How many of you see a dietician?

New Topic Post Reply Printable Version
39 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/9/2009 7:38 PM (GMT -7)   

I was just called by my GI’s nurse who has been checking up on me weekly for the last few weeks. She asked about fatigue, iron infusions, BM’s, pain etc…. and then asked how my diet was. I told her I am trying to stick to the SCD diet (operative word: trying), and she asked if I would be interested in seeing an IBD dietician. She said she would send off a referral for me.

 

I am very keen to know if anyone else has seen an IBD dietician, and what they did for you. I was wondering if the dietician would help me with meal plans or weekly diet plans, shopping lists etc or if she would just give me more advice on the SCD (the nurse said the dietician would probably be very knowledgeable in the SCD arena). I’ve just never seen a dietician before so this will be very interesting.

 

No idea how long until I see her though! Any experiences with IBD dieticians?

 

 

  turn   

 

 

 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/9/2009 8:40 PM (GMT -7)   
I think a dietitian is an important part of your care team, Phoebe. I think you should go for it :-).
Co-Moderator Crohn's Forum.

New meds thread


dt19&99
Regular Member


Date Joined Apr 2009
Total Posts : 174
   Posted 7/9/2009 9:20 PM (GMT -7)   
I'm interested in this as well... Do they help with meal plans/shopping lists? I can read the books and all that but actually going to the stores I need and picking up the right stuff seems very difficult to me.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/9/2009 9:42 PM (GMT -7)   

It will be very interesting to see how it goes, especially since she is an IBD dietician. I hope she does help with shopping lists etc! Then I can take her shopping list to coles with me and buy only those things! And meal plans and weekly pans would be fantastic….. I think preparation is the key, and I am so bad when it comes to taking care of myself…. I just have to commit more time to organising my diet so I never get caught out in the middle of the city at lunch time with no lunch!

 

I am usually pretty good and get sushi (minus rice), fish or a chicken salad, but the dressings I’m not so sure about! and then there’s the work afternoon-teas….

 

How are you going Ivy?

dt19&99
Regular Member


Date Joined Apr 2009
Total Posts : 174
   Posted 7/9/2009 9:49 PM (GMT -7)   
I just checked my insurance website and only see one dietician listed (apparently she has like 8 offices in the 20 miles surrounding my house) but thats cool that your going to one who specializes in IDB... I may have to schedule an appointment and just speak with her to see.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/9/2009 10:24 PM (GMT -7)   

Yes I think this one is private too so I will be paying a lot of money to see her because I don't have private health insurance, but maybe one or two consultations will be all that is needed? I will see how much she charges….i think I could justify it if it is going to help me in the long term, especially with food lists etc…



ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/9/2009 10:32 PM (GMT -7)   
Aaah. Is there any reason why you can't see one through your hospital? Are you on a health care card?
Co-Moderator Crohn's Forum.

New meds thread


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/9/2009 10:40 PM (GMT -7)   

I was on a low-income health care card but when I started fulltime in this position it was taken away L goodbye $5 antibiotics L

 

The nurse said the dietician works privately but she comes through the hospital too – from what I can gauge she is a private dietician. Similarly, Dr Radford Smith who is my fantastic new GI, is also private…. So it costs a lot of money but when I saw him my parents gave me some $ - they were just so happy to see me receive the proper care.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/9/2009 10:56 PM (GMT -7)   
*sigh* That's such a problem. I'm sorry, Phoebe. So... you think it really makes a difference, going private? I keep thinking about doing it myself, but the $ is an issue; plus, I have qualms about supporting a dualistic system I don't agree with...
Co-Moderator Crohn's Forum.

New meds thread


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/9/2009 11:33 PM (GMT -7)   
Yeah it really isn’t fair at all, is it?? its ridiculous we should have to pay so much this care, but honestly, I would say if you can at all afford it, give it a go for sure.

