Off Remicade,when will I feel a releif with the arthritis?

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Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/9/2009 2:34 PM (GMT -7)   
So I guess I've got the anitbodies from the remicade. My arthritis is just getting to me, I can't move at night. I get very tired like I'm in a fuzzy haze as if I took morphine (but haven't taken any pain pills)I can handle sleep at night from the pain. I've tried numrous arthritis meds, none of which works or flared my crohn's up. The doc stop the remicade treatment it's been a week since I've missed my apt for the infusion, has put me back on Imuran and now awaiting to start Humira. Does anyone have an idea when I can look forward to some releif and my life back (not just my life but I've changed as well, never in the mood to talk, feeling sorry for myself sometimes,grumpy, ect...I use to be the outgoing,love to try different things person) I hope someone has some insight for me.
-Hope everyone is having a pain free day!
24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.thinking of taking MTX


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 7/9/2009 6:51 PM (GMT -7)   
Hi,

MTX will help your crohn's and arthritis. Are you sure you don't have remicade induced Lupus? The joint pain from that is like no other. When it happended to me my rheumy put me on pred and MTX.

Take care,
Julia

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 7/10/2009 9:19 AM (GMT -7)   
I know exactly how you feel. about 3 years ago, I developed worsening joint pain to the point of barely being able to walk. Well duh -- I figured out it go much worse in the 7-10 days following Remi infusion. Since my GI was no help (he claimed to have never heard of antibodies), I set about going to a rhuemy on my own who agreed with my thoughts. So I quit the Remicade and found a new GI at a large teaching hospital who rolled his eyes about the antibodies. I think he nearly fell out of his chair at the other GI's comment! Anyway, it took me a good 6 weeks till I started feeling relief. Also did a short corse of prednisone at about 4 weeks post Remi. I have more CD issues now without the Remi but I do have my mobility and life back.

That said, does your doctor plan on doing any other tests to check for other causes? Or to check for antibodies? I would insist on that if the pain doesn't start to get better soon.

Keep us updated!
 


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/10/2009 10:08 AM (GMT -7)   

hi Lamb61,

I think my Gi doc is the same as your old doc. I went in last friday, and told her about the research I've done . How remicade might have caused antibodies, which may be causing the arthritis. She just agrred, no test nothing. So I really don't know if it's actually the antibodies, someone else said it could even be remi induced lupus. I'm thinking i need a new GI. But they are so hard to come by here in Montreal,Ca. The doc took me off remicade, put me back on Imuran and now waiting to start Humira. Hope these 2 meds will help my arthritis. Now my CD is out of control from not having remicade. I rather flar up of crohn's then these arthritis pains that are like no other.

I will keep this thread going as long as possible.
Thanks for much for your reply!
 
 
I've spoken to the doc about MTX but she knows I want to start a family in a few years (getting married soon) so she wouldn't even talk to me about MTX, she just said 'NO' and put me Imuran. Have you tried imuran before MTX?

24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.thinking of taking MTX

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