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Bible
Regular Member


Date Joined Jul 2007
Total Posts : 188
   Posted 7/8/2009 4:59 AM (GMT -7)   
I started Cimzia about 4 m,onths ago-  How many are on this med?  How is your experience with it?

Benisone
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 7/8/2009 5:30 AM (GMT -7)   
Cimzia has been working, but here are some concerns; initial muscle fatique, shortness of breath. All in all I am happy, I take it along with aloe vera and I am eating normally. It has a time limit, just around the time for next your shot. The effects of the previous dose starts to wear off. So you can't have any lapse in doses...

potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 7/8/2009 7:59 AM (GMT -7)   
Just started it myself last week. I am allergic to Remicade. Took Humira for just over three years with great success. Lost effectiveness to it though about three months ago. The doctor put me back on prednisone (grrrrrr) and now the Cimzia. So....I am waiting to see how this new drug will work. I am being hopeful.

vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 7/8/2009 8:51 AM (GMT -7)   
I'm getting my third round of shots tomorrow and I too have the muscle aches, sometimes unbearable, but only in my legs, no other symptoms tho.  I still struggle with the obnoxious gas but the bloating is better.

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 7/8/2009 8:56 AM (GMT -7)   
I stopped Cimzia at exactly 4months in. I initially held out some hope because I did start to feel a little better after the loading month... but then I starting skidding back downhill.

I hope you are faring better!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds (ah, those were the days, eh?)
Tried Humira. Failed. Tried Gluten Free. Leaning towards Failure there too.
Currently on:
Cimzia (started 2-12-09) Again, not helping much, if at all.
Probiotics, Digestive Enzymes, Forvia vitamins, and calcium chewies
Feeling a bit jaded lately, but trying to keep my chin up.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/8/2009 9:48 AM (GMT -7)   
I was on it for a year in a clinical trial and it kept my crohn's in remission.  The only reason I stopped it after the trial ended is because we were hoping to find something that helped more with the arthrits (although I'm having to take Humira, methotrexate and prednisone to keep it at bay right now...so none of the other biologicals worked any better for me). 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 7/8/2009 10:33 AM (GMT -7)   
I'm allergic to Remi and Humira had no effect so Cimzia was pretty much my last hope! I've been on it for about two months now and it seems to be working really well. So well, I went from having D to C! I now have to take Miralax every day to keep regular which is reminiscent of before I got diagnosed. I'm hoping to start tapering the pred and maybe the 6mp soon.
 
I started to see my symptoms return about 4 or 5 days away from my next shots so that sucked but otherwise things are going well.
Laurenne, 24 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002
On: 6MP, 20mg Prednisone, Zoloft, Lialda and Imodium
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction


poohbear37
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 7/8/2009 2:44 PM (GMT -7)   
I am starting cimzia as soon as insurance oks it. I had a lupus-like reaction to remicade and thye would not let me try humira due to the similar make-up of the drug. I am so hopeful that it will work for me! I have been sick for almost 3 months now and i need to gte my regular life back!
Crohn's Disease - re-diagnosed June 2009
Ulcerative Colitis - diagnosed in 2000

26 years old/female
Asacol, Cymbalta, Nexium, Cipro, 40mg prednisone...

Bad reactions to: remicade, lialda & 6mp


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 7/8/2009 5:07 PM (GMT -7)   
I heard Cimzia shots hurt--is that true? How bad? I don't have a problem with shots, needles, or moderate pain, but am just wondering. Are the shots given in the top of the upper leg?

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/8/2009 5:34 PM (GMT -7)   
I'm also on Cimzia - I guess at about 5 months now. I think it is working... I've gone back and forth between being hopeful and cursing it, though. However, other than Saturday's weird pain/fever, I've been doing fairly stable/well. I think I might start tapering off the budesonide suppositories now and just see how it goes.

The shots are not painless, but I'd say more "uncomfortable" rather than "painful." I do bruise afterward, but it's also getting better as my nurse gets more in the habit of giving the shots. The fuild is thick (like corn syrup) and the needles are on the bigger side. Personally, I think Humira's sting is worse, but that's just my opinion.

I have no other side effects from Cimzia (just the bruising). No headache, body ache, nothing...
--female dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--Compounded budesonide 3mg/daily, Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/9/2009 9:37 AM (GMT -7)   

I agree with sr5599, the Humira pen burns way more than the Cimzia does.  I thought the Cimzia burned until I tried Humira, then the Cimzia was nothing!  =) 


Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


poohbear37
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 7/9/2009 10:52 AM (GMT -7)   
do you guys get the shots administered at the doctors office or at your home?

does anyone do it by themselves?

i think my doctor mentioned sending a home health nurse.
Crohn's Disease - re-diagnosed June 2009
Ulcerative Colitis - diagnosed in 2000

26 years old/female
Asacol, Cymbalta, Nexium, Cipro, 40mg prednisone...

