Dealing with Pyoderma Gangrenosum! PART III

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Kirei
Regular Member


Date Joined Jun 2009
Total Posts : 100
   Posted 7/12/2009 7:24 PM (GMT -7)   
Ok guys as requested by the boss on this forum we have to start a new thread this continues from http://www.healingwell.com/community/default.aspx?f=17&m=1501359
Diagnosed with Pyoderma Gangrenosum May 09


I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian


Kirei
Regular Member


Date Joined Jun 2009
Total Posts : 100
   Posted 7/12/2009 7:29 PM (GMT -7)   
Grandma,

Here is a picture of my wounds on my left leg ....ATTENTION EVERYONE: If you dont like open wounds hehe I advise DONT GO TO THE FOLLOWING LINK!!! :P As Willow would say "The following picture is a picture of my oozing zombie leg" or as Misscamper would say "The following picture is of my boo boo" http://i42.tinypic.com/2lt4i0.jpg

:)

<3
Penny
Diagnosed with Pyoderma Gangrenosum May 09


I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian


happy grandma
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/12/2009 9:40 PM (GMT -7)   
Thanks for the picture, bad as it is. I feel for you, but now know, I have the same type of sores. Mine are in different spots of the leg, so less big in size, it appears. Sorry if you already said, but how long have you been dealing with those ones in the picture?
 
Jan

Kirei
Regular Member


Date Joined Jun 2009
Total Posts : 100
   Posted 7/13/2009 5:22 AM (GMT -7)   
Hi Grandma,

The biggest one is the original wound that occurred in Aug of 08, a few weeks later the smallest wound appeared it originally started as a small little red blister. I also have a smaller wound on my right leg. I have a total of 3. The largest wound measures almost 6inches x 6inches *sigh* :(


Well Cyclosporin is doing me absolutely no good, it makes me so very very sick to my stomach :( Ive been in bed all weekend with nausea and a horrible headache which are both side effects from this medication, and it started about 2 hours after I took my first dose on Friday. *sigh* So this is my luck isnt it? :( I do know that I can not live the next few months like this in bed, Im a single mother...I have a house to take care of....I cant be in bed because I feel so sick :( I did catch up on sleep, when Im sleeping I dont notice being sick to my stomach at all. When Im awake oh my goodness, I feel like Im green in color, thats how sick I feel. My tummy makes horrible rumbling gurgling bubbling noises. Grrrrr So calling my dermatologist first thing in the morning to see what we can do to get this to go away.


I hope everyone else had a good weekend

<3
Penny
Diagnosed with Pyoderma Gangrenosum May 09


I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian


Kirei
Regular Member


Date Joined Jun 2009
Total Posts : 100
   Posted 7/13/2009 6:20 AM (GMT -7)   
Sarah,

I know too well the pain you are feeling :( and my heart bleeds for you! As far as the smells from wounds, yes mine have smelled many times, thats usually a sign of infection also, please get that checked on Tuesday maybe request a culture if the wound is sore and really red. Let us know how it goes :( maybe you should call your doctor today to see if you can get in a day early? Infections in wounds can be scary.


Love,
<3 Penny
Diagnosed with Pyoderma Gangrenosum May 09


I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian


happy grandma
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/13/2009 10:13 AM (GMT -7)   
Oh Penny, My heart goes out to you, so sorry you have been so sick. You just don't need to add being so nauseated to your list. It is so hard to function. Sleep is good, but you need to get something to make you feel better. Sometimes with some drugs, your body will adapt to the side effects, but not sure how long that should take.

I was looking at my sores today and all I could think of was how BIG yours are and I can't imagine the intense pain you must have with those. I have to say that the zinc wet wrap that I had put on last has really helped mine. They are much smaller and have some nice pink skin around the sores. The pain is still quite severe, which I don't fully understand. Sure hope you get some relief soon.

HUGS to you, Jan

Kirei
Regular Member


Date Joined Jun 2009
Total Posts : 100
   Posted 7/13/2009 11:19 AM (GMT -7)   
Oh my gosh!!! MY DOCTORS ARE JUST RETARDED!! I really cant stand the doctors here in Washington :( Seriously they are just dumb!!! So my dermatologist finally called me back, first she said I must have the flu or something to feel this bad, Im like uh No? Im not actually throwing up just feel like Im going to, if it was the flu I would know Im not achey, I do have a headache like bigtime, its even listed as side effects....GOD! So she says ok lets cut it in 1/2 and try that ...Im like ok no problem w/e. Then I mention to her that the wound clinic is still wanting to scrap my wounds and I dont want them to scrap my wounds...she says "this is normal to prevent bateria" I said uh I talk to like 20+ people with PG and NONE OF THEM get their wounds scrapped, it only makes sense if a person with PG gets their wounds scrapped that this would make the wound grow......she says ok ok I will talk to the other derm in her office and see what he thinks on scrapping PG wounds. *sigh* I said look its my leg, and I say they arent scrapping my wounds anymore...so thats the end of that!!!!