The old GI I was with was private too, and neglected my condition no end. my currently GI and surgeon are truly and honestly appalled and outraged at some of the things he has said (like ‘we don’t have setons in Australia’), refusing me iron infusions etc…. the joy and relief that I have experienced since being treated (for this very brief period so far) by this new private team, is just such a complete change. My only wish is that I’d done it sooner and known about this great team, known that they were out there. I have suffered so much unnecessarily, so many ER visits, so much confusion, I felt lost so much of the time…. Now I feel like I have somewhere to go for answers. When my health gets worse I feel like at least I have someone to turn to medically.

They call me for updates on my health, and always say ‘just call whenever you are worried that something is getting worse’….. they don’t rush you, they take a holistic approach and consider not just your test results, but the impact the disease is having/has had on your relationships, work, mental health, as well as physical well-being. They ask about your fatigue (my previous GI told me I was tired not because of the severe anaemia but ‘because I had crohn’s.

I don’t know if all private dr’s and specialists are like this, but I am so glad that mine are, and I feel like I finally have the answers I’ve always searched for on my own. I just wish I’d found them sooner but at least I did find them.

After my initial consultations with the surgeon and the GI, I knew these guys were great. If you give it a shot, you can always stop seeing them if you think it’s not worth it. . . . .

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/9/2009 11:39 PM (GMT -7)   
My big-city doctors see both public and private patients. They are quite highly respected and I wouldn't want to *change* doctors, but I hate the way they're always rushed in their public clinics and seem to be shuffling us out of their office almost as soon as we walk in the door...I dislike having to do severe Crohn's in front of an audience of up to 7 other hospital room-mates. That's why I'd change... but haven't really decided to take the big step yet.

Gosh it's cold. I'm supposed to walk up the street to get groceries, but am too freezing to move :-<
Co-Moderator Crohn's Forum.

New meds thread


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/10/2009 6:35 AM (GMT -7)   
Over my 33+ years with this disease I have seen a dietician a few times. I remember after I was first diagnosed my Mom and I worked with one. I followed her prescribed diet until things quieted down, then was able to slowly add things back into my diet. I always remember I couldn't have any milk products and at that time I was a huge milk and ice cream lover. That was a tough time. Now I am lactose intolerant, so its not a problem anymore:)

A couple of years of go when I kept having obstructive episodes they helped me to learn what to eat to avoid those episodes, that's how I begin my low res diet. I still eat the same and it has worked out well for me.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

bookgal77
Regular Member


Date Joined Jul 2009
Total Posts : 83
   Posted 7/10/2009 10:24 AM (GMT -7)   
I'm going to see a nutritionist pretty soon - I saw her speak at a CCFA support group and was excited that she had an interest in IBD, although her true specialty is eating disorders. I'm looking forward to getting some tips on what foods I should be eating to keep not only the IBD in check but also the rest of my health.
**32 year old female; Diagnosed with ulcerative colitis in 2001; diagnosis changed to Crohn's disease in 2009 (but still only impacts colon)
**Asacol (4800 mg daily), 6-MP (100 mg daily), Prednisone (8 mg daily...for a few more weeks), Flagyl (250 mg every other day), Nexium (40 mg daily)
**Thankfully only two major flare-ups...2001 and 2009. Hoping to have another 8 years in between the next one (sadly, I do know there will be a next one).
**GOAL of one day being immunosuppressant free...still working on my doctor on this one but I am a world traveler who desperately wants to go to Africa one day!


uklass
Regular Member


Date Joined May 2009
Total Posts : 65
   Posted 7/10/2009 12:32 PM (GMT -7)   
hi there
 
when I asked my GI consultant about diet he just shrugged, said don't worry and to get on with my life ................this is after having a resection and being left with only a third of my small bowel; he obviously thinks there is no correlation between diet and function of the bowel. I'll be interested to hear how you get on with a dietitician - I'm prepared to pay privately for one in the UK but all I can find are nutritionists or nutritional therapists which I don't think are quite the same thing.
 
hope it goes well for you
 
Penny x
diagnosed aged 31 in 1996 - emergency surgery (right hemicolectomy). Thought I'd only get 'it' once and have lived in relatively blissful ignorance, apart from a couple of hospital stays for obstructions (scar tissue), until March 09....major surgery, 2 resections, fistula and now only 195cm small bowel left. Not on any meds at present except B12 injections but know there will be some. Just getting used to my 'new' body and it's limitations........
 
