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dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 7/15/2009 7:03 AM (GMT -7)   
Thank you all so much for all the info on the SCD and hearing your success makes me encouraged to do it!!  I am still eating bland since coming out of the hospital from this flare and on steroids.  I have not had white toast and white rice for so long b/c I've been eating "healthy" whole grains for so long.  I have to say I have enjoyed all this "white" stuff. haha.  Now I am ready to try a permanent diet.  My question is:  Do I need to buy the SCD book?  I'm thinking that would be good to have.  Is there one that is better than the other?  I researched the SCD and Makers Diet.  I'm leaning towards the SCD.   I will miss my cream of wheat and white toast!  but I think I'm ready!
This will take alot of prayer, because I love to eat!!  But I know it will be worth it!!
Thank you all so much!
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg.
 
I live by faith and not by sight....


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 7/15/2009 1:22 PM (GMT -7)   
Yeah buy the book..you can probably get it at the library or on ebay for a few bucks. The book is key(along with prayer :). BTW, there are things similar to cream of wheat that you will be able to enjoy :). Good luck
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 7/15/2009 3:50 PM (GMT -7)   

Hi dinkydee!  Yes, I would buy "Breaking the Vicious Cycle" by Elaine Gottschall.  You can learn a lot about they "whys" behind the diet from the book.  Also, you may want to refer back to it occasionally.  I still do! 

I also found this interview of Elaine Gottschall just before she passed away very encouraging and inspiring!!!  God bless Elaine who never did any of this for personal gain...  She was always quick to give Dr. Sydney Valentine Haas all credit for the diet. 

http://www.torag.plus.com/elaine_small.wmv

 


Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 7/15/2009 5:11 PM (GMT -7)   
Good for you! You can do it! Myself, I got well from UC symptoms following an antifungal diet. I also took natural antifungals and probiotics. Good luck, and keep us informed of your progress. :)

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/16/2009 12:22 AM (GMT -7)   
Like aoccc said, check you library if money is tight. Mine had Breaking the Vicious Cycle, so probably most do. It will help you understand why the diet works.

I just had a teeny setback. I ate more fat than normal on Sunday, and either that or the anti-fungal effect of the extra coconut oil I ate gave me a belly ache. It was a weird hurt, not the usual ones I've had in the past. The glurking sounds felt and sounded like they were coming from a hollow drum. After about 24 hours the weird glurking and bloated belly went away, and I was back to eating my normal diet (sans the extra coconut oil though smilewinkgrin). I guess I'm telling you this so that you don't get scared over setbacks. They happen while you're figuring out what foods your body does and doesn't approve of. But if your body says X is a no-go now, it may change it's mind after a couple more months of healing, so you just make a note to try the food again at a later date.

Give the diet at least 4 months. Most people say 30 days. However, a lot of people have a flare at 3 months (Elaine talks about it in her book), and then have a large improvement after the flare is over. This happened to me. I had a couple weeks right at the 3 month mark where my constipation problems got really bad, and I just felt generally poorly. After a couple of weeks, I was better, and felt the best I had in a long time.

Okay, now to give you links to lots and lots of SCD info :-):

First, you can get a ton of info at http://www.breakingtheviciouscycle.info/.

I’m following the stages at http://www.pecanbread.com/ (the site is going through a major update, so it may be a little hard to navigate right now). While the site is aimed heavily towards parents of autistic kids, the diet principles are mostly the same. The only real difference is that the autistic kids don’t usually tolerate dairy at first, so it’s not listed in the stages. I’m currently eating foods from stage 3. Here’s a direct link to the stages: http://www.pecanbread.com/new/scdfoods1.html#beyond. You don't have to follow them if you don't want to, but it definitely gives you a good idea about what the easiest/hardest to digest foods are.

If you don't want to buy the cookbooks (I'm crazy and own every last one of them), then you can visit one of the many SCD recipe sites. I really like the ones with pictures, so you can see how the dish is supposed to turn out. I’ve always been a dessert fan, so the cakes and cookies are the things that really make my mouth water! Here are some of the sites I like:

http://milkforthemorningcake.blogspot.com/ (all the recipes are listed on the right hand side. The ones that aren’t marked SCD are only gluten free)
http://nomorecrohns.com/deliciousrecipes.aspx
http://comfybelly.com/ (click on SCD in the category list on the left side of the page)
http://deliciouslygf.blogspot.com/ (I think all of the recipes are SCD)
http://heal-balance-live.blogspot.com/
http://www.scdrecipe.com/recipes/
http://bethsblog.typepad.com/bethsblog/turtle_soup_the_recipes/ (I’ve searched through her blog and found all the recipes, so you don't need to buy the cookbook if you don't mind searching the archives)
http://eatingscd.wordpress.com/2008/03/10/eat-by-picture/
http://www.scdiet.org/2recipes/default.html
http://www.comfytummy.com/
http://grainfreefoodie.blogspot.com/
http://mrsedsresearchandrecipes.blogspot.com/
http://elysiumeatery.blogspot.com/
http://scdgirl.blogspot.com/
http://flog.cookingforceliacscolitiscrohnsandibs.com/category/recipes/ (the almond blueberry crumble looks delicious!)