SERIOUSLY!!!! Im so burned out on this!!!! *sigh* I mean come on ....I just think its a lil odd that my wounds have grown so much in just a couple of months when they were almost scrapping me on a weekly basis...then I start asking around to other people who have PG and they are like WHAT THE HECK?!?! Some of them even said their docs say ABSOLUTELY NO SCRAPPING!!!!! Im about to just fire all of these doctors and find new ones! So annoyed with this crap!

Sorry and thanks for letting me vent!

<3
Penny
Diagnosed with Pyoderma Gangrenosum May 09


I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian


happy grandma
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/13/2009 1:14 PM (GMT -7)   
Oh Penny, I understand how you are feeling and I would really recommend a change in wound care! The nurse I go to also wanted to scrape and debride my sores and I told her about the information I had read and then she said she also went and studied up on PG. So as much as she would like to care for me (scrape) like she does for other types of ulcer sores (from other reasons)she doesn't.

I also live in WA, down here in the Olympia area and have found that most medical workers aren't familar with PG, but my dermatolgist was and stated, DO NOT irritate the area at all!!!!!

I hope taking less of the medicine helps with the side effects.

Hang in there.

Jan

kimike
Regular Member


Date Joined Mar 2009
Total Posts : 21
   Posted 7/13/2009 4:21 PM (GMT -7)   
 Hi everyone.  My husband has been fighting PG for nearly 2 years now.  He also has Crohn's disease.  I hope I can help a bit.  A wound care doctor, besides the rest of them, plays a big role in this.  If the wound should progress to quickly Hyperbaric Oxygen Therapy should be considered.  Lets face it, the biggest fear is a bone infection.  HBOT closed Mikes wound within 10 days after being put in the hospital for the fear of infection.  It is not "curing" the pg because of the systemic aspects of it.  But it is temporarily slowing it down to give the meds a chance to work.  He got pg while on remicade, drugs after that were, tysabri, imuran, prednisone, humira, double dose humira, double dose humira with methotrexate pills, cimzia, Current drugs, Cimzia with methotrexate pills and pletal.  (he developed a massive dvt in the same leg, pletal should help this)
I am sorry you all are suffering with this.  I know the pain is horrible.  Kim

kimike
Regular Member


Date Joined Mar 2009
Total Posts : 21
   Posted 7/13/2009 4:24 PM (GMT -7)   
SERIOUSLY!!!! Im so burned out on this!!!! *sigh* I mean come on ....I just think its a lil odd that my wounds have grown so much in just a couple of months when they were almost scrapping me on a weekly basis...then I start asking around to other people who have PG and they are like WHAT THE HECK?!?! Some of them even said their docs say ABSOLUTELY NO SCRAPPING!!!!! Im about to just fire all of these doctors and find new ones! So annoyed with this crap!


The wounds are not supposed to be debrided AT ALL! Find another doc.

OriginalAreU2
Regular Member


Date Joined May 2007
Total Posts : 89
   Posted 7/13/2009 4:54 PM (GMT -7)   
Tender hugs to all
 
Aww Penny, I cant believe they keep wanting to scrape that wound...to mess with the good healing makes no sense.  I will mention it to my derma/wound clinic dr when i get in there next week to get his reation.  My wound that I am dealing with now, has been this size for 18 months with little signs of improvement.  They said the main point at this time is just to keep the cells healthy and growing and not infected. Any infections I could lose the leg. 
The size of mine is  about 3 inches below the knee to the ankle area and covers the entire front area of the calf.  Thank goodness the depth has come up from about an inch deep to about skin level.
 
Hows work going? Any plans on  moving to Tx still?
 
I was saddened to see we have gained  new members to this painful club.
 
Someone mentioned their spouse getting hte hyperbaric chamber...most insurances wont cover it  and to pay it out right I was told was over 500 a session....being unemployed and on disability I cant afford that.  You are lucky yours is covered and it worked so quickly!!!
 
I will get a pic on here soon.
 
