Hi, Visitor from the UC section and I need some help please...

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bbc
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Date Joined Mar 2008
Total Posts : 1580
   Posted 7/13/2009 9:54 AM (GMT -7)   
Since those with CD get more fissures that UC'ers it was suggested I post here.
 
I have an old fissure that likes to open when I have normal large sized stool but this time it is causing me great pain when I sit as well (can't sit for more than a few minutes without having to get up). Anyone get pain or increased pain in the rectal or anal area after sitting from their fissure?
 
Thanks so much : ) 
 
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3130
   Posted 7/13/2009 12:40 PM (GMT -7)   
Hi bbc. i have never been officially told I have fissures, but you know darn well when you do have them.
I have problems sitting when my fissures are at their worst. Sometimes it aches like I sat on a hard bench for too long. Sometimes it is a sharp pain.
The only thing I can do for it is soak in as warm as possible water. I also have one of those back support pillows on order---it has a gap in the back edge to take pressure off the lower back...and I found it also takes pressure off the tushy area.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


bbc
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Date Joined Mar 2008
Total Posts : 1580
   Posted 7/13/2009 2:00 PM (GMT -7)   
Thanks HabsHockey Fan.

Mine stings/burns for hours after a bm and sitting is the worst.
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


ivy6
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Date Joined Sep 2005
Total Posts : 10404
   Posted 7/13/2009 3:57 PM (GMT -7)   
(((bbc))) Ouch.

It is possible to buy anaesthetic gels such as Proctosedyl. I doubt a gel will eradicate the pain, but it might help.
Co-Moderator Crohn's Forum.

New meds thread


bbc
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Date Joined Mar 2008
Total Posts : 1580
   Posted 7/13/2009 4:53 PM (GMT -7)   
Hi Ivy and thanks. They gave me some cortisone creame with a pain med, and either I could not get the med on the fissure or it did not help. Have you ever had a fissure (hope for your sake you didn't)

Thanks again : )
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 7/13/2009 4:56 PM (GMT -7)   
Before I was diagnosed I had multiple fissures and fistulas. I was told I had Hemmis, Not! I used the sitz bath I had from when I had delivered my daughter. I would use it multiple times a day with really warm water. Hope that helps some.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


bbc
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Date Joined Mar 2008
Total Posts : 1580
   Posted 7/13/2009 8:04 PM (GMT -7)   
I've been using my bath tub keeping my knees up pulled close to my chest keeping my feet flat on the tub floor to let the water get in/close to my anal area...will this work or must I actually get a commode based tub?
Thank you
Zanne said...
Before I was diagnosed I had multiple fissures and fistulas. I was told I had Hemmis, Not! I used the sitz bath I had from when I had delivered my daughter. I would use it multiple times a day with really warm water. Hope that helps some.


Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/13/2009 9:43 PM (GMT -7)   
I had five of the darlings at one time several years ago. I could not even sit for a 5 minute ride to the doctor. In addition to prescribing something to help them heal, he also prescribed Lidocaine gel. It came with a nifty applicator for making sure it got in the intended area. Since I typically had my first BM within 30-45 minutes upon awakening, he had me apply it right after I got up. Then when I had my BM(s), it didn't feel like I was passing razor blades because the lidocaine numbed the area - totally!

Fissures can be some of the worse pain....I am so sorry you are having to go through this.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/14/2009 12:06 AM (GMT -7)   
bbc, yes, I've had one (more? dunno) for years. I must say the gel didn't help me much either, but thought I should suggest it anyway.

Are you on enemas to help things heal?
Co-Moderator Crohn's Forum.