Bad reactions to: remicade, lialda & 6mp


moedon1
Regular Member


Date Joined Jun 2005
Total Posts : 139
   Posted 7/9/2009 11:00 AM (GMT -7)   
I got taken off of the Cimzia yesterday. I'm back on Humira(which I had been on for 2 years until it stated to loose its effectiveness.) The Cimzia seemed promising at first. After the two loading doses I had two whole days with only 4 bms! I was so thrilled. I have been flaring for close to five years. Humira was the best up to that point. The remicade seemed promising as well but I developed pneumonia(never had it before)and was hospitalized for 6 days. Prior to that was methotrexate, asacol. entocort, pentassa. All of these including the Cimzia have been in conjunction with prednisone. The reason for stopping the Cimzia was the side effects. Abdominal pain was brutal, muscle fatigue minimal, minimal headache. The bigger issue is that like many others here I have had chronic fungal infections particularly thrush/Candidas. Nystatin has always done the trick for me and I have gotten used to the routine. After my third dose I develpoed a rash on my back and arms. I have for sometime had a similar rash that we diagnosed as Grover's disease and the side effects of prednisone. I was sent to see an infectious disease Doc. Who pointed out a couple of small papules on my leg arm and jaw. tehse were not like the others(possibly Hepatitis). He did cultures and the diagnosis is that the Candidas has spread throughout my system(didn't klnow it could)a suppossedly to my liver. Lver biopsy coming. I am telling you that I have had some very good luck with some of the Crohn's meds and I have had some bad luck. I no way think this reaction is normal for most people. The Cimzia is also like the Humira which to date has worked the best for me. Teh problem for me is that the Cimzia was not lasting more than three days and with the shots spaced a month a part there is no way I could do it. At least the Humira I can inject myself at home 1x weekly. I get about 3-4 days from that. It is very easy to find all the reasons that we don't want to take or med or why we may be nervous. I have been this way for some time but the reality is I'm not able to do anything without these meds. I guess what I am trying to say is that the previous posts have mostly had success. Simplicity the company that distributes the med. give you a handy log book or binder. In it there are pages for you to chart you symptoms and reactions. Don't hesitate to call the nurses at Simplicity. They are very nice and more than willing to help. Make sure to call the doctor if you find something or experience something that you don't think is right. In my case the doc and I both agree that for some reason the Cimzia enhanced what was already there ie the Candidas, hepatitis and so on but please keep track of these things it is important. If it's not working the way the doctor says it should call them.

Good luck and please let us know how you are doing.

P.S. Humira pens burn much worse than Cimzia. I barely felt the Cimzia


Donna
 Formal diagnosis 3/2006, IBS 1992, Degenerative Arthritis Facet block and RFA, Seizure Disorder, Severe Carpal Tunnel both hands, SVT arrythmia, 2004 cardiac Ablation
Cushings Syndrome(thanks Prednisone), Asthma, Multiple Laps for ovarian adhesion to bowel, C/5 & 6 disc herniation - plate with screws, resistant to anethesia/most pain meds.  Chronic fungal infections.
Multitude of Meds. Have tried most Crohn's meds.  Gall bladder removal and Intestinal Lap. June 08.- Intestinal blockage July 08 moved on from on Humira..now on Cimzia.
 


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 7/9/2009 12:14 PM (GMT -7)   
My nurse is so good at the cimzia shots I feel nothing. The Humira shots hurt infinetly worse than Cimzia. I had a nasty briuse one time because he hit a capillary but even that didn't hurt at the time.
Laurenne, 24 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002
On: 6MP, 20mg Prednisone, Zoloft, Lialda and Imodium
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 7/9/2009 9:01 PM (GMT -7)   
I find the Cimzia less painful than Humira but I did like the epi-pens better than these syringes.  If you leave the Cimzia out for about 30 min. it hurts less and is slightly less thick.  I do get a rather dramatic reaction at the site of injection - redness about 3 inches across that takes a couple of weeks to fade?  Has anyone else experienced this?  I'm wondering if it's my skills administering it because I'm giving the shots myself after being shown how by a home health nurse.

moedon1
Regular Member


Date Joined Jun 2005
Total Posts : 139
   Posted 7/11/2009 10:04 AM (GMT -7)   
Probably an injection site reaction. You need to let the nurse know when this happens so that she can log it. Make sure that if it is combined with a fever you need to go to the hospital and don 't
Donna
 Formal diagnosis 3/2006, IBS 1992, Degenerative Arthritis Facet block and RFA, Seizure Disorder, Severe Carpal Tunnel both hands, SVT arrythmia, 2004 cardiac Ablation
Cushings Syndrome(thanks Prednisone), Asthma, Multiple Laps for ovarian adhesion to bowel, C/5 & 6 disc herniation - plate with screws, resistant to anethesia/most pain meds.  Chronic fungal infections.
Multitude of Meds. Have tried most Crohn's meds.  Gall bladder removal and Intestinal Lap. June 08.- Intestinal blockage July 08 moved on from on Humira..now on Cimzia. .Off the Cimzia 7/8/09.  Back on Humira.  Systemic fungal infection.  Waiting on Liver Biopsy & Hepatitis results.


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 7/13/2009 10:35 AM (GMT -7)   
moedon1, your message kind of left me hanging here girl! No fever involved but I must say this is the first time I've ever had a reaction like that and I've given myself plenty of injections over the past 30 years!

barnette
Regular Member


Date Joined Feb 2006
Total Posts : 79
   Posted 7/13/2009 5:50 PM (GMT -7)   
Hey Everyone! I started Cimzia today. I don't know about any reactions so far but the shot was not as painful as Humira. I so like the pens from Humira better though. I don't like actually seeing the needle in Cimzia.LOL Please pray that it works for me because this is my last Tnf blocker!! I think of you all often and hope that you all find something that cures you or at least helps. Keep your fingers crossed!

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/13/2009 7:08 PM (GMT -7)   

I'm here for suggestion:

I too was on remicade.. my last infusion was 6 weeks ago. Last Nov started feeling the lupus like side effects as well (horrible, un dealable arthritis pain.. to the point my knees and wrest have become deformed)The doc put me back on Imuran and waiting to start Humira. Do you think I should re think my option and ask about Cimzia? which is better?! better yet... which one will I feel a faster relief, and get my life and personality back?


24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.thinking of taking MTX

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