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MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 7/10/2009 1:54 PM (GMT -7)   
Has anyone ever been on this antibiotic? My GI put me on Flagyl when I went for my appointment the other day and told him I thought I had C-diff, my results came in today and I do indeed have it.  Anyways, he called my house today (I was at work) and spoke with my mother and he said he no longer wanted me on Flagyl and that he sent in a prescription to my pharmacy for Vancomycin.  He didnt say why, or anything of that sort, just that he would rather me be on it.  When I got home from work I did a little research and saw a few times "last resort" in the usage of it.....ugh.  Now Im worried that its some crazy strain of C-diff or something, Im sure if something was seriously wrong he would have told my mom, but he said nothing....Anyone been on it, a know why your doctor gave you that instead of something like Flagyl.  He probaby just wants to make sure its COMPLETELY out of my system because its hard to get rid of, Im just a little worry wart!
blush  
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

AMinNJ
Regular Member


Date Joined Feb 2009
Total Posts : 40
   Posted 7/10/2009 6:06 PM (GMT -7)   

I had C.diff last year and my doctor started me on Flagyl but it was awful... terrible taste in my mouth, dizziness, etc. Since oral Vancomycin is not absorbed into the bloodstream, it has a lot less side effects than Flagyl, so I asked my doctor to switch me and he did. It worked well for me, in combination with Florastor (S.boulardi supplement, a dietary yeast probiotic that crowds out the bad guys in your gut). You will probably much prefer the Vanco to the Flagyl, so be happy!

Doctors usually prescribe Flagyl for C.diff first because it's cheaper, but in the long run Vancomycin is usually more effective from the research I have done on it. You may need to taper on and off at the end to catch as many spores as you can. Make sure you take it on schedule like clockwork, dont' miss a dose or be late! Works better that way.

Most people recover from C.diff after just one or two courses of antibiotics, and most likely you will be fine, too! Just remember that C.diff is tricky to completely eradicate once you are infected because it hibernates in virtually indestructible spores. You will need to be extra careful down the road if you ever need to take antibiotics for any reason, and after colonoscopy prep, because that can put you at risk of a C.diff relapse.

Please be very careful and use good hygiene because as you probably already know, C.diff is extremely contagious. You could infect your entire family or reinfect yourself. Hand sanitizers (Purell) and most cleansers are ineffective at killing it in spore form. Wash your hands vigorously and with lots of soap and water, and use bleach every day to clean the bathroom.

You can find much more good information at the following support group:

http://www.cdiffsupport.com/phpBB/

I have long wondered if C.diff can cause Crohn's, or if we're just more susceptible to it. Studies have shown that people taking antacids or acid-suppressing medicines (Pepcid, Prilosec, etc.) are more prone to contracting C.diff, as are people taking ibuprofen (Advil, Motrin, etc.) I took both for many years before being diagnosed with C.diff and Crohn's.

I also often wonder how many people here are suffering from C.diff and don't know it. Tests for it are notoriously unreliable with something like a 60-75% false negative rate. Some people get tested once and it is negative and their doctor never considers it again. Most doctors who are knowlegable about C.diff know it take at least 3 negative tests to be pretty confident of a true negative result.

I'm so glad you got an accurate test result and are getting treatment. You will feel much better soon.

 


Angela, age 43
dx Ulcerative Proctitis 2008 after colonoscopy
dx Crohn's 2009 after small capsule endoscopy
Symptoms on and off for more than 10 years
Currently taking no medications
Gluten-free, dairy-free, low sugar diet
VSL/probiotics, MorEPA, B Vitamins, Folic acid, Vit C, Vit D, Turmeric, Ginger, Selenium, Mushroom


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 7/10/2009 6:13 PM (GMT -7)   
Thanks, I have had C diff before I got it right after my resection while in the hospital in sept.  Im starting to think Ive had it this whole time, like it never went away...even though I was treated for it.  I was to the point where I was about go to to the ER because of the stomach pains I was having, Ive been on antibioitcs now for 3 days and I already feel a little better, not too much though.  He also put me on that probiotic you mentioned. I wasnt given times to take the Vanco only every 6-8 hours...thanks for the response!!
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 7/10/2009 8:36 PM (GMT -7)   
only in IV form. so sorry cant help ya, but good luck.
randynoguts 



     http://www.geocities.com/randynogutsweb/


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 7/11/2009 6:33 AM (GMT -7)   
My husband was on both flagyl and oral vancomycin for c-diff (250 mgs 4 times a day). Vancomycin has far fewer and rarer side effects than flagyl, and is supposed to be slightly more effective than flagyl at eliminating c-diff. Neither flagyl nor vancomycin can kill c-diff in the spore form, only when it is not in spore form. This is why sometimes when you stop the antibiotics, c-diff flares up its ugly head again.

Vancomycin is more expensive, and docs usually prescribe flagyl over vancomycin, not just because of the cost, but because they are afraid of developing strains of bacteria that are vancomycin resistant, such as VRE (Vancomycin Resistant Enterococcus), etc. because Vancomycin is one of the most powerful antibiotics we have. So, they usually give you flagyl, and if that doesn't work, they give you vancomycin.

My husband was on vancomycin for about 10 months, before he finally kicked the c-diff - but his was a very complicated case, where at the same time as the c-diff infection he also had a bad crohn's flare up, which required remicade and high doses of steroids, which of course suppress the immune system, while you need a strong immune system to fight the c-diff . . . But even with being on it for 10 months, he has suffered no ill effects because of the vancomycin, or developed any resistant strains of anything.

I'd only worry if the vancomycin isn't making you feel better. Also, my husband took plenty of VSL3 and Florastor to combat c-diff, and still does, and he's been c-diff free now for a little over 6-months.

I hope you feel better soon.
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, and in crohn's remission, knock on wood


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 7/11/2009 5:46 PM (GMT -7)   

When my mom had C Diff, the Flagyl didn't work so she was given Vancomycin, which cleared it right up.

Vancomycin is not a standard treatment for Crohn's, but I seem to recall at least one patient saying that they depended on it to treat their Crohn's. So the main take away from this is that at least it is not likely to make the Crohn's any worse.  


hcv299
Regular Member


Date Joined Apr 2006
Total Posts : 22
   Posted 7/12/2009 9:42 AM (GMT -7)   
When I was first diagnosed more than 17 years ago, I was pregnant with my second child, and had to be given Vancomycin because I was having such a bad flare that I was only 76 lbs at 6 months. I took the antibiotic for a week, I gained over 30 lbs and had a healthy baby boy! Note: I do not recommend a colonoscopy while pregnant! Go through that awake and drug free!

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 7/12/2009 2:19 PM (GMT -7)   
Thanks everyone for the responses. I feel a lot better about it now.  Hopefully this stuff starts to kick in soon Im hurting so bad right now, I had to leave work early today, I think they are startin to get a little ticked off at me. Ugh
 
 
ALSO, I take Questran, and I was told by my GI to take it 2 hours before my other meds, or if I take my other meds to take the Questran 4 hours after because it will bind the pills, or something along those lines. How on earth am I supposed to take the Questran if I have to take this antibioitc every 6 hours, its litterally not possible for me unless I wake up 2 hours earlier just to take the Questran....I havent been taking it since I started the Vanco...I think Im just going to hold off on taking it until Im off of the antibioitc. Theres no way I can wake up extra early to drink some nasty stuff especially with the way Ive been feeling.  Its not absolutely nessasary for me to take it, just to help with my D and bile.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 
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