I have never had any of these tests, but I live in NJ too and was wondering who your daughter's doctor is? He/she sounds very progressive and smart about Crohn's! I have been having trouble finding a GI doc that I have much confidence in and would love a recommendation. Care to share? :)
Post Edited (janicea) : 7/10/2009 10:13:10 PM (GMT-6)
We went to see Dr. Leopold Galland in NY, who is not a gastroenterologist, but an internal medicine doc and nutritionist who happens to have Crohn's patients who have tried/are trying nontradtional therapies like worm therapy, LDN, SCD, antifungal therapy, and mastic gum.
He doesn't accept insurance, but my daughter's insurance will pay about 70% of the out-of-network fee. My daughter first went to him in 2006, and he was the first doctor to think of checking her vitamin D and ferritin/serum iron/TSAT/TIBC - both were low. He has published books like Power Healing and is well known and respected.
We haven't seen him since 2006, but this time my daughter went to him mainly to get started on LDN, which he was more than willing to prescribe. She had asked her GI in college twice for an LDN prescription, but he kept blowing her off, so now that she is back in NJ/NY she figured Dr. Galland would be more open, and he was. He is going to try tracking her progress on LDN therapy by seeing whether any changes show up in the noninvasive tests I mentioned.