With cyclosporin, I hope you were told its an immunesuppressant and there is more infor at webmd, and otehrs.  There have been times when I felt a dr was not listening and I would copy and hightlight things  just to show I was paying attention even if they werent.   As a visiting nurse told me, Its your body and your health, if you dont take control of it, you will have no control.    She gave me a big backbone to speak up against things that werent being done for the best of me, but for the best of a dr.   I was so naive....i was like.. but my dr said lol......no longer am I like that .....I question everything....get home research  and ask some more. 

Hugs to all  and PS   wow  a part 3? lol  u go penny!!!  its all your hard work!
Diagnosed 4 years ago. been  a helluva ride since.  If there is a side issue to this dd I can find it.  I suffer with Pyoderma Gangrosum and horriffic mouth ulcers that get to the point I can't open my jaws.  Last one was nice enough to create a fistula and  add to my list of fun things to deal with.
Been on all kinds a things, currently on Imuran 50 mgs and it at least give me some confidence in leaving my home.
Allergic to Remicade. Promethius test shows my body fights it.  Also suspected to have PBC or PSC  autoimmune liver disease.
 


janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 7/13/2009 5:05 PM (GMT -7)   
Penny, when I had staph on the outside like that, I got a script for MUPIROCIN cream, and it cleared the staph part right up -- and cleared the wound of infection. are those new or old pics?
strictures, crohn's, adhesions, endo. Pyoderma Gangrenosum.
LDN 4mg ~ Boswellia Serrata ~ Olive Leaf extract ~ SCD yogurt. Using silver sulfadiazine on Pyoderma . B-12 shots. Juicing veggies!


willow22
Regular Member


Date Joined Jun 2009
Total Posts : 36
   Posted 7/13/2009 7:38 PM (GMT -7)   
Hey Penny--
 
I'm so sorry that you have taken ill again.  Sounds like a crappy weekend. I wasn't on cyclsporine that long and don't remember if it made me sick.  I do remember the seizure,however.  I agree with Jan. Don't let them scrape again,please! It just seems so wrong. Your body...your rules!  My MD is in Bellvue if you are thinking about changing. I'm glad your kids are old enough to help you.  I also know how stressful it is to be sick so much of the time.  My boys are afraid that I am going to die.  Do you want to move back home?  Your parents sound phenomonal!  3000miles is alot.  My family is in VT.  Long way. Penny- I'm so close what can I do to help?  I have an 11:00 appt in Bellvue tomorrow.  I could shop for you, take you out or deliver a meal.  I would love to:)Please consider:)  I looked at your "war wounds"....Ouch!!! I sent two of the ones I have to you today.  I sent it to your e=mail (actually my son did because I don't know how..sad sad sad )
 
Jan ,we should make plans for Penny and me to meet up.  You are close to McChord AFB,right? Penny, I could pick you up on the way!  Just a thought!
 
Miss camper--you make me smile and giggle too!!  We would be talking to each other through the walls of crazy hut if we ever lost our sense of humor!  Although...get to sleep in every morning, clean sheets daily,get to live in PJ's,three squares,hours to chat-read-bathe,no stress...hmmmm?! HA! Thanks for keeping the humor:)
 
Feel good
 
Peace---Willow:)

happy grandma
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/14/2009 12:30 AM (GMT -7)   
Willow, I would like very much to meet up with you and Penny. I am about 20 minutes from Mc Chord, and could travel your way to meet somewhere, in between our two areas.

Hope everyone gets a good night's sleep.

Jan

MissCamper
New Member


Date Joined Jun 2009
Total Posts : 11
   Posted 7/14/2009 7:37 PM (GMT -7)   
Hello Gang -  yeah Went to doc for my two week visit; he likes the way the wounds are healing but as I mentioned last time, he took a biopsy of some other wierd red marks .  Results were odd - so much so that he called the lab - urticaria - English: hives.  He told lab no way with the amount of Pred I'm on.  So, having a bunch blood work done C3, C4, CH50, ESR, CBC, ANA; he's guessing urticarial vasculitis.  So, we shall see.  Went on the internet and poked around.  Interesting, that many of the symptoms associated with UV I have had in the past before the Pred.  i.e. spontaneous swelling of toes, fingers, tongue, lip.  Was just thinking the other day that I haven't had those symptoms in a while and figured it might be that I was on the Pred.  One time I woke up in the middle of the might and my tongue was so large on one side my mouth wouldn't close - off to ER.  Apparently, there is some connection between this and lupus.  Doc mentioned depending on diagnosis I might have to go on Imuran.  Cut my Pred down to 20 mg, SSKI to 24 drops a day, and remain on 100 mg Dapsone.  I told him today about all of you and how he should look at this web site and all of our stories.  This guy is a walking encyclopedia.  His name is Dr. Murakawa - check out his CV on line.  He's in Troy, Michigan.  Wish I had found him a year ago before making the rounds with all the other docs I saw before him.  Part of the journey,  I guess.  You are all in my thoughts and prayers....Warmly, Miss Camper

