Just venting....

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goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 7/11/2009 11:21 AM (GMT -7)   
I'm so tired of this illness and all my other autoimmune diseases (psoriasis, graves/hypothyroidism)...I have been dealing with this crap for the last 17 years...I want to wake up just once without thinking about how I feel... Without joint pain, stomach pain, nausea, headaches, etc.... I want to eat what I want and drink what I want... I want to take no medications.... I want a miracle I know... Just having a bad day and wanted to feel sorry for myself with people who understand... Thanks, I feel better now :-)
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009....I also have Graves disease/Hypothyroidism and psoriasis
Current meds: 1200mg xifaxin, 3mg entocort, Humira (started 3/23/09), 150mcg synthroid, 20mg aciphex
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levaquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....
 


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 7/11/2009 1:17 PM (GMT -7)   
It's hard not to get sick and tired of being sick and tired, I hear ya.

Sending good thoughts your way.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds (ah, those were the days, eh?)
Tried Humira. Failed. Tried Gluten Free. Leaning towards Failure there too.
Currently on:
Cimzia (started 2-12-09) Again, not helping much, if at all.
Probiotics, Digestive Enzymes, Forvia vitamins, and calcium chewies
Feeling a bit jaded lately, but trying to keep my chin up.


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 7/11/2009 3:28 PM (GMT -7)   
I hear ya loud and clear. Hope the weekend improves and something good happens to you just to take your mind off the awful.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/11/2009 7:21 PM (GMT -7)   
I hear you too - sick and tired of always being sick and tired!
Makes me feel a little better to vent too.
Jo

Katzzz
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/11/2009 11:17 PM (GMT -7)   
I hear you vent away we all need to some times. Heres wishing you a better tomorrow. One day at a time.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/12/2009 7:46 AM (GMT -7)   
Vent away here, you are among those who understand it all. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 7/17/2009 11:41 AM (GMT -7)   
Thanks everyone for your support...this website is a g-dsend!....wishing you all a great weekend :-)
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009....I also have Graves disease/Hypothyroidism and psoriasis
Current meds: 1200mg xifaxin, 3mg entocort, Humira (started 3/23/09), 150mcg synthroid, 20mg aciphex
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levaquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....
 


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 7/17/2009 9:51 PM (GMT -7)   
Ditto! I'm sorry your having a bad day. I think we all have those at one time or another. Feel free to vent all you want. Thats the whole purpose of this forum. Heck, while most people go online for fun, here we all are in the Crohns forumn. Isn't life grand? ha ha ha
Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.  Currently have C-Diff.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Levsin, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone & Entocort


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 7/17/2009 10:01 PM (GMT -7)   
Hi Goldy

I can understand what you must have been going through, as I myself have been facing the same thing. Now they are suspecting it to be Crohn's. Anyway, we need to be strong and never give up to such things. Stay positive., The things would definitely improve. Have a nice weekend.
PS
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


OCTim
New Member


Date Joined Jul 2009
Total Posts : 6
   Posted 7/17/2009 10:08 PM (GMT -7)   
I hear you too! My sentiments exactly.
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