Longest Flare?

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Veteran Member

Date Joined May 2009
Total Posts : 703
   Posted 7/11/2009 1:34 PM (GMT -6)   
What's your longest flare? I've recently passed 3 months with active GI symptoms, and probably another 3 months in addition to that with "low-level" symptoms like joint pain, PG, and fatigue. Someday, maybe, hopefully, remission will come again...

Regular Member

Date Joined May 2006
Total Posts : 229
   Posted 7/11/2009 2:23 PM (GMT -6)   
Well I would like to point out the fact that it is sometimes difficult to classify a 'flare' with myself. I mean my symptoms usually get worse and worse gradually. I suppose getting something like a partial obstruction is considered a flare...so those can hit me, then im sick/flaring for a 3-4 day span. As for having chronic symptoms, but still being able to work (even just barely), this can be confusing to me. Having little appetite and cramps but still surviving is when it gets difficult for me to say that im flaring or not. I get this alot. Anyhow, im sorta trying the Specific Carbohydrate Diet, and it does seem to help a bit...and its only been a few days...cheers

Veteran Member

Date Joined Feb 2009
Total Posts : 529
   Posted 7/11/2009 2:27 PM (GMT -6)   
6 months was my longest with full blown symptoms. I've only had 2 flares since I'm newly diagnosed, my other one lasted about 2 months. The 6 months was absolutely brutal though, worst 6 months of my life for sure....

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 7/11/2009 5:05 PM (GMT -6)   
I guess I had 3 straight years of "somebody shoot me, so this can be over" and then gradually I got way better and don't feel like I am on that train any more. Have bad weeks or days but nothing like that ride.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 7/11/2009 5:29 PM (GMT -6)   
about nine years.
Co-Moderator Crohn's Forum.

New meds thread

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 7/11/2009 6:13 PM (GMT -6)   
6 years. Ive never been in remission since being diagnosed when I was 16.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 7/11/2009 6:39 PM (GMT -6)   
Same boat as trigirl...but still in it...3rd year...then there are what I term the "super flare"...symptoms get so worse...but I did experience remission for 3 years...still looking for the remission...anyone seen it? I seem to have lost it somewhere...
"The earth laughs in flowers"

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 7/11/2009 8:22 PM (GMT -6)   
4 years and counting
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 7/11/2009 9:19 PM (GMT -6)   
Easier to count the only real remission I have had and that was 2 months.

Regular Member

Date Joined Jan 2006
Total Posts : 355
   Posted 7/11/2009 10:56 PM (GMT -6)   
15 years! Never a day without pain and bleeding. The diarrhea would ease up a bit here and there.

Veteran Member

Date Joined Oct 2008
Total Posts : 1342
   Posted 7/12/2009 12:01 AM (GMT -6)   
The longest would be pre-diagnosis, which was 2 years. My worst flare was 2 summers ago. I normally didn't have a tremendous amount of pain unless I had an obstuction. But that summer, I had really awful back and abdominal pain for 4 months. If my doctor hadn't given me a script for oxycodone, I would have curled up and died. The funny thing was, it was a pretty happy summer, even though I spent most of it flat on my back (I just read a lot, and played video games). That pain pill high kept me from feeling sorry for myself, I guess. What finally ended the flair was entocort. I'd been on prednisose the whole summer, but it didn't help at all. My insurance company finally caved after 4 months of badgering and let me have the entocort. Would have been nice to have gotten it at the beginning of the flare!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

Regular Member

Date Joined Jul 2009
Total Posts : 38
   Posted 7/12/2009 12:59 AM (GMT -6)   
I've had problems 8 years before I was diagnosed alittle over ayear ago so I have to say 9 years. It has gotten worse through the years.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/12/2009 9:50 AM (GMT -6)   
I would say the longest was back in 2004-2005. It took about 1 1/2 years to get it figured out that it was an stricture and after trying all sorts of meds they finally decided I needed another resection. All has been pretty good since then, just a few bumps in the road.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jan 2007
Total Posts : 656
   Posted 7/12/2009 5:53 PM (GMT -6)   
I don't even know how to figure out whether my perpetual daily problems constitute a flare. Feels like forever--5 years before diagnosis and 10 years since.

Regular Member

Date Joined Jun 2006
Total Posts : 289
   Posted 7/13/2009 7:48 AM (GMT -6)   
Wow, I'm sorry to see how many of you are dealing with a flare for years! I had a bad flare for 7 months and I didn't know how I was going to get thru it. I look back on it and still don't know how I survived the daily physical and mental anguish. My heart goes out to all of you and what you're going thru.
Current Medications:

Pentssa, 1000 mg od
Vitamin D
Red Yeast Rice
Calcium/Magnesium Supplement
Nature's Way Primadophilus Bifidus Probiotic
Remicade infusion; every 8 weeks
Ambien, PRN
Seasilver Whole Food Liquid Nutrition

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