I agree with you both. I have found it incredibly helpful to learn that I'm not alone and that there are real people out there going through the same things I am. We need support. If you're anything like me, in my own little world, nobody else has Crohns or Colitis or any other bowel issue to that extent. They can't be expected to understand why I'm obessessed with my bowels and why I have all these weird symptoms and why I have to think about my bowels 24/7. My husband has been wonderful, and goes with me to the support group I found that tries to meet on a monthly basis. He also goes to all my doc appts and takes me to the ER when I'm curled up in a ball in tears because the pain in my stomach is so severe that I can't really do anything else. We all need each other, even if just to vent.
Here's to our bowels! - cheers!!! :)
Diagnosed 13+ years ago.
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread. No longer isolated in my ileum, now from stomach down to rectum. Currently have C-Diff.
Current Medications for the Crohns: Humera 40mg injections every other week, Imuran 150mg, 3xday, Levsin, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on: Asocal, Pentasa, Cipro, Prednisone & Entocort