Please tell me

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auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 7/16/2009 3:27 AM (GMT -7)   
Whats the difference between active disease and a flare up? I'm just wondering if you can go along with your crohn's being a little active and not really be flaring?

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 7/16/2009 5:47 AM (GMT -7)   
I consider myself as always in active disease with occasional mini flares and a flare every 5-8 years. To me:
Active disease--daily symptoms including quick bathroom trips, cramping and minor skin issues, things I can work around in daily life
Mini flare--happens every few weeks to months and involves several days of no solids and lying on the couch with either pain or harder cramping of my gut, visit to doc not needed
Flare--pain and multiple bathroom trips that require more serious meds to get past (prednisone), requires visit to doc

I guess I am the definition of mild disease. Now can you tell I am a person who makes structure when there is no structure :-) I set these definitions up for myself so I could describe my day to day feelings to those in my family.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 7/16/2009 7:56 AM (GMT -7)   

I have probably had Crohn's for a number of years but did not know it until I had a colonoscopy and was diagnosed two years ago. All scopes (8) since have shown active disease. I cannot say I have ever flared (having symptoms of a flare) even though I have had surgery to remove a very narrowed and inflammed stricture?

Others have posted that they went along for years thinking they were in remission but then require emergency surgery so I would guess that they have had active disease as well.

 


57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 7/16/2009 8:11 AM (GMT -7)   
To me active disease is any level of disease activity that either produces constant or intermittent symptoms (D, cramps, frequency, all the way up to general malaise and bleeding.) We can and do have active disease that produces no overt symptoms but shows itself with visible inflammation and/or ulderations on scope or other clear signs from tests like capsule endoscopy or SBFT. Remission to me is the extended absence of any of the above. For some with more severe disease, remission might be simply no faily active D or pain. It really depends on your severity of disease I think. Overall, active disease is something you notice and must accomodate to on a continuing base, essentially what is defined for you as a flare.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/16/2009 3:00 PM (GMT -7)   
I consider I have active disease all the time, with some days being better than others.
Jo

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 7/16/2009 5:15 PM (GMT -7)   
I probably have very low active inflammation most of the time, which means mucus & occasional attacks of the big D, esp. after a skull & crossbone itemized food item! LOL
Flares mean bad symptoms FAST & SUSTAINED. Often, some new ones. thankfully, no major flares aside from arthritis since fall of 2004. A trend I hope continues..

Matthew

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 7/16/2009 5:34 PM (GMT -7)   
Active disease = flare-up and vise-versa...flares can be mild to moderate, if you're flaring then you have active disease.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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