Penny x


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/11/2009 11:40 PM (GMT -7)   
Yes I've heard of lots of people going to naturopaths, but not dietitians, i think they are very different... it'll be very interesting to see what goes on with an IBD dietitian, I will keep you informed!

Ivy, why is it so cold where you are? How are your setons settling in? Any more news on your letter?

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 7/12/2009 2:15 AM (GMT -7)   

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/12/2009 4:02 AM (GMT -7)   
cool, is she an IBD dietitian? What kind of stuff does she 'do' for you?

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/12/2009 9:22 PM (GMT -7)   
I've always wanted to see a dietitian!

Since there's a possibility your dietitian won't know about SCD, I would take a list of permitted foods to show her. Then she could help you organize them into a balanced menu.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 7/13/2009 5:22 AM (GMT -7)   
I am so confused about the diet. My docs say diet dosesn't matter except when you are flaring. They said to pay attention to what works for me. That is difficult. The SCD seems unrealistic to me personally. However, now after my first hopitalization d/t CD I'm afraid to eat anything right now besides bland. Prior to this I was eating whole grains, veggies and lean proteins. I'm eating white toast, white rice now. It seems weird. Alot of soups. I guess I'll keep researching, but I can't imagine I would be able to stick with not eating any grains, bread, potatoes, diary etc. What exactly can you eat then? Fish, chicken and certain veggies? It seems easy right now b/c I'm scared after this flare. But wondering when I'm feeling good...............HELP!
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg.
 
I live by faith and not by sight....


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/13/2009 8:22 AM (GMT -7)   
SCD does sound terribly restrictive initially, but it's actually prett easy to follow. I've been eating that way for 7 1/2 months, and haven't fallen of the wagon even once. I don't have any desire to cheat, because I know the diet is doing me a lot of good.

Yesterday, some of the foods I ate were yogurt with a little honey in it, a "brownie" (made with almond butter instead of flour), deviled eggs, squash pie filling (tastes like pumpkin pie filling), cooked peaches, tilapia with a parmesan sauce, cooked carrots with some butter on them, cheese, and frozen yogurt (I have a fantastic recipe). I follow the stages from http://pecanbread.com/p/how/stages.html and am currently eating foods through stage 3. I'm staying there, since my stricture may not like the raw foods from stage 4 & 5.

Here's list of most of the allowed/disallowed foods, courtesy of http://www.healingcrow.com/dietsmain/scd/scd.html

Allowed Foods:
Quantities are not restricted.


Sugars

Honey is the only allowed sugar product. Not everyone can tolerate it, so use with caution.


Veggies

Most vegetables, fresh or frozen and raw or cooked, are allowed including: asparagus, broccoli, cauliflower, artichokes, beets, Brussell sprouts, cabbage, carrots celery, cucumbers, eggplant, zucchini, summer squash, rhubarb, peppers, garlic, lettuce, spinach, mushrooms (unless you have candidiasis), onions, turnips, and watercress. Be careful of raw vegetables when diarrhea is present.


Legumes

Dried navy beans, lentils, peas, split peas, unroasted cashews, peanuts in a shell, all natural peanut butter, lima beans, and string beans.


Meats

All unprocessed meats such as: beef, pork, chicken, turkey, quail, ostrich, fish, shellfish, lamb, venison, rabbit, and eggs.
Some processed meats are allowed, but many require writing letters to manufacturers to verify the absence of restricted foods. Many processed meats contain sugar, starch, corn products, and other disallowed foods


Dairy

All natural cheeses except those listed above are allowed: cheddar, colby, swiss, havarti, dry curd cottage cheese, etc..
Homemade yogurt that has been fermented for a minimum of 24 hours is allowed and encouraged.


Fruits

Most fruits are allowed such as: avocadoes, apples, tomatoes, olives, apricots, ripened bananas, coconuts, dates, berries, cherries, citrus fruits, peaches, pears, tropical fruits, and grapes.


Nuts

Almonds, Brazil nuts, walnuts, chestnuts, filberts, and pecans.


