humira and fatigue???

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rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 7/14/2009 1:18 PM (GMT -7)   
Hello all. Just finished my last injection of my starter kit of humira. Yes, I do them myself,like other folks. No problem there. I am just exausted. Slept 3 hours !! I feel weak as a kitten. Is this true for others??? Other than that, I have tolerated the whole 6 injections with only the normal side effects. Thanks for any input.
Mary Lynn


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 7/14/2009 1:20 PM (GMT -7)   
Um today is a not to good day...I just want to sleep...been that way since I took my shot on Friday...been on it since April

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/14/2009 1:28 PM (GMT -7)   

Hi!

I'm just got my starter kit of Humira in the mail today. Still waiting to start it. But spoke to the nurse and my doc, and other people who's on it. They have said it's very normal to feel tired even for a few days after your first 4 shots. Then in 2 weeks you'll do 2 shots.. you'll feel less tired. then once you get to your 1 shot every 2 weeks (assuming your doing every 2 weeks) you'll start to feel normal and not so tired.

Hope this works for you! as I hope it'll work for me


24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.


goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 7/14/2009 2:45 PM (GMT -7)   
I've been on humira for 4 months now...took about 3 months for it to really start working so don't give up if you don't feel better right away...I still feel fatigued a day or so after the shots and tend to now get injection site reactions (swelling around the area)...but it's no big deal, I put ice on it and its fine the next day...hope it works for you all!...debbie

42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009....I also have Graves disease/Hypothyroidism and psoriasis
Current meds: 1200mg xifaxin, 3mg entocort, Humira (started 3/23/09), 150mcg synthroid, 20mg aciphex
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levaquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....
 


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/14/2009 2:49 PM (GMT -7)   

Thanks for the info.. very helpful! :)

I'm glad your starting to feel a relief, did you also have the arthritis pains, or just the CD? I'm wondering, because I have the arthritis pain very bad and was wondering when someone felt a relieft. I was on remicade before this. It's been 6 weeks since my last infusion. I'm starting to feel it leaving my body as last night the arthritis pain wasn't killing to me to the point of needing a pain killer that hardly works anyways.  


24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 7/14/2009 11:31 PM (GMT -7)   
I was on Humira for three (wonderful) years. I started taking it before you did the loading dose thing. So, I just started with one shot and took another one every two weeks. I would feel tired/sleepy for about 12 - 18 hours following the shot. I had to take Benadryl before each shot so I just figured it was the combination of the two. I figured out that it was best for me to take it on a night when I could sleep in the next day.

My Crohn's symptoms started going away after about 3 months and by 4 months were gone. I had very bad arthritis pain as well and that went away too!

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 7/15/2009 9:59 AM (GMT -7)   
This thread has actually helped me tremendously. As I have been on Humira for 3 months and I do feel better but not 100%. I thought that this would be the extent of the drugs effect, but it sounds like the longer I am on it the better it will get.
Generally I feel pretty good, I just cant seem to have a solid stool anymore. They are always loose. I asked my GI and he said that that isnt an issue as Im only going 2 to 3 times a day and Im not loosing weight and there isnt any pain...

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 7/15/2009 10:01 AM (GMT -7)   
This thread has actually helped me tremendously. As I have been on Humira for 3 months and I do feel better but not 100%. I thought that this would be the extent of the drugs effect, but it sounds like the longer I am on it the better it will get.
Generally I feel pretty good, I just cant seem to have a solid stool anymore. They are always loose. I asked my GI and he said that that isnt an issue as Im only going 2 to 3 times a day and Im not loosing weight and there isnt any pain...

rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 7/15/2009 12:16 PM (GMT -7)   
Thanks for the replies. I would hate to think that I was becomming a wimp,dut to the fatigue. Had 3 hours with my grandkids this morning that has wiped me out. The oldest will be back tonight, to stay for a couple of days. This old gal better put a pot of coffee on. My daddy said that the prettiest thing a girl could put on...... is a smile. So............., smile I shall. Again, thanks for your support.
Mary Lynn


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/15/2009 3:46 PM (GMT -7)   
Doc2007
Have you tried Pentesa? helps with the loose stols
ask your doc next apt!
 
good luck!
24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.


rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 7/15/2009 5:46 PM (GMT -7)   
Will do. Thanks so much!
Mary Lynn


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 7/15/2009 7:58 PM (GMT -7)   
The trick I've found is to take my Humira late in the evening, around 9 or 10. Then I can just go to bed and sleep through most of the fatigue and not lose a day. I do feel it a bit the next day, but it's not bad. Once you get off the starter pack, you'll have an easier time!
20 y/o, diagnosed 6/2007. On Humira, no wheat or corn syrup, low sugar, low dairy.


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 7/15/2009 9:22 PM (GMT -7)   
mkl11
Thanks! I was thinking the exact same thing (thinking about how I would like to return to work sometime soon) so when I did I wouldn't have to lose a day.
 
You have to take the humira every second week at the same time right?
 
Can someone tell me exactly how the first day of Humira will go? so I can prepare myself.
 
Thanks for the great advice/idea!
24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.

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