sarah2425
New Member


Date Joined Jul 2009
Total Posts : 8
   Posted 7/15/2009 6:10 AM (GMT -7)   
I went to the doctors yesterday she said the odor is normal and I am already n anti biotics from a staph infection I had a few weeks ago so, The appointment was stupid they still seem stumpped on how to treat me because treatment hasnt worked so far I am on 400 mgs of cyclosporine and 40 mgs of pred waiting for insurance comp to approve remicade and hopefully start this soon and put an end to all of this, I know this is a chrons site I dont have chrons does anyone else have pg but no chrons?? Also my ulcer is above my ankle 4 cms big she said it was very inflammed so they gave me steriod cream to put around the wound and it made it feel so much better.

So how do you not let this affect your life??? Does anyone still excersize?? I havent but am sick of feeling like a lard ass, I dont even recongnize myself and have read people can get healthy and lose weight on prednisone so I am putting pg aside and I am going to stop making excuses for myself and I am going to stop feeling bad and stuffing my face because of it, this Pg may take something from me but I an not gonna let it ruin everything no more today I take charge not the PG!!!! I am going be be healthy again today I am going to start Weight watchers and will do some walking nothing crazy definatly not power walking! Thanks for listening! ttyl

Sarah

Kirei
Regular Member


Date Joined Jun 2009
Total Posts : 100
   Posted 7/15/2009 9:46 AM (GMT -7)   
Hi Friends,

Well, remember when I told you guys I wouldnt type anymore books? Im going to try my best to keep this short....BUT IM NOT PROMISING ANYTHING!! :) As you all know I cut my Cyclosporin to 200mg a day instead of 400mg a day, to try and get rid of the "OH MY GOD IM GREEN AND IM GONNA PUKE" feeling. rolleyes Well yesterday I was feeling a bit better as far as the upset stomach goes.

Now for something positive and VERY exciting for me. My Friends, I went to get my wrapping changed yesterday at the wound clinic...and something awesome happened, all 3 of my wounds shrank. Yes you heard me correctly.....THEY GOT SMALLER!!! and not just a little bit smaller, I could tell by just looking at them. As soon as the nurse took off my wrapping I knew, YAY!!!!!! Now, was it worth the being in bed all weekend feeling green? ....OF COURSE IT WAS!!!! Whats the saying? No Pain, No Gain. Now, would it be worth it to be like that for months and months? OF COURSE NOT...I have to be able to function. I also want to point out, I do NOT think this medication after 3 days made my wounds shrink, I honestly think God allowed me to have this gift this week. This has be a big spirit raiser for me, and has also given me hope that it may not be months and months before they are closed.

Regardless of the shrinkage, there is still wounds there, and these wounds no matter what size they may be DO NOT like to be messed with! I have said this over and over and I will continue to say my wounds, really dont like to be cleaned, they dont like direct air, the longer they are in direct air, the worse they hurt.

My dermatologist called me late afternoon yesterday, to see how I was feeling after cutting the medication in half, I told her I felt pretty good as far as not being sick to my stomach, we discussed it and we are going to boost it up to 300mg starting today. If I feel sick or get a headache that I cant kick, I will go back to 200mg. We discussed my wounds being smaller, and she also had an answer for me...remember in my last post she was going to ask the other Dermatologist about debriding of my wounds? Guess what the answer is "ABSOLUTELY NO" "THE WOUND CLINIC IS NOT TO DEBRIDING THE WOUNDS". :) So, Im glad that Im going to be able to educate this wound clinic about PG, YOU never know when one of my fellow PG'ers will be walking through those sliding electric doors of Valley Hospital Wound Clinic, I want to look out for the NEXT person.