And lastly, there are several helpful groups you can join at yahoo. Many of the moderators knew Elaine personally, and have been on the diet for years. They are:

http://health.groups.yahoo.com/group/BTVC-SCD/ (Marilyn and Kim are especially knowledgeable)
http://health.groups.yahoo.com/group/pecanbread/ (Susan and Sheila are the experts here)
http://health.groups.yahoo.com/group/scdinfo/
http://health.groups.yahoo.com/group/scdrecipe_creators/
http://groups.yahoo.com/group/SCDrecipes/

Now for some food tips:

I have an Excalibur food dehydrator for making the yogurt, because we go through a lot of it! I eat 2 cups a day (with honey), and it’s used it a lot of recipes (how I love the frozen yogurt yeah). The dehydrator holds up to 2 gallons worth of yogurt, plus it has a temperature control so you don't have to worry about overheating problems. Right now, I mostly just use the dehydrator for yogurt, but I have also dried onions and garlic to make powders, and made meringue cookies. Someday I want to be able to do fruit leathers and beef jerky too.

A crockpot is great for the chicken soup. We put the whole chicken in, bones, skin, liver, the works. The liver disintegrates into the broth, so you can’t even taste it. The bones put a lot of nutrition into the broth too. Once it’s done, we strain everything out. Then I puree the carrots (can’t really taste them either) and add it back to the broth, as well as the chicken meat. My dad said it’s one of the best broths he’s eaten, and he is an incredibly picky human being!. It works well to freeze the broth and chicken into individual portions and pull out whenever you're at a loss as to what to eat for supper. I haven't made a true bone broth yet, but they are supposed to be incredibly nourishing and healing to the gut. I need to find a butcher to see if I can get some good bones.

The cheesecake is pretty good, and tastes somewhat like a real cheesecake. If you don’t like dry curd cottage cheese, you can make it with dripped yogurt. I've been experimenting and have found using more dry curd gives it the texture of a real cheesecake, while using more yogurt gives it a more creamy texture. They're both delicious, but I think I favor the one that uses more yogurt. Also, I make the cheesecake with dripped half & half yogurt. Tons of calories!

I haven’t added nut flours to my diet much (yet). I've only made some blueberry muffins with almond flour, and used pecan flour as the breading for chicken fried steaks. Prior to using nut flours, you can make a soufflé bread for things like hamburger buns.

Nut butters can also be used to make baked goods. I eat both almond butter and pecan butter (skip the peanut butter and cashew butter in the beginning, because they're difficult to digest). Surprisingly, nut butters can make very good brownies and muffins. You wouldn’t think such a gooey mess would come out looking and tasting like real brownies/muffins, but I doubt anyone could tell that there isn’t a bit of flour in it.

A good veggie to try in the beginning is peeled cooked zucchini. It seems to be a food that almost everyone can tolerate well. Initially, I just ate it steamed with some butter on it, but now I eat it cooked with a little olive oil, sea salt, and parmesan cheese. Butternut squash is also good. I like to use it as a substitute to make pumpkin pie filling (I haven't made a crust yet).

One last thing to remember is that you need to customize the foods you eat to fit your body's needs. While one person may do great on high fat and low carbs, it may send another person into an intestinal fit. You'll have to do some trial and error to find out what makes your body happiest.

Good luck :-)!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/16/2009 10:30 AM (GMT -7)   
Spookyhurst,

Could you instead email these links and information to the requester? Your post is just too long and using too much space. Thank you so much!

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 7/16/2009 3:01 PM (GMT -7)   
Yeah use the search option too. You will find more.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


ekspain
Regular Member


Date Joined Mar 2010
Total Posts : 30
   Posted 3/12/2010 6:07 AM (GMT -7)   
is almond butter an advanced food? Can you eat it, even if it was produced in a factory that works with other illegal foods, even if a microscopic amount of the illegal stuff gets into the almond butter?

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 3/12/2010 7:03 AM (GMT -7)   
Why take the chance? Many other alternatives that you know are safe.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/12/2010 1:35 PM (GMT -7)   
Almond butter isn't too advanced. It's the nut flours that are advanced.

