
 
Anyways, thought I would give you guys all an update on how I was doing, and that I am not getting any better:( I really wish they could find out what is wrong with me, I feel like I am wasting away, and there is nothing that can be done........
 
I also should mention that I had a rather serious surgery when i was 2 weeks old, I was born with a fistula between my wind pipe and my trachea, and they had to graph the hole, I almost died for sure, I dropped a considerable amount of weight in two weeks, and they almost lost me, because I could not keep any food down at all, Im wondering if this might have some after affects, now that I am older, not sure, just thought I would throw it out there....
thanks again, everyone, for your eyes and input!
take care all
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/7/2009 9:25 AM (GMT -7)   
Did you ever get insurance? If so, you should ask about a pill cam test. This is a camera pill you swallow and it takes pictures all the way thru your system. Sounds like Crohns to me, and this is one of the best test used to diagnose Crohns. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/7/2009 10:02 AM (GMT -7)   
Thanks Nanners, I live in canada, and im pretty sure that the pill cam is covered so I dont need insurance, I really hope that its not crohns, does crohns involve a skin rash too? I didnt think that it did, I have lots of other symptoms too, but I believe that they are all connected with whats going on with my intestines, and my whole system.
I'm going to suggest a pill cam, from the gi, if i ever get to see him.
thanks again, and take care
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/7/2009 10:23 AM (GMT -7)   
Yes there are some folks who have rashes or even worse skin conditions related to Crohns. You would be surprised in how much this disease effects your whole body. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/7/2009 10:25 AM (GMT -7)   
what about acne? I have had severe acne since I was 11, and the only thing that helped it was acutane, it is pretty bad right now, and im thinking its because of whatever this stupid ailment is that I have......
sorry for all the questions
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/7/2009 11:06 AM (GMT -7)   
You don't list any drugs being used, but pred and other cortisone type drugs can cause acne. You could try topical distilled witch hazel on it.

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/7/2009 11:15 AM (GMT -7)   
I have not been diagnosed with anything, therefore the only drugs I am on, are prozac, lithium, and a stomach acid pill, I have had severe acne since i was 11 and now im 31 :(
but thank you
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 7/7/2009 2:05 PM (GMT -7)   
White in the stool sounds like celiac, and accutane has been associated with causing Crohn's. Please, try these two links:

http://www.accutanenews.com/crohns_disease.html

http://www.csaceliacs.org/celiac_symptoms.php
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/7/2009 3:43 PM (GMT -7)   
Topical witch hazel often clears up minor acne and seems to help with scarring. I have also seen people suggest apple cider vinegar (I expect that plain white vinegar would do the same thing) applied to the affected area. However, some people get red skin from ACV. I would guess that it depends on how raw the skin is there. Another home remedy is baking soda applied as a paste and used as a mild scrub. Be sure not to scrub very long or very hard. A gentle circular motion for about 3 - 4 circles is enough. Your mileage may vary.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 7/7/2009 3:45 PM (GMT -7)   
I hope you feel better soon, don't give up yet.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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