Jan and Willow,

My dearest ladies, LETS DO LUNCH! Here is my issue for doing lunch I now have 2 wound clinic appointments a week and those days are ALWAYS bad for me, thats a given, but its Every Tues and Friday. I see my family doctor every other Thursday. And I will be going to see my Dermatologist sometime next week I need to call and make an appointment with her I just dont know what day, either Monday, Wed or Thurs. I always try to make appointments really early to get them over with. hehehe! So ladies, anyday but Tues and Friday and Im up for it. Just let me know when and where, or what we can do to pull this together :)


SARAH!!! :)
I loved the positive attitude my friend :) I agree, PG cant run us down!!!!!!!!! Sarah, I do not have any underlying disease and isnt it funny Im the one who started this PG thread here; the reason is because I could not find other forums strickly for PG, NOTHING and I knew, that people came here, and I also knew that Crohn's and UC both are underlying diseases, and if I could just talk to one person with PG that is what I was looking for, and its actually turned a little crazy there a number of us, and we mainly focus on PG ...I really havent seen anyone talk about Crohn's in our "PG club" or UC even really. Sarah please come by more often and talk to us!!!!!!!! You can always ping me on MSN too! <3

The best thing I have done since I got told I have PG is start this PG thread. I honestly dont know what I would have done with out you guys. I probably would have the wound the size of Texas on my leg in 3 months if I didnt make this post because of the incorrect treatment I was receiving, so this goes out to each of you....THANK YOU!!! Thank you all for listening, for caring, and for just being here!!!! I love you all, and I pray for each of you and your families. I consider all of you a blessing in my life.


Much Love and Many Hugs,
Penny
Diagnosed with Pyoderma Gangrenosum May 09


I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian


happy grandma
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/15/2009 11:41 AM (GMT -7)   
Sarah,

I do have Crohn's too, but they say many have no detected underlying diesease.

I sure hear you about the Prednisone!! I was on that awful (but helpful to many) drug for 23 years straight, for my asthma. That was a few years back, but the side effects I got, will stick in my mind forever! Good for you to want to take control and best of luck. Our attitude and how we deal with what happens to us can make a big difference. I thought I would never have a normal face again, but thankfully it happened and I can remember going to the mirror just to admire the thinness and how nice it was to not have a beat red face any more!!

I am on Remicade and have been for a long time for my Crohn's (Hope you get the ok for it). I was off for a few months and during that time, I got the PG, so back on now and hopeful it will help me.

Take care, Jan

I am a Lifetime member of WW and think it is a great place to go to. Loved the support of the members and all the great tips shared on getting more fit and trim! I need to go back to the weekly meetings again to shed the weight I have gained back. But it will happen.

happy grandma
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/15/2009 11:50 AM (GMT -7)   
Penny,

I was so pleased to read that you are feeling better, hope that continues and improves daily!! Good news on the sores getting smaller, whatever the reason, how nice to finally have happen.

I am thankful you started the PG thread and that somehow I found it!! It is so nice to have the opportunity to talk with others who understand what you are going through and to share information.

Enjoy your day. Jan

I actually am free for lunch most days, my appointments for the wound care and Drs are flexible and I can work them around having a nice lunch!! So, I hope Willow and you can come up with a day, time and place and I will be there!

Kirei
Regular Member


Date Joined Jun 2009
Total Posts : 100
   Posted 7/16/2009 6:17 AM (GMT -7)   
Hi Everyone,

I hope everyone is doing well. I have an appointment this morning with my family doctor to make sure we are good on pain control. Good News, I got approved for Long Term Disability...its good through Oct 31st then they will review my case at that time again. This really pleased me I was worried that I was gonna have to join a freak show to get some money(I figured a freak show would love to take me, they could always say I was bit by a zombie?) :) HAHA

Love,
Penny
Diagnosed with Pyoderma Gangrenosum May 09


I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian


norma3
New Member


Date Joined Jun 2009
Total Posts : 10
   Posted 7/16/2009 12:31 PM (GMT -7)   
Hi,Sarah2435,
Wow, someone else with APS! I was just diagnosed a couple weeks ago! I have been fighting PG since 2005 & now they(new Rheumy) tells me that it was APS all along. ( Antiphospholipin syndrome- FY others- a blood clotting disorder that makes u clot tooo much. It is autoimmune disorder ).

He says the ulcers aren't PG at all, but APS ulcers-they look & feel the same.

U & I have very different treatments.
I am currently on 325mg. of aspirin. Later, when my ulcers are healed up better, adjustments will be made for maintenance meds. Probably Heparin & aspirin.
He is totally against the evil Prednisone ( & I agree, I gained 40#'s from that stuff) & scraping.