I eat almond butter from Trader Joe's without issue. Just make sure the ingredients have only almonds, and maybe salt. If you don't feel like you're seeing results with your health, pull the almond butter back out.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 3/3/2011 7:34 AM (GMT -7)   
MS. Spooky
You are so kind to provide so much detailed information. Even though I have been at SCD for a while I am going to bookmark this thread so I can review it in detail and make sure I have not missed anything.
I am so glad you did not email directly as this is such valuable information
 
Dinkdee - I have been at this a year and I wish I had all this info on day one. You were just given tons of infomration to compliment the book. I am not sure about you but I needed the book. I have read it about 5 times. SCD makes so many changes in your food and life that I needed all the info in the book not just the cliff notes. Also, the book describes why you need to be fanitically compliant. I hope you do not make the same mistake I made when I started, that is, "I am not that sick so 98% compliance will work." I was sick longer than I needed to be and after a few months had to  start over. Also, I really think the stages referenced by Spooky are very, very important.
 
Very best of luck and prayers to and for you!
dave
Pentasa (1,500 per day for the last 4 months), Vit D and B complex, fish oil and SCD vit. Entocort (9 mg). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

tats
Regular Member


Date Joined Aug 2007
Total Posts : 54
   Posted 3/3/2011 8:06 AM (GMT -7)   
I'm confused about how long to do each stage. I read the book but don't remember seeing it anywhere. I know the intro stage is 2-5 days, but how long for stage 1- whatever?

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 3/3/2011 10:29 AM (GMT -7)   
Another one where you havee to figure it out ourself. I know this can be really tough and frustrating.
It does not say as you point out. It is a try something new, wait a few days or a week. Try something new again. That is how to move through the stages.
Right now, I am in 3/4 and that works for me. I have enough variation in diet and I am really enjoying feeling good.
I will try some new stuff in the future but not now. This is how I am approaching it. Others will approach in their own way
Hope this helps
David
Pentasa (1,500 per day for the last 4 months), Vit D and B complex, fish oil and SCD vit. Entocort (9 mg). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

tats
Regular Member


Date Joined Aug 2007
Total Posts : 54
   Posted 3/3/2011 11:14 AM (GMT -7)   
Yes David. Thank u. That makes me a lot less confused. I was thinking I read the book wrong.

Any suggestions on yogurt makers?

tats
Regular Member


Date Joined Aug 2007
Total Posts : 54
   Posted 3/3/2011 11:18 AM (GMT -7)   
I wish I had a free day to research n google and get more use to this diet and lifestyle. My 2 lil girls r a handful so I am trying to research thru my phone when I can. @ night I'm extremely drained and tired so I don't get a chance to do much.

So thanks for all the advice and responses in advance.

What is a good probiotic to take that is scd safe? As well as multivitamins?

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 3/3/2011 5:13 PM (GMT -7)   
Hey Tats
I have been at it a year and still learning a rapid pace, so you will need more than  a day to know what you need to know.
Please take the time to go through the material posted by Spooky. That is the good stuff. If you get through that you will be educating me. The following link contains all you need to know about suppliments. I use Freeda SCD multi vit, Vit D and B12. All with SCD in the label. These are legal
 
 
Look at what spooky uses and why in her post. I use yogourmet with a light dimmer. Both of these are referenced by lots of folks as good. The excalaber is bigger and more expsensve. In retrospect I most likely should ahve gone with the excalaiber but I did not know how much I would use it.
 
You will next have to figure our starters.
 
Look at yougourmet, Custom probiotics.
 
I am using GiProStart and the product works great but someone else here had such a bad experience that I am not going to use them moving forward. I am going to custom probiotics formula 2 next but I can not say how it will work as I have never tried it.
I would hold off on any probiotic as the yogurt has way more probiotics than you can buy anyways. (about 1 trillion per cup). And the starter I am moving to has all the legal strains.
 
I feel for you, that you have 2 kids and trying to take casre of your self, but hang in there. I hope you get benifit fast but you need to be prepared to wait 90 days or more. I was at it almost 4 months beofre I saw progress but I am so glad I stayed with it
Dave
 
 
 
 
Pentasa (1,500 per day for the last 4 months), Vit D and B complex, fish oil and SCD vit. Entocort (9 mg). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

tats
Regular Member


Date Joined Aug 2007
Total Posts : 54
   Posted 3/3/2011 7:35 PM (GMT -7)   
Thanks for the tips David. Is it mandatory to eat the home made yogurt? Or is that an option? I'm so scared to do it wrong.

