I finally got into see the new gi, through a cancellation that somebody had :)

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mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/11/2009 10:32 AM (GMT -7)   
Hi there everybod,
I saw a gi on tuesday, and he seemed very concerned by the bleeding that I am having in my stool.
He did say that he thinks its definitly something to with my colon, however, he did examine me as well, and found that my liver was very sore, atleast he was pressing on it, and I was in excruciating pain. So then, he said he wanted to run some blood work on me, and all the blood work that he ran had to do with my liver, so not really sure whats going on there, I am a little scared and worried.
On a better note, he is also doing two scopes, one down the esophagus and one up the rectum. I will be sedated thank God, and on his sheet that I gave to the nurse, it also said a possible polypectomy.
So i was to be sceduled for the scopes on august 20th lol, but it just so happens that I got in for 11:45 monday morning, so I should hopefully know by then,what is if anything going on with m system.
All I know, is im really really tired, and there is lots of blood in my stool, and 9 times out of ten, when I do have a bowel movement, I get the sweats real bad and feel like im gonna pass out too.
Im not very functionable thats for sure ****, I kind of feel like an invalid right now, and absolutely afraid to eat, because everything I eat just goes right through me, as a result of undigested food, lots and lots of blood throughout the stool.
I think that he is probably testing for toxicity in the liver, which can be caused from malnutrition,
anyways, thanks for all of your inputs and insights,
take care everyone cant wait to hear some responses,
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 7/11/2009 3:26 PM (GMT -7)   
Try a liquid or at least pureed diet between now and .... oh heck, never mind! Tomorrow is Sunday, you start the prep tomorrow, now THERE is a liquid diet for you.

Good luck w/your scopes and blood work results!!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/12/2009 8:11 AM (GMT -7)   
Looking forward to hearing what they find. I really think its IBD (JMHO), but I know whatever it is, you will be glad to get some kind of answers and treatment started. Good luck and keep us posted.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/12/2009 11:25 AM (GMT -7)   
hi nanners, what does (JMHO) mean? lol sorry im short form illiterate, and thank you for the good lucks, im sure I will need them,
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/14/2009 8:27 AM (GMT -7)   
Hi there its just me again,
So I have had my scopes, one downt the esophagus, and one up the rectum. I do not get the results until his office calls me and until the results of the biopsies come in, is this usual? I could have sworn that usually the doctor speaks to you after the scope??? Atleast when I had my colonoscopy before, the doctor spoke with me. I did not get to see the doc at all, just the nurse. The only thing she said, is that he did biopsies of my esophagus, stomach and large and small bowel. I could see blood in my system, as I vaguely recall watching it on the tv that was infront of me.
The only thing, that he did do, right away, is increase my perriet??
This was given to me for acid in my stomach, at the hospital when I was seeking care there for constipation.
Not really sure what this means, however, soon to find out I hope, I really do hope that they find something, because I do not want to start back at square one!
thanks for everything, and all your insights,
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/14/2009 10:43 AM (GMT -7)   
Hi Mom,

First off (JMHO) means just my humble opinion. Thats too bad that you didn't even get to talk to the doctor afterwards. But I am glad that they took biopsies, as sometimes the disease won't be visible to the naked eye, but is found at a microscopic level. But I have a feeling that they probably did see something.

As for an increase in the acid reflux med, probably means he saw some inflammation that made him think you needed to increase your medication.

If you don't here from him within about a week, I would try to give him call. I will be watching to see what your results show.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/14/2009 11:32 AM (GMT -7)   
hey Nanners,
What makes you have a feeling that they probably found something? Im curious now???
As for the inflammation, do they usually give an acid reflux med, for inflammation of the intestines? Or are you talking about inflammation of the stomach or what?? Im sorry, I dont know very much about this, the stomach pill was given because they thought I might have a bleeding ulcer, but nothing more has been said about it, im just kind of hanging in the whim.
Anyways, thanks again, and sorry for all of the questions.
take care
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/14/2009 11:49 AM (GMT -7)   
My feelings that they probably found something is just a gut feeling based on what you have been suffering thru. I can't say its Crohns, but I am hopeful they will get you figured out.

As for the increase in your reflux med, I am just assuming they saw some inflammation in your esophagus or stomach. Many people with Crohns also suffer with GERD/acid reflux. I myself take 60 mg Prilosec a day along with my other medications.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/14/2009 12:08 PM (GMT -7)   
ooooohh ok, thank you for all of your advice and for listening and for your feedback. I appreciate it, I sure hope they find out what is wrong with me, I have been suffering now for a few years at least, its about time they find something.
hugs
kelly
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/20/2009 11:48 AM (GMT -7)   
Hello everybody,
I thought I should let you all know, that I talked to the gi's office today, and they concluded that i might have a small hemorhoid, well as if I didnt already know that??
The receptionist or nurse or whatever, said that as far as the report said, he did not find anything, however, he does want to do a follow up appointment on august 12th,
Not really sure why I need to go back and see him, if he didnt find anything, like ***?
I am so frustrated right now, I could scream!
I am not imagining things, I swear, and I am not making things up!
This disease or ailment or whatever it is, in my intestines, is making me become very depressed, and agravated.
I am always uncomfortable, always in pain, always in the bathroom, and im so sick of being sick. Sorry I am just venting.......
Thank you to all who have followed my story, TC
kelly
/
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/20/2009 11:55 AM (GMT -7)   
Kelly,

Don't give up yet!! Many folks on this forum have gone thru pure heck trying to get a Crohns diagnosis. I would recommend you see the doctor again on August 12th and discuss getting a pill cam. Many have had more success getting a diagnosis with this test than a c-scope. Also, many times nurses say one thing when its actually really something else. So hang in there, and keep pushing until you get the answers you need.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/20/2009 11:56 AM (GMT -7)   
ok thanks Nanners, btw, I also had an e scope, downt he esophagus!
he didnt even want to give me that, I had to beg him for it, so not really sure if the pill cam would be an option, it is in my eyes, but not necessarily in his.
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/20/2009 12:03 PM (GMT -7)   
Even with a regular e scope and a c scope, there is still around 15 feet (or more) of intestine that cannot be visualized by regular scopes.


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 7/20/2009 1:07:57 PM (GMT-6)


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 7/20/2009 12:06 PM (GMT -7)   
omg, that is so crazy
I am convinced that this is all not normal....... if it had have been normal, it probably would have started a long time ago, and everybody would experience the same thing.
thanks again MMMMMNavy
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
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MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/20/2009 12:10 PM (GMT -7)   
My personal favorite logical fallacy of the doc is that I cannot have crohns because I am six feet tall and weigh about 280 lbs.  Please do insist upon the pill camera.


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 7/20/2009 12:34 PM (GMT -7)   
Hang in there. When you see your doctor make sure you have a list of questions for him. There has got to be some reason you are having bloody stool and D all the time. Don't give up. Many of us have to fight for a diagnosis of some type.

I can't imagine anyone wanting to be sick for goodness sakes.

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril,
 

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