Remicade- Does anyone notice that it stops being effective before the next treatment date?

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MTLGUY40
Regular Member


Date Joined Nov 2008
Total Posts : 44
   Posted 7/15/2009 3:24 AM (GMT -7)   
Back in the hospital
 
This Remicade is really wierd
 
1/2 of my treatments are slowed because of minor reactions like hives or itchness but once the treatment is completed (I get 10mg per 10 KG) then the remicade keeps things in check.
 
Problem is that I get my treatment (with max dosage) once ever 2 months and it seems by week 6 the drug loses all effectiveness.
 
This time I started with tons of abdominal pain and effectively a partial blockage called Ilius.
 
Does anyone have the same experiences that Remicade doesnt get them from treatment to treatment?

Naboo57
Regular Member


Date Joined Oct 2008
Total Posts : 23
   Posted 7/15/2009 4:52 AM (GMT -7)   
I have been on Remicade since the new year.  I do notice it wearing off around 6 weeks or so too.  Im on about the same dosage per kilo.  My drs want to put me on another immuno-suppressor to really knock out the flaring.  Im worried about it and am really dragging my feet.  I hope this helps.

Post Edited (Naboo57) : 7/15/2009 5:55:28 AM (GMT-6)


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/15/2009 10:30 AM (GMT -7)   
When I was on it and I started really noticing it wearing off sooner, they increased the frequency from every 8 weeks to every 6 weeks.  You may want to ask your GI about doing that. 
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 7/15/2009 11:11 AM (GMT -7)   
I have been on it for almost 9 years. Yes, it seems to become less effective closer to the cade treatment time. I also have to take immuran to help it last longer. Your doc does need to know all your symptoms and time related to treatment. Hope you feel better soon.
Red (Lee Ann)
    'Be who you are and say what you feel...
     Because those that matter...don't mind...
     and those that mind...don't matter.'


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 7/15/2009 2:11 PM (GMT -7)   
Mine doesnt get worse. My bowel movements and pain are the same all the time. Although I still have bad days.
Diagnosed 2005.
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol


want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 7/16/2009 8:56 AM (GMT -7)   
Talk to your dr, I was moved from 8 weeks to 7 weeks as my symptoms got bad starting at week 6 or so.
want_2_be_well
33 year old Female
Diagnosed with CD 2006, had suffered long before 2006.
CD Meds: Remicade every 7 weeks & Imuran 50 mg,
Also have seasonal allergies, milk allergy, and asthma.
  
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 7/16/2009 10:42 AM (GMT -7)   
I was Remicade for 3 1/2 yrs and got my infusions every 4 weeks. It can be given this way and needs to be tailored to your needs. In additional I was on Imuran and still am for the matter. My gi says Imuran enhances the effect of Remidae.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


MTLGUY40
Regular Member


Date Joined Nov 2008
Total Posts : 44
   Posted 7/19/2009 5:10 AM (GMT -7)   
Update
 
Made it out of the hospital on Thursday.
 
They gave me my 1000mg of Remicade on Wednesday night....usual minor reaction during transfusion (hives)
 
Feeling better already
 
Hope this Remicade lasts me the 6 weeks and I am pushing Doctors to follow your recommendations of transfusions once every 6 weeks.
 
They did tell me that my blood markers were off the charts, meaning lots of active disease as of the day after admission.....no @xit sherlooke was my response...lol
 

want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 7/20/2009 8:58 AM (GMT -7)   
Glad to hear you are out of the hospital! Hope you get your IV before you get so ill next time.
want_2_be_well
33 year old Female
Diagnosed with CD 2006, had suffered long before 2006.
CD Meds: Remicade every 7 weeks & Imuran 50 mg,
Also have seasonal allergies, milk allergy, and asthma.
  
 


insagent
Regular Member


Date Joined Jul 2008
Total Posts : 97
   Posted 7/21/2009 7:42 AM (GMT -7)   
When I get my treatments I'm always premedicated with a dose of steriods and benadryl and this is suppose to help prevent any reaction that I might have. Do you premedicate? If not you might want to ask your dr about it, might help with the hives! Only drawback the benedryl makes me really sleepy, but I'm a cheap date anyways! haha!
 
Tannie 26 yrs Crossett,AR *Currently in Remission*
dx May 08 ,Just finished a 8 month round of pred in January 09. Remicade every 8 wks. 
Taken off 6-MP due to liver toxicity 09/08
Taken off of Asacol also 09/08

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