My status now: the ulcers stopped getting bigger, don't hurt as much & have STARTED healing on their own.

I wonder how many of us out are diagnosed with PG & really have APS?????????

Info website & forum for APS Foundation:
http://www.apsfa.org/aps.htm#6

willow22
Regular Member


Date Joined Jun 2009
Total Posts : 36
   Posted 7/16/2009 6:44 PM (GMT -7)   
Hey to all-
 
Penny--so happy to hear about the shrinkage!!! Yippie!!!!!! Take and enjoy all you can get!  The Good Lord knows you deserve every little bit you can get!  Good on you:) I still hope this is your wonder drug. Thanks also for setting up another thread...I don't really understand it or how to do it and sure do appreciate you for taking the inituative!  This place means sooooo much to me!!!! My boys are out of summer school 31 July.  I have a couple of days to lunch before we go on vacation.  We are going to VT for a week to visit my family and then on a cruise to Alaska (never been on a cruise!) I'll be gone most of August. Perhaps, it might be best to wait until the school year begins for you?  I can be flexible and it sounds like Jan can too.  I have to go to Sam's this week ...do you need anything?  A hot dog/combo?  One of my guilty pleasures:) Please call!  Also, thanks for the e-mail reply.
 
Sarah-  I've been on 80mg a day of Pred for two years.  It sucks, I agree.  Before I got PG I used to swim 6 days a week.  I miss that so much and it is so much cheaper than therapy! I try to walk on my treadmill as often as I can and do low impact stuff, light weights crunches etc.  It's not much but makes feel a bit better about myself.  My MD put me on blood pressure meds a few months ago that has a diuretic in it.  I lost 7lbs.  Not much but I feel less puffy.  Perhaps a diuretic might help.  Hang in there.
 
Miss Camper-I can't believe your swelling problems.  You must haved panicked when your tongue swelled!  Did it effect your breathing?  How scary!
 
I was up again all night with my son who has diabetes.  His blood sugar has been awful lately.  I'm pooped and done for the day.  Hope everyone has wonderful dreams!:)
 
Peace---Willow

Kirei
Regular Member


Date Joined Jun 2009
Total Posts : 100
   Posted 7/16/2009 10:24 PM (GMT -7)   
Willow,

Hi my friend..thanks for the offer on the hotdog/combo!!! LOL :) Im doing very well now that Im not green from side effects of the medication, thank you for your sweet offers to help me out! The lunch thing, Im scared if we put it off, by the time you come back at the end of Aug I may be in Texas, Im not sure what my exact plans are because I have not heard from T-Mobile on what they are going to do about my job. Maybe next week then? or is that bad? Next week Im open Mon., Wed., and Thurs. Really up to you guys though :) Oh goodness Willow, hate to hear about your son :( I will keep praying for him. I hope his suger becomes stable soon. Must be so hard on him and you too, as being a mother myself we always wish our children the very best in everything, it must be heartbreaking for you as his mother to see him go through that.

As far as Aps? Hmm Ive had so much blood work done I think it would have been caught, however I will mention it to my doctor to make sure..thanks Norma for bringing this to our attention. You are right never know maybe there is more PG'ers that really have APS, I think everyone should ask their doctors now, just to keep it safe and to make sure you are being treated correctly, our health is the most important isnt it? :)


I will check back soon. Havent seen mark in a few days ...kinda getting worried about him :(


Love,
Penny
Diagnosed with Pyoderma Gangrenosum May 09


I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian


Kirei
Regular Member


Date Joined Jun 2009
Total Posts : 100
   Posted 7/17/2009 10:04 AM (GMT -7)   
Hi guys,

Gotta go to the wound clinic today :( Really burned out on doctors *sigh* I feel like Im ALWAYS in a doctors office. I hope everyone is having a good day so far!


Love Penny
Diagnosed with Pyoderma Gangrenosum May 09


I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian


willow22
Regular Member


Date Joined Jun 2009
Total Posts : 36
   Posted 7/17/2009 1:50 PM (GMT -7)   
Hey all-
 
Penny- I hope you had a good appt today and that you don't hurt too much.  I can do lunch on Monday if that still works for you and Jan.  Jan, do you know of a good place to meet?  I'm not to familiar with the area.  Hope this works!!!  Penny, did you have any luck finding Mark.  I'm worried about him too.  Hopefully he's on vacation enjoying himself!
 
I need to go rescue my flowers from my chickens!  They are out tearing up my garden!  Urban chickens!!
 
Hastily---Willow
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