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 3/4/2011 7:33 AM (GMT -7)   
Tats
Please do not be scared to make this. It is so easy even I can make it and I have never got it wrong, not even the first time.
1) I use a double boiler set up to heat the milk to 180 or even boiling. I just read that if you like the yogurt thicker to let it be at 180 or above for about 5 minutes. I use a double boiler (one pot with some water in it and a slightly smaller pot with the milk in it in the water) as milk will want to stick.
2) After heating pour out the hot water from the pot and replace with cold water and as I am impatient I also add ice to the water (of course add notihng to the sterile milk).
3) Take a bowel and put the starter into the bowel. I add a bit of the cool milk (when the milk is 75) to the bowel and stir. I try to get all the lumps out. I keep adding a bit of milk and stirring until all the lumps are out.
4) Puor milk into yogurt maker
5) Pour milk and starter into the rest of the milk.
6) Turn on yogurt maker and wait 24 hours.
7) After 24 hours put in fridge and wait at least 6 or 7 hours for the yogurt to set up.

It is really easy and the good news is if it looks like yogurt it is yogurt. If by chance there was an issue when making it, and there will not be, then it will look just like milk.

This yogurt is a more powerful probiotic than anything you can buy. The most expensive probiotic I could see is VSL and it I think is a 250 mil dose. One cup of this yogurt is 1 billion. That is why you have to go slow when you start taking it. But yes, yogurt is a very important part of the program.
Hope this helps
David






When the milk gets to 75
Pentasa (1,500 per day for the last 4 months), Vit D and B complex, fish oil and SCD vit. Entocort (9 mg). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

tats
Regular Member


Date Joined Aug 2007
Total Posts : 54
   Posted 3/4/2011 8:10 AM (GMT -7)   
Thanks again David. I will try to attempt this over the weekend. I have started a food journal, along with a meal plan for the week and maybe I'll get to cook some food this weekend. For now I am sticking to boiled eggs, farmer cheese (no salt added), roasted/baked chicken as well as boiled chicken/calf livers, baked squash fries, homemade ketchup, want to attempt mayo, boiled tongue and maybe some kind of fruit puree.

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 3/4/2011 1:09 PM (GMT -7)   
Cool and I hope by Monday you are on a good path
Dave
Pentasa (1,500 per day for the last 4 months), Vit D and B complex, fish oil and SCD vit. Entocort (9 mg). SCD since Nov 2010. Amitriptyline for sleeping
Feeling good, almost every day!

tats
Regular Member


Date Joined Aug 2007
Total Posts : 54
   Posted 3/4/2011 1:15 PM (GMT -7)   
Thanks Dave. Ur a big help. Is the homemade ketchup n mayo ok for satge 1?

downgarden
Regular Member


Date Joined Jan 2010
Total Posts : 74
   Posted 3/4/2011 3:45 PM (GMT -7)   
What about going to acupuncture while starting scd? anybody knows?

I get fully good when I go to acupuncture 2-3 times weekly, but would this slow the proccess or speed it up.
Say I go for 6 months and then stop and find myself in a situation where I have alot less symptoms?
Or is it the opposite, will the acupuncture delay the benefits of SCD?


/Toby

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/4/2011 3:54 PM (GMT -7)   
Go ahead with your acupuncture, it won't negatively affect SCD. If I were to hazard a guess, I'd say acupuncture could only help!
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, CoQ10, Betaine HCl
SCD since 12/01/08

livingwell249
Regular Member


Date Joined Oct 2011
Total Posts : 127
   Posted 11/24/2011 12:16 AM (GMT -7)   
Hey..some old posts here. I was just wondering if any of these posters are still posting and how they are doing on SCD?

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 11/24/2011 5:59 AM (GMT -7)   
I still SCD and always try to be fanatically compliant. This year it included making a turkey just for me as butterball has soy and other illegal ingredients in it. So still learning and continuing to tweak and improve the program.

I have been feeling fantastic almost everyday but went through a rough stage about for a couple of weeks about 2 weeks a go. I was in Marco Island Florida, on vacation, and rode over 110 miles on my bike on two separate days. Other days 60 to 80. I was feeling not only good but great. I ran out of my meds and SCD yogurt in addition I drank 2/3 of a bottle of good red wine one day and was eating tons of carbs. And then I started to feel sick.

I went back on the SCD intro diet for a few days, went very low carbs (less than 50 gms per day). I limited my diet to a very few safe foods. I did this for about 3 or 4 days and it pulled me out. I am back to feeling strong and stable. It taught me that I still have crohn's and that it is the program that is keeping the symptoms at bay. I also appreciated that I can go to the program for answers to how to get though the rough periods and to get back on track.

I expect to be eating SCD even after CD is cured, which I continue to pray will be soon.

Happy Thanksgiving to all

Dave
SCD - Fanatical Compliance since Nov 2010 (Low Carb, Healthy Fats, No Processed Foods, Low Omega 6, Tumeric,...)
Buys all expsensive drugs from Canada
Pentasa (3 x 500), Vit D and B complex, fish oil and SCD vit. Amitriptyline for sleeping
Feeling good to great, almost every day!
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