Misc:

The following foods are allowed: olive oil, coconut oil, soybean oil, corn oil, weak tea, weak coffee, unflavored gelatin, mustard, vinegar, saccharin, and juices with no additives.



Disallowed Foods:


Sugars

Do not eat sugar, molasses, sucrose, high fructose corn syrup, fructose, or any processed sugar.


Veggies

All canned vegetables are not permitted.
All grains are not permitted, such as: corn, wheat, wheat germ, barley, oats, rye, rice, buckwheat, soy , and others.
Some legumes are not allowed: chick peas, bean sprouts, soybeans, mungbeans, faba beans, and garbanzo beans.
Starchy foods are not permitted, such as: potatoes, yams, and parsnips.
Seaweed and seaweed byproducts, such as agar and carrageenan, are not allowed.


Meats

All canned meats are forbidden.
Most processed meats are not permitted. Make sure processed meat doesn't contain any harmful additive such as corn, corn products, starch, and sugars.


Dairy

All variations of milk are not allowed: whole, skim, 1%, 2%, chocolate, etc.
Some cheeses contain a high lactose content and are restricted: Ricotta, Mozzarella, cottage cheese, cream cheese, feta, and processed cheeses and cheese spreads.
Commercial yogurt contains a high amount of lactose and is not allowed.
Heavy Cream, buttermilk, and sour cream are not allowed.


Misc.

Other foods that are not permitted include: bread, pasta, other starchy foods, canola oil, commercial mayonnaise (because of additives), ice cream, candy, cocoa, chocolate, carob, whey powder, margarine, commercial ketchup, baking powder, mixed nuts, and FOS (fructooligosaccharides) products.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/13/2009 8:34 AM (GMT -7)   
Here's a handier little SCD list that you can print out to take shopping with you. It has a lot of little bits of extra info, such as only buy Tropicana Orange Juice and Welch's grape juice (which have both been verified to be 100% juice): http://www.austinscdfriends.com/articles/article/3691414/53672.htm

Here is the complete list of legal/illegal foods, right down to spices and fillers you might find in supplements: http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm

And lastly, here are the few allowed ready made foods (it's quite a short list): http://pecanbread.com/p/how/legalfoods1.html
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 7/13/2009 8:59 AM (GMT -7)   
Spookyhurst, would you mind sharing your recipe for frozen yogurt? 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/13/2009 9:01 AM (GMT -7)   
Dinkydee,

When you start feeling better, you usually can slowly start adding things back into your diet. I always eat a low residue diet, but have noticed lately that I have been able to add a few more items back into my diet without any problems.

Good luck,
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 7/13/2009 9:58 AM (GMT -7)   
dinkydee, I just want to add back-up to what spooky said. It all seemed restrictive to me in the beginning too, but now it really doesn't. It's really just a change, that's all. Since I buy and cook for the family and I only cook one way, we all follow this diet, so therefore I can speak from experience. Like my son, I never eat processed foods any more. I virtually never eat the restricted carbs on the diet, either (potatoes, breads, rice, etc.) unless I'm out. I no longer miss them. It's amazing because I used to have one HUGE, uncontrollable sweet tooth and insatiable carb cravings! I know I am healthier today because of my son's diet. Good luck!

spooky, you have awesome links! yeah
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/13/2009 3:55 PM (GMT -7)   
Folks, may I remind you to keep this thread on topic, please? This thread was started by Phoebe, who was seeking advice on whether she should see an IBD dietitian.

Advice to other members on if & how to follow the SCD should be done in another thread.

Ivy.
Co-Moderator Crohn's Forum.

New meds thread

New Topic Post Reply Printable Version
39 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, December 04, 2016 7:30 PM (GMT -7)
There are a total of 2,732,818 posts in 301,057 threads.
View Active Threads


Who's Online
This forum has 151210 registered members. Please welcome our newest member, Margaretcb.
378 Guest(s), 11 Registered Member(s) are currently online.  Details
notsosicklygirl, Psilociraptor, JaSanne, magoo2, BKelly, Buzzlymeyear, Ed Ski, Red_34, trumpet123, Sue*Nash, Sissy63


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer