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Katzzz
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/10/2009 9:44 PM (GMT -7)   
Hello
 
A newby here, I found this site while trying to research for medical answers to a new symptom that I'm having. Im spitting up blood. I didn't find any answers but now I'm just alittle scared with all the researched that I read. I can't diagnose myself with the new symptom I'm having I could make a guess but thats gets me no where so its best I'll leave that up to my Dr.  From what I looked up it could be afew different things going on I'm not sure whichso I will call Dr. on Monday.
 
I was diagnosed with crohns in 2008 I had stomach problems years before getting diagnosed and over the counter med zantac  helped me for afew years then I had a bad go and had to go to the hospital I was amitted the pain was bad. After having several Endoscocy/colonoscopy,xrays I was told I had crohns.
 
I have a small 3 inch infected part of instestine they could not get pass. A small ulcer,IBS, gerd, gastritus. I also had to have my esphagus stretched. The first time they did not put me to sleep "make sure you ask to be put to sleep during those procedures it hurts badly. Well the second time they put me to sleep and any future ones they will put me to sleep to.
 
I'm taking nexium,entocort,asacol.
I have several bouts of bad stomach cramps each week and it doesn't seem to matter what I eat.
I'm am up all night lots of nights from stomach cramping. I have not had any surgery but I'm thinking it doesn't lie off to far from the future because the meds don't help always.  I was hoping I could go off them soon in the future but it doesn't look like it.
 
I think we can better understand our crohns disease to hear from others so although I'm not doing great right now doesn't mean that tommorrow won't be better. It seems night time is when I begin cramping the worse.
 
I'll update once Dr. tells me why I'm spitting up the blood'
 
Have agreat week end everyone
 
 
 
 

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/10/2009 10:26 PM (GMT -7)   
Sounds like an ulcer or tear in the esophagus - probably where you had it stretched. It could also be your ulcer bleeding. It may mean that you are getting reflux of some kind ongoing. When you say cramping, are you sure that it is the stomach? When you have strictures (that 3 inch infected part of the intestines), food or even gas passing by it can cause discomfort.

Katzzz
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/10/2009 11:31 PM (GMT -7)   
Keeper

I don't think its the esophagus because I had that done over ayear ago. I'm pretty sure the pain is comming from the
infected part of the intestine area because of the reflux and gas. I stay so darn bloated and full of gas. I have the IBS to. I spit up a mouth full of blood four different times this week. Alittle clotty and some mucus bright red then it clears up after I spit the blood up. I thought since it cleared up after the first time it would stop then I got alittle worried tonight since it happened for the fourth time. I had made a Dr. appt, canceled becaused it cleared up I'm not coughing at all. So now I have to make a appt. monday. I have no idea why I'm spitting up this blood for sure but I think it may be an ulcer because once I was told I had one then once I was told I didn't have one. So I really don't know. I thought I read that strictures could be ulcers I don't know. I'm just learning alittle of all this medical stuff with my crohns disease. I start hurting cramping mostly through out the nights so I stated taking all my meds at night thinking this would help more, Nope! I'm thinking to that since I may have a sticture due to the infected area that maybe some food has caused the area to blead some I'm at a loss until I see the Dr. because I don't even know if thats possiable.
I know I'm not canceling appt. this time this last spit up was kinda scarry its like where in the world is this comming from. I called the Dr thinking maybe there would be emergency calls # because its friday evening but they're recorder says call 911 for emergency. I know if I go to the hospital they would keep me because of cramping and having crohns. I know this is what my Dr. will do when I see him,he will admit me. I'm not to big of a hurry to get there. But if I spit up blood any more before appt. I'll have no choice to go to the Emergency room.

Thank you for your responce!

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 7/11/2009 4:09 AM (GMT -7)   
Welcome to the forum, you'll find lots of imformation here. Sorry to hear that your having problems ,I'm glad that you decided to call the doctor and get checked out.
Good luck, I hope your feeling better soon.

Wolfie
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/11/2009 6:55 AM (GMT -7)   
Many of us Crohnies also suffer with GERD/Acid Reflux. I take 60 mg Prilosec everyday. I see you are taking Nexium, maybe you need a med switch???? Another thought is I am wondering too if you might have some type of stricture going on in your system. I too am glad you called your doc and looking forward to hearing whats going on. Keep us posted.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Katzzz
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/11/2009 9:54 AM (GMT -7)   
Woofie, Nanners

Thank you. I will let you all know whats going on as soon as I find out. If it happens any more over the week end I'll go to the hospital but if it don't I will wait to make an appt. Monday.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 7/11/2009 1:39 PM (GMT -7)   
Gut inflammation will cause stomach acid production - it's something to do with the histamine produced by the inflammation response (a bit more involved than that, but the histamine is the key). You might want to try the older H2 antacids (Tagamet, Zantac or Pepcid) and not the currently fashionable proton pump inhibitors (like Nexium). They work more directly on the source of the acidity without compromising your digestive process. The real key is getting your gut settled down. While you wait for your doctor to come up with a good control regime, you should try taking a probiotic. There are many things that you can do that will help the problem, but as a first action, taking a probiotic is probably the most useful. Good ones include Culturelle, Align and VSL#3. The first two are available in many drug stores and drug departments in the US and supposedly 30 countries worldwide - but don't ask me which ones.

about the bleeding - it likely is happening above the small intestine, since there is very little chance of return from the SI up into your stomach and above. That is why I think it would be either a stomach ulcer or some problem with the site of your stretching procedure. You should know that although the Nexium is probably working on the acidity, there are other components of stomach juices that can cause problems for your esophagus. Your stricture is likely contributing to reflux because it will be slowing or preventing the normal clearing of your stomach contents after digestion.

Katzzz
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/11/2009 6:12 PM (GMT -7)   
Keeper

You have helped me learn and understand alot more about all this stuff more then I knew or understood before now so thank you for taking the time to explain all this stuff to me. My pain usually starts just below my mid rib area and feels like cramping moves down the complete right side I'm sure its all because of the infected part is radiating the pains.
I'm kinda of scared about the thought of having any surgeries if needed because my Dr is up there in age he had a dizzy spell right in front of me like an imbalance he was comming out of one patients room into see me it was like woah slow down there buddy! I guess the speed caught up to him but he is a spunky guy a little man I'll be 50 soon and he looks to be in his late 70's. He says he gets tired but loves making people well.
Maybe he has a intern Dr that practices with him during surgery. I guess this would be my least worry right I would be put to sleep I'm alittle bit of a worry wart here! I'm afew steps ahead of myself worrying about having to have any surgery I may not have to but its sure is not looking to good to me.
Take care and have agreat week end.
Kathy
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