Second Dose of Remicade

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itainteasy
Regular Member


Date Joined Mar 2009
Total Posts : 46
   Posted 7/10/2009 8:02 PM (GMT -7)   
So my daughter just received her second loading dose of Remicade. Both times she received Remicade she suffered bloating the next few days after. Is this normal? Both times she has vomited because of the bloating. After the first time, she eventually felt better after a few days. Hopefully this will subside the same. Is this normal? I have tried to search for this with no luck. She is now taking liquid iron twice a day. She didn't tolerate the pill form awhile back. As I have stated in the past, her issues are in her duodenum w/pyloric stricture dilation.
Mother of teenage daughter with Crohn's.
Diagnosed Feb. 26th 2009
It's a rollercoaster ride,
but we take it one day at a time.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/11/2009 7:28 AM (GMT -7)   
I don't know about the particular symptom but have heard many folks here say that for the first couple days after their infusion they feel kinda rough, but then start feeling better after that. Wish I was of more help, hopefully someone else will be along soon.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

moedon1
Regular Member


Date Joined Jun 2005
Total Posts : 139
   Posted 7/11/2009 8:37 AM (GMT -7)   
I was on Remicade for about three months but developed pneumonia(I have many drug allergies) I did feel very bloated and nauseous after an infusion. When I talked to my GI she put me on compazine. I only used it 2x. Eventually the bloating went away and the nausea. Then I was hospitalized and taken off of it. Again I must state that I don't tolerate many meds the reason for coming off the Remicade. The issue with something like compazine is it can slow things down and depending on your daughters digestive system this might not be what you want especially if there is a stricture or potential blockage. The same goes for Percocet which is about the only pain med. that I can take. I found a couple of small things that helped with the nausea. They sound crazy but they worked and still work for me today. Mint tea(caffiene free)I buy Mint Medley I think Bigalow makes it. The straight peppermint was a little to much. When I am out of the house and get nauseous I will chew mint gum for a bit and it seems to do the trick. I only drink water and mint tea. I drink the water with a straw it reduces the amount of air that gets swallowed.(noticable difference)Noe that the warmer days are here I occassionally brew mint tea and ice it. I do hope she feels better.
Donna
 Formal diagnosis 3/2006, IBS 1992, Degenerative Arthritis Facet block and RFA, Seizure Disorder, Severe Carpal Tunnel both hands, SVT arrythmia, 2004 cardiac Ablation
Cushings Syndrome(thanks Prednisone), Asthma, Multiple Laps for ovarian adhesion to bowel, C/5 & 6 disc herniation - plate with screws, resistant to anethesia/most pain meds.  Chronic fungal infections.
Multitude of Meds. Have tried most Crohn's meds.  Gall bladder removal and Intestinal Lap. June 08.- Intestinal blockage July 08 moved on from on Humira..now on Cimzia. .Off the Cimzia 7/8/09.  Back on Humira.  Systemic fungal infection.  Waiting on Liver Biopsy & Hepatitis results.

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