New meds thread


bookgal77
Regular Member


Date Joined Jul 2009
Total Posts : 83
   Posted 7/14/2009 2:10 PM (GMT -7)   
Ow, ow, ow - I feel your pain. Fissures are the WORST! I had four of them together earlier this year and I spent weeks not being able to sit comfortably, go to the bathroom at all (I would literally scream when I went to the bathroom). Sadly, the only thing that helped was Darvocet to take away the pain and Nitroglycerin cream (it was a godsend). I tried all the other creams available, and they only seemed to make it worse. In fact, my GI told me that most of the creams I had been prescribed or given by my PCP or ER doc (whom I saw on New Year's Eve...not a fun time to be in the ER) were exacerbating the problem, and not helping it. Good luck - the best news I can give is that they will eventually heal, but it does take time.
**32 year old female; Diagnosed with ulcerative colitis in 2001; diagnosis changed to Crohn's disease in 2009 (but still only impacts colon)
**Asacol (4800 mg daily), 6-MP (100 mg daily), Prednisone (8 mg daily...for a few more weeks), Flagyl (250 mg every other day), Nexium (40 mg daily)
**Thankfully only two major flare-ups...2001 and 2009. Hoping to have another 8 years in between the next one (sadly, I do know there will be a next one).
**GOAL of one day being immunosuppressant free...still working on my doctor on this one but I am a world traveler who desperately wants to go to Africa one day!


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 7/14/2009 9:38 PM (GMT -7)   
Thank you all so very much for the replies...you guy's are great.

I have used cortisone with lidocaine and it really helped the pain, I will ask for just some lidocaine as I get enough cortisone from the Cortifoam I use twice per week and now the cream. What do you guys think about topical cortisone and skin thinning?

I am seeing a new colorectal doc tomorrow and I hope he will be helpful as my current colorectal doc hasn't been able to help me keep these at bay. I believe my problem might be, since my UC and IBS quieted down (thank God) my stool has returned to the length, shape and width like a normal human's should be, but it's been many years since I've had normal stool and I truly believe my anal area needs to re-adjust/re-size, hence my lovely fissure (I've named it "Stingy")...I eat a very well balanced diet, take Benefiber every a.m. and drink lots of water and I'm not forcing myself. "Stingy" is located at the anal opening and it extends up just before the sphincter...the interesting thing is it hurts more right afterward then during the bm.

I'll report back tomorrow and hope you all have a great day on Wed.
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


Katzzz
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 7/14/2009 10:41 PM (GMT -7)   
I hope you find some type of relief soon because I know this is miserable. I had one many many years ago after child birth, I used warm water and sitz bath.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 7/15/2009 7:36 PM (GMT -7)   
Hello all,

I finally found a colorectal doctor that realized I have a problem.

I no longer have the fissure just some scar tissue, but during a very painful exam he roated his finger all around my levator muscle and the burning pain was unreal...he thinks I may have a significant levator spasm but I explained to him I may have Prudendal Nerve Entrapment or Prudendal Neuralgia http://www.ic-network.com/forum/showthread.php?t=56454

PNE is serious stuff and the burning pain I'm feeling in my rectum is worse when sitting (except on the toilet seat); tailbone pain is another classic symptom. Many people with severe unexplained pain in the rectal, anal or genital area are often told after nothing can be found it's in their imagination and in fact it turns out to be PN/PNE. There are only about 6 MD's in the US that treat PNE with most work done in France. I pray and hope I don't have PNE; its also very rare. Cyclists seem to get PNE or it can happen from childbirth or an accident or even without a specific cause.

I have often complained about my rectum/anal canal feeling like there is broken glass in there especially upon insertion of rectal meds. The CR doc has me taking hot baths every evening trying to see if the muscle spasms (which he thinks may be the cause of my pain) get better...I sure hope he's right.

The CR doc also agreed to look at my MRI and see if the perirectal and presacral varices that were found in my MRI might be compressing a nerve, Purdendal or not...I believe he is really trying to help me. I have a call setup with Dr Renney in Houston Texas who coordinates PNE surgery...I pray I wont need it as dealing with UC and IBS is more than enough for me to handle.

I'll be happy to answer any questions and thanks again for the great replies.


Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.

Post Edited (bbc) : 7/15/2009 9:12:50 PM (